posted
Hi All, Got recommendations for these two docs: Dr N in CA and Dr Y in CA. Anyone have any personal experience with either one of these? Any info would be great to help find the best fit for me. I will have to wait about 6 weeks to get in to see them.
About me: I am a 45 year old housewife, farmer & homeschooling mom. My life started to change about 3 years ago when my knees started hurting after a run.
I was extremely active. Starting to compete in triathlons, hiking and planning to hike Whitney that summer.
I made our 2 1/2 acres in CA into a small family farm. Raising and butchering our own meat and maintaining a 10,000 sq ft organic garden.
I home schooled our youngest 2 kids. We have 4.
As many of you have experienced...most of that is gone now.
Slowly, my health has deteriorated. Starting with my knees (one of which is ready for knee replacement now), and continuing with All the classic symptoms of chronic/late stage Lyme.
I sought treatment from my Priamary Care Physician as they came up- ~Lethargy & complete fatigue. ~Serious Brain Fog. ~Heart Palpataions ~Depression ~Tinitus ~Nerve Pain ~Mystery pains
He ran 3 blood panels over the course of 2 years at my urging that I was not "right" but never included Lyme.
I was healthy according to the tests. A few minor things out of balance but "nothing to worry about"
After changing to more expensive insurance so I could go see "better" doctors, I was left with the impression that these new docs thought I was making stuff up.
After about a year of the "better" docs and numerous tests, procedures and 2 surgeries on my knees with no answers I was told there was nothing more they could do for me except to send me to pain management or I could get a 2nd opinion.
So, desperate, I went back to my Primary Care Physician and pleaded with him that something was wrong.
How could someone as healthy, happy and active go from that to the run down, depressed, pain stricken, unable to recall words, unable to walk sometimes, person that I have become?
How could a 42 year old persons knees go from healthy to not being able to walk and needing knee replacement in less than 3 years time???
Why was no one as concerned as I was?
So, he listened. Wow! I begged him to run every test my "better" (read expensive) insurance would pay for.
So....He ran the Lyme test and BINGO!!!
Next time I see him I want to ask him what made him decide to run it.
Most questions are now answered. Nice to finally know but I am a little numb with what comes next.
He is not LL and is starting me on 100mg doxycycline for 30 days. I guess it a place to start but I am now very anxious to find a LLMD to attack this with me.
All he has said is that we will re-test for Lyme in 30 days and if it's not gone (I am smirking) he will send me to an infection disease specialist.
I know my story is soooo common here as I read all of yours.
I am in mourning.....for the person I was just a short time ago. I just found out 3 days ago so I am giving myself time to process and trying to not be to hard on myself.
I am also in the process of telling my family and trying to educate them. It's not so straight forward to explain.
Thanks for reading. I would love any feedback, opinions and help you can offer as I feel pretty alone right now.
**edited cities of LLMD's per LN rules .. Please contact KC for info**
posted
Hi - I suggest you separate Seeking A Doctor questions from the rest of your discussion and repost the rest in General Support for board discussion. That's where people are going to read what you're discussing.
It's very important that you post this discussion to read what the board has to say - lol - I mean, it's not funny, but they're going to have a lot to say about what you're posting!
Also, fyi, we only say last name initials here of doctors along with the state and people will pm you.
Now I am pming you with the rest...
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