Does anyone have experience with a good LLMD in Northwest Alabama?
I know you go by states, but anywhere close to Birmingham, Huntsville, Tuscaloosa or Florence Alabama would be best IF this information is available.
Thank you!
As for my history, I am a "Repeat Offender."
Sadly, my former LLMD (round trip 10 hours) is no longer available and I can also no longer physically make a trip of that distance.
So, I'm hoping to find someone "kind" and "understanding" and who knows how to treat this horrid disease.
Regarding symptoms: I have all the classic (and all-too familiar) ones; arthritis, stiff, swollen painful joints, stiff and painful neck, headaches, fog, nausea, exhaustion, Bell's Palsy, Chest Pains...
But I was about a week in when they started (and I saw spirochetes--the little lightning bugs in your eyes--NO DOUBT then).
And then the symptoms snowballed very quickly before I could get in to see anyone local (offices closed for holidays) to get started on antibiotics.
I know. I was STUPID! But, I thought, "What are the chances of 2 Lyme-infected ticks biting me?"
And I was in denial. I had had to completely turn my back on Lyme Disease to ever get better... I had to not think about it, not talk about it and not ever, ever even speak the name...
Plus, I suffer from chemical sensitivities anyway. So at first I thought I'd just been exposed to Drano at work or Roundup on the side of the roads... (Or Febreeze or a million other chemicals everyone is poisoning themselves with everyday...)
Now, I know it's Lyme Disease beyond a shadow of a doubt. Been there - done that. (Hmmmmm. I said it. I'm admitting it.)
And now, I'm going to have to pay for my big mistake. (I am trying so hard to forgive myself. I was SO angry until I remembered how I'd HAD to live in denial just to cope.)
AND now, I have to begin the second fight. It's not just fighting the disease. It's fighting the system. The "suspicions."
"We can only go by CDC guidelines."
"Your Lyme Test came back negative."
"Plus, no antibodies showed up in your screening (i.e. Obviously, you lied about having it before.)"
"We have no help or information on specialists. And a specialist is not going to see you with this negative Lyme Test."
I told them they were wrong. i said a Lyme Disease specialist would know that you treat the SYMPTOMS and not the TEST.
And I don't think they want to see me anymore. And my old LLMD can't help me this time.
I have a little bit of Doxycycline and (generic for) Flagyl left. Taking less than recommended until I can "hopefully" get in to see an LLMD.
As I take less antibiotics, the symptoms, pain (and increasing confusion) are washing over me. Increasing again each day.
I apologize for probably "too much information." I got into a little vent, there. (Actually deleted half of it, lol.)
But who else understands? Who else gets it but you?
You obviously know to send me an email through this system. I certainly know not to use doctor names. I was glad to learn some things have changed in the last dozen years... But I am SO heartbroken to realize that NOT enough has changed.
Any and all assistance is greatly appreciated. I hope everyone has the best weekend they can have!
Warmest Regards, ChaZZie Mo
Posts: 12 | From Alabama | Registered: Jun 2018
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Very heartbreaking indeed ChaZZIe
But you beat it once, you can do it again.
Sending you a private message.
Also, you can request a LLMD through Global Lyme Alliance here ;
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