LymeNet Flash: MICHIGAN Seeking LLMD

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » MICHIGAN Seeking LLMD

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Topic: MICHIGAN Seeking LLMD

Sarah2360
Junior Member
Member # 50123

posted

For the last 2 years, I've been struggling to find answers and get relief from a long list of symptoms, which now leave me almost completely bedridden.

I had a negative western blot, and B. Burgdoferi test last year, so I started looking into other illnesses.

I recently decided to revisit Lyme disease as a possible diagnosis, After reading about false negatives in commen tests.

I'm hoping to find a LLMD in my area, and hopefully be able to get igenex testing done,to get some answers.

I'm located in SW Lower Michigan. I'm happy to answer any questions, and appreciate any suggestions! Thank you!

Posts: 1 | From Michigan | Registered: Apr 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for MI.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MichiganLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.mlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Michigan/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Mother of 5 boys
Junior Member
Member # 50206

posted

I too am new and looking for a good doctor in Michigan. I have been seeing someone but he doesn't seem to know what to do with me. Please help

Posts: 1 | From Michigan | Registered: Apr 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Mother of 5 boys - Welcome to Lymenet!

You should write a new post instead of adding on to an existing one, because most don't re-read old posts. That way, more people will see it and respond.

PM sent for MI.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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