LymeNet Flash: Connecticut Seeking LLMD

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Connecticut Seeking LLMD

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Author

Topic: Connecticut Seeking LLMD

Sislove
Junior Member
Member # 48338

posted

Two sisters with chronic Lyme symptoms but negative blood work ( "On no, you couldn't have Lyme Disease"). Both with numerous tick exposures and bull's eye rashes.

One sister recently diagnosed with ALS. Very much want the opinion of an LLMD! New Haven area would help, but could travel anywhere in the North-East.

Thank you!

[ 07-13-2016, 07:23 PM: Message edited by: Sislove ]

Posts: 1 | From New Haven, CT | Registered: Jul 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for CT.

The bull's-eye rash is definitive for Lyme! Your sisters need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. Your sisters need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

[ 07-25-2016, 05:09 PM: Message edited by: hopingandpraying ]

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

If you go to www.MarylandLyme.org and look under "Doctor Referrals" (menu to your left) you will find a site with doctor's contact information for the USA, including information on alternative doctors, labs and support groups.

Hope that helps!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

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