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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Just diagnosed - VA

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Author Topic: Just diagnosed - VA
Orthomgr
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Member # 49772

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I'm reading all I can to become informed. Never did I know this was such an illusive "condition". I do keep reading that I should locate an LLMD. I live in Roanoke, Virginia. Anyone know if I have any options? Thank you.

[ 02-01-2017, 12:00 AM: Message edited by: Robin123 ]

--------------------
D

Posts: 1 | From Roanoke, VA | Registered: Jan 2017  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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If you are willing to travel to the Washington, D.C. area, there are some very good lyme doctors there.

The one I recommend only requires you to come in person once every 3 months. He will do telephone or skype appointments the other months. So, you won't be traveling that much.

You call in between appointments if there are any problems.

Once you go south of D.C., there are few to no good lyme doctors. So, travel is the name of the game.

Let me know if you want this doctor's name. There is virtually no wait to get in with him, which is rare for a good lyme doctor.

People from Tennessee, Florida, Texas, Ontario, upstate New York, Ohio, etc. are traveling to see him. He is very good.

To get your education on this disease, I strongly suggest you read and study the Burrascano Lyme Treatment Guidelines found here:

http://www.lymenet.org/BurrGuide200810.pdf

It is not an easy read because it was written to doctors to teach them about this complex disease. But, once you study it, you will know what good lyme treatment looks like, and you will understand a lot more of what the lyme doctor is talking about.

Welcome to LymeNet! We will help you here all we can.

p.s. Those who are willing to help others find lyme doctors like to look at the subject of a post to see if they can help. So, for that reason, I suggest you add "looking for doc in Va. or surrounding area" or something like that in the subject line of your post.

People pass by posts that don't say what state they are interested in.

Use the paper and pencil icon above your post to edit the subject or the post itself.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
HW88
LymeNet Contributor
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Welcome. There is definitely a learning curve to this disease. I've been at it about 8 months and STILL learning new things.

I see the Dr. TF recommends and have seen improvements.

Read the Burrascano guidelines also Healing lyme by Buhner. I'm reading why can't I get better by Dr H also.

Many people here are experts and very loving and helpful.

(editing out doctor's name per LN rules)

[ 01-31-2017, 11:39 PM: Message edited by: Robin123 ]

Posts: 798 | From Cincinnati, OH | Registered: Jul 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for VA & MD.

Here is a link for you to read about "Two Standards of Care":

http://lymedisease.org/news/lymepolicywonk/lymepolicywonk-two-standards-of-care-revisited.html

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/VirginiaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Virginia/

The top LLMD, Dr. H, has written a book titled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

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Bid3
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Interesting TF, even the lymedoc site only lists VA docs that are in Loudoun and Fairfax county, both just outside of Washington DC.

I sending a PM for a doc closer that TF's likely recommendation.

Posts: 31 | From VA | Registered: Jan 2016  |  IP: Logged | Report this post to a Moderator
   

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