posted
Hello fellow Lymies! I live in Las Vegas, but I know there are no good doctors here, let alone lyme-literate ones.
I've had Lyme for 20 years (since age 13 at least) and this is my 3rd time back to this forum to ask for help finding a doctor.
I'm ready to go all in treating this thing and so I'm willing to travel anywhere in the U.S., I'm just not sure where the best doctors are.
I've seen many LLMDs in CA (Dr. H, Dr. S), and one in WA (Dr. K), but haven't found anyone who has been able to help alleviate my neurological issues.
My suspicion is that there is something else that's being missed. The latest doctor I visited was in MD,
but I can tell after the first visit and the lousy experience I've had so far (30 days post-appt and I still haven't started any treatment) that he most likely will _not_ work out.
I think I'm looking for someone who can help figure out if I have other issues such as mold issues, CIRS or MCAS in addition to treating Lyme, so they have to be knowledgeable and be good at what they do (that probably goes without saying).
My hope is that the next doctor I see will be the last doctor I have to see and can stay with for a long time because I'm confident in his treatment protocol.
Please help!
(breaking up the post for easier reading for many here)
[ 05-21-2017, 04:35 PM: Message edited by: Robin123 ]
Posts: 30 | From Las Vegas | Registered: Mar 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sorry to say you've been to some of the best there are. If they haven't satisfied you, not sure who can, if anyone.
If you are looking for more help than they can or have provided, especially with other conditions outside of their main field of medicine that you mentioned, you will be disappointed.
May I suggest finding specialists in the "other" areas of medicine that you are interested in?
A Google search should provide some answers for you.
Sorry I can't help you find someone to suit your specific needs.
posted
That's disappointing to hear, TinCup. In truth, when I say Dr. S, Dr. H, I only ever saw Dr. H's PA and the other physician, Dr. M, in Dr. S's office which may be the issue.
However, isn't there anyone that treats more holistically? I know those guys are just MD's and they typically are only open to treating with antibiotics and that's it. Ideally I want someone who is open to using IV antibiotics and alternative treatments and knows a bit about these other issues.
I don't know, perhaps I should give Dr. K another go since it has been some time since I've seen him....
Posts: 30 | From Las Vegas | Registered: Mar 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Wish I'd have known you wanted a holistic type doc. Sorry that wasn't clear to my Lyme brain. I'm sure you know what I mean.
Before I mention the "meat" I'd like you to watch the update (2017) info shared in the Lyme Data project.
It has a chart (several actually) showing what treatment methods Lyme patients have been using and which ones are most successful and which have the most side effects. Everything from rife, to herbals, to electromagnetic, to stem cells to hyperthermia and more are covered.
Excellent info- and it is coming directly from Lyme patients who have been there, done that. Here is the link.
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state).
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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