LymeNet Flash: Need good LLMD IN MI or nearby states

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Need good LLMD IN MI or nearby states

UBBFriend: Email this page to someone!

Author

Topic: Need good LLMD IN MI or nearby states

lucecaboose
Member
Member # 13058

posted

I wasn’t allowed to save my edited post, even though I’m a registered user.

So I rewrote it and I’m posting it again.

I was told in a PM to edit my post because she thought I was asking for just names and not recommendations.

I thought I was asking for recommendations. If that wasnt clear, I apologize.

She also said to break up my paragraphs into one or two lines.

She also thought I was being too picky because I didn’t want a doc who was insulting and angry.

I just won’t end up going, then. And I really need a Lyme doc.

So:

My LLMD retired and I’ve been looking for a new one.

I had an appointment with a local one and we did not hit it off. She was angry and insulting.

I need someone I can talk to and ask questions of. I’ve had three LLMDs in the past 20 years…died, retired, retired…

and I’ve been able to ask questions and explain things to each one of them.

Also, this doc charges $800/month for treatment. And the other local doc charges more.

I am willing to travel out of state. They don’t have to be in my area of Michigan, or even in Michigan at all.

My tick bite was in 1999. I got sick in 2002. Was misdiagnosed until 2007.

Have been on IV abx twice. Each time, 9 months. I felt better but when I went off, even if switched to oral abx, I was back where I started.

No remissions.

So, I am asking for recommendations for a good LLMD and I will travel.

Thanks for your help.

Posts: 43 | From Grand Rapids, MI | Registered: Aug 2007 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

lucecaboose

You can request a LLMD through Global Lyme Alliance here;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

You can request a LLMD through ILADS ( International Lyme And Associated Diseases Society) here;
https://www.ilads.org/patient-care/provider-search/

These are simple e-mail formats that you fill out and they contact you with LLMD’s closest to you. Any referrals should be vetted before committing. To do this, google for patient reviews.

You can request a LLMD in any state.

Also connect with your Lyme support group for member’s first-hand experiences with LLMD’s in your area. Here is the Michigan Lyme support group;

https://rawlsmd.com/lyme-support/united-states/michigan/michigan-lyme-disease-support

Posts: 2977 | From Florida | Registered: Nov 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

lucecaboose - I feel I need to address this post because things were misconstrued. I have been helping people here on LymeNet for many years and have always tried to provide information to others which I have collected and learned while looking for help for my own son.

First of all, your post was not deleted. I found it under "Need LLMD Grand Rapids,MI area" in "Seeking a Doctor" just a couple of posts down.

Here is the link:
https://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=028831;p=0

You most certainly need a good LLMD and are entitled to one who will treat you properly. They are out there. You wrote "picky", not me.

I only meant that you may not be able to find a LLMD who is able to completely fulfill all your wishes, not that you were being picky. A good one most definitely will be able to help you and travel may be needed (we travel three hours one way with our son).

I did send you some names of very good ones in neighboring states.

We always recommend finding out more information about a doctor, not just getting names from a list.

If you get a name then post in "Seeking a Doctor" and title it, "Need Info About Dr. _ (last name initial only per LymeNet rules and state only (no towns/cities) and ask for personal references if they are from that particular doctor's patients or if anyone has information about them. That is the best way to find a good LLMD.

Contacting your state's support groups will also help.

Links for MI Lyme Support Groups:

www.mlda.org

https://www.lymenet.org/SupportGroups/UnitedStates/Michigan/

Finally, I asked you to break up the post into 2-3 sentence paragraphs, because others cannot read large blocks of text due to neurological problems from Lyme. This had nothing to do with getting names and recommendations of doctors.

I wish you well on your healing journey.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/