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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Dr in Ontario or Buffalo NY, Western NY areas

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Author Topic: Dr in Ontario or Buffalo NY, Western NY areas
cptr99
Junior Member
Member # 50661

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Hi
My location is Cambridge, Ontario, Canada. Ideally looking for LL doctor in Southern Ontario but if that is not possible then would be willing to travel to Buffalo area or Western NY or further. Open to all suggestions not necessarily convenience.
thanks
Robert

--------------------
R.
Seeking Restored Health

Posts: 1 | From Cambridge, Ontario, Canada | Registered: Jul 2017  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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There is no doctor in Canada that will treat lyme properly or even take you seriously.

Another person in your area posted this recently:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=028011;p=0#000001

So, this info is relevant to you and your doctor search. Study the info you see there because I am not repeating it here.

The docs I know and recommend are pretty far from you. You can wait til others come on here with names. You can also contact the lyme support groups in the U.S. that are nearest to you. See Support Groups on the left side of the page.

Here is the webpage of a top notch lyme doctor located in Washington, D.C.

http://gingersavely.com/

She only requires in person visits once every 6 months. She will do telephone appointments the other months. So, if this sounds good to you, let me know and I will give you details on her costs, how she treats, all those who recommend her, etc.

You would have about a 3 months wait for the first appointment. She will do a telephone consult one month prior to do whatever is necessary to make the first appointment more productive. She is a class act!

This webpage gives you an idea of what the page of a true lyme specialist will look like. Of course, you can't expect many to have the credentials of this lady. She even has publications with Dr. Burrascano.

I give you all of this so that you will know what to look for when searching for your first lyme doctor. Most people make a bad first choice because they are not educated on lyme and what good lyme treatment looks like.

You should read and study the Burrascano Guidelines to get your education on this disease. Then, go looking for a doctor who treats like you see in the Guidelines. That is not going to be an easy task. There are very few of them.

I can give you some other names if you like.

The best lyme specialists seem to be on the east coast. That is likely because we have so much lyme here compared to the interior of the country.

There is a fellow Canadian that posts on here and also on Facebook. His name is Jory. Here is one of his posts:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/37137?#000000

I am sure he would be happy to correspond with you. He is helping as many people as possible now that he found LymeNet and our good lyme doctors.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! LLMDs are far and few between, so you need to go where they are.

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

This is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have to!). Patients have been able to get in sooner by doing this.

Here is some more info for Canada you should have:

I don't know of any LLMDs in Canada, as I was told the climate there is very bad for Lyme treatment.

Check the Canadian Lyme Group at:
www.canlyme.com

http://www.lymenet.org/SupportGroups/Canada/

Here is a website I found entitled, "The Lyme Maze - Navigating Lyme Disease in Canada":

http://thelymemaze.blogspot.com/p/igenex-lab.html

Also a good resource for Canadians with Lyme:
http://murakamicentreforlyme.org/Home.htm

*Note: Dr. Murakami was the top LLMD in Canada before he retired.

Some additional resources for you to study:

Read the following books:

"Why Can't I Get Better?" and the new one, "How Can I Get Better?" written by Dr. H, the top Lyme-literate doctor. They are an excellent source of information.

"Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

"Ending Denial (Updated in 2013): The Lyme Disease Epidemic - a Canadian Public Health Disaster" by Helkie Ferrie.

The description written about this book on Amazon is as follows:

"This book includes tips and tricks for getting treatment and testing if you live in Canada. Lyme is becoming a public health crisis in Canada. An estimated 20,000 Canadians become sick with Lyme every year, but patients are not allowed access to internationally recognized tests and are denied successful treatments.

The disease is readily treatable with conventional antibiotics, even in its chronic form. A call for action from patients, doctors, researchers, and politicians, this book contains life-saving resources with over 450 pages. It also includes access information to reliable tests for Lyme Disease not available in Canada, as well as effective treatment guidelines."

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

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