Softballmom:I can relate, big time. Im 28 years old, raising a mental retarded child with autism AND lyme, a 6 year old little girl with trashed kidneys AND lyme and then a 10 year old with mental problems, behavioral problems that most likely are from lyme.
I get laughed at constantly for saying the wrong words. I have literally called my littel girl "hey little girl" on times I dont remember her name. There have been plenty of ocassions that "hey little girl " doesnt work
and I have to call her "bouncy curl girl, come here"
I've meant to ask for the phone and asked for "Some foam"
Etc, the list goes on. The stupidest thing I have said was to my 10 year old son
"Go up stairs and get my breasts"
I wasnt even close to what I meant as I really wanted him to go up stairs and get me some tissue for my nose.
It IS horrendous, but the good news is that it DOES get easier with treatment. In the meantime, think of it is as temporary and do not let it get you down.
I've lost 99.9 percent of that symptom except for when i am really herxing.
Its still really frustrating though when you are trying desperately to say something and get laughed at. I have explained to my kids NOT to laugh at me or simply put, they have to sit and think about how that hurts me.
I have also gained ALOT OF weight and the fat jokes halted in about two weeks of my kids losing their games, etc for laughing and saying it looked like I ate their little brother.
They may not understand this disease, but I'll be go to hades if they are going to make fun of it, or me, or anyone else disabled for any reason!
Instead of my telling my kids about lyme ( even though my 6 year old does have it) , I simply told them that I hurt my tongue and it doesnt say the right stuff anymore due to my disease and that I would
appreciate it if they would knock it off and that I wouldnt laugh at them if they skinned their knees.
Depends on how old your kids are though, but in any case, I hope this helps.
I used to cry alot too, now honestly, I do laugh alot at myself.