posted
Looking for LLMD in mid TN or also willing to travel/fly to a specialist that allows some telemed/remote follow up visits.
Positive ELISA Lyme test. Negative western blot at regular lab. Positive western blot at igenex. I'm being treated by a local non traditional for past year but looking for someone with more experience.
I likely contracted Lyme when I visited Vermont and found engorged tick on me 4 years ago but, of course, I don't know that for sure.
Posts: 1 | From Tennessee | Registered: Dec 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out of state for their care.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I sent you a name.
Welcome to LymeNet! We will help you all we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If you go to www.MarylandLyme.org and look at the menu on your left you will see DOCTOR REFERRALS.
You can find Lyme treating health care professionals there, listed by state and country. It also has links to help find alternative doctors, chiropractors, specialists in Morgellons and MTHFR.
You will see some are listed as having phone or Skype follow up appointments.
The Lyme Doc site also has a listing for good labs, links to find a naturopathic doctor, acupuncture and oriental medicine doctors too.
Holistic dentists, experts in mold, and even places to avoid are listed there.
Here is a "Help For You" page that, if needed, can help with the cost of labs, provide free or reduced priced medications, grants to assist those under 25 with Lyme related costs, free cell phones and more.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/