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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » need a llmd anywhere around SC

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Author Topic: need a llmd anywhere around SC
ih8lyme
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Member # 48708

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I was a patient of Dr.J in NC have not had care in a very long time I need to see somebody having a big flare up can't survive on my own without some treatment any longer. I have BCBS so they will not cover Lyme at all any advice would be appreciated
Posts: 12 | From south carolina | Registered: Sep 2016  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I am not aware of any in SC. I'm very sorry.

I have a list for NC, but not anyone who is really good.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
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People south of D.C. generally have to travel north to get good care. How far north could you travel?

Many lyme docs will now do monthly telephone appointments so you would only have to appear in person once every 3 months.

I know a good lyme doc in the D.C. area who will do this and there is no wait to see him. Let me know if you want the name.

Your BCBS will cover routine lab work and the prescriptions. And, generally you can also submit a claim for the doctor visits and get some reimbursement. Perhaps a third of the cost would be covered and you would get a check from your insurance after the fact for that amount.

You cannot get reimbursed for telephone appointments however.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for NC & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. None in SC.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):

http://whatislyme.com/lyme-in-north-carolina/

https://www.facebook.com/pages/NC-Lyme-Advocacy/290956021030771

http://www.nclyme.net/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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