posted
Seeking ANY Lyme Literate doctor in - NYC, Brooklyn, Bronx, Queens, Long Island, Connecticut, New Jersey, Ft Lauderdale, Miami, Boca, Delray, Palm Beach, Naples, Ft Meyers etc.
I live in Naples FL and my mom is on the east end of Long Island. THERE HAS to be a LLDR in ONE of those places? Please help?
Posts: 1 | From Naples FL/ Tri State NY | Registered: Aug 2016
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
There used to be one good lyme doctor in the state of Florida, but he retired a few years ago. There are others in Florida, but I would not recommend any of them. In fact, one is a total nightmare like you wouldn't believe.
So, there ARE lyme docs in Florida, but I don't think you would be happy with any of them. I advise those in Florida to come up north for good care.
There is nobody in NYC that I recommend. See this very recent thread about NYC lyme docs.
I would hate for you to pay the big bucks to a lyme doc in NYC and not get good care.
There is also nobody in New Jersey that I would recommend. (There are lyme docs in NJ, but I have some totally horrible patient reports on some of them; some with really bad reputations.)
So, that leaves the state of Connecticut. Perhaps those in Connecticut who know their doctors well can help you.
You can also contact the lyme support groups in Connecticut to see who is getting people well. See Support Groups on the left side of the page.
You are going to pay big bucks for a good lyme doctor (or even for a terrible one), so be sure to get a lot of input from people before laying out the money.
I finally got well once I studied the Burrascano Lyme Treatment Guidelines and traveled to hear Dr. Burrascano speak at a lyme support meeting. Then, I called the support groups near me and asked for a doctor who followed the Burrascano protocol, meaning that he did everything Burracano said to do. That is how I found my third and final lyme doctor. In 8 months I was symptom free and in 13 months I was finished with my treatment. That was over 11 years ago.
But, I wasted 2 years treating with a lousy lyme doctor before I became an educated patient. Unfortunately, this is all too common.
So, educate yourself on this disease so that you will be able to evaluate any doctor's treatment of you. This will save you time and money and emotional distress. I suggest you start by studying the Burrascano Lyme Treatment Guidelines found here:
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between.You need to go where they are. I don't know of any on Long Island.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
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