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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD in NY PA

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Author Topic: LLMD in NY PA
Loraine
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Member # 50105

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In desperate need of an LLMD...I was originally diagnnosed with Lymes over 17 years ago and my symptoms continue to worsen. HELP!!!!

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Loraine

Posts: 2 | From Morris County | Registered: Mar 2017  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
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I sent you a name and lots of information. Write back if you have any questions.

You MUST be willing to travel to get good lyme treatment. This doc could definitely help you.

Welcome to LymeNet! We will help you here all we can.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Loraine
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This information is incredible...thank you!

I will certainly contact Dr. J and keep you posted.

Have a great day!

[ 03-29-2017, 09:48 AM: Message edited by: faithful777 ]

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Loraine

Posts: 2 | From Morris County | Registered: Mar 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Welcome to Lymenet! PM sent for PA, MD & CT.

I assume you are in NJ (you didn't include the state you were in).

Here are some quotes from old posts about NJ:

"There are NO good LLMD's in NJ. NJ is a wasteland of bad docs. I can tell you from years of experience, unless you go with an established doc (of which there are only a few on the east coast) you will get undertreated and continue to relapse.

PLEASE TAKE MY ADVICE. NJ is a bad place for ticks and a bad place for tick doctors."

"The LLMDs in NJ are not very good based on patients' experiences. People start with them then end up going to see other LLMDs out-of-state."

"Over the years, the folks in New Jersey have said that the best Lyme doctors are not there."

"I strongly suggest that you be willing to travel outside of New Jersey to get good treatment."

"There are Lyme doctors in the area you have named, but I don't recommend any of them. To get a good Lyme specialist, you will have to be willing to travel. At least half of all Lyme patients go out of state for their care."

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8888 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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