LymeNet Flash: Need info on normal spinal tap with Lyme for someone

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»	LymeNet Flash » Questions and Discussion » General Support » Need info on normal spinal tap with Lyme for someone

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Topic: Need info on normal spinal tap with Lyme for someone

luvmycat
LymeNet Contributor
Member # 4984

posted

I've been emailing someone at Braintalk that could possibly have Lyme. Is there documentation somewhere that one could have normal spinal tap and still have Lyme?
Thanks!

Posts: 268 | From Maryland | Registered: Dec 2003 | IP: Logged |

lymesux
LymeNet Contributor
Member # 6248

posted

What kind of information? I had 2 spinals (yuck) and they were 'normal' and i have lyme.

Posts: 799 | From home | Registered: Sep 2004 | IP: Logged |

Hikin Mike
Member
Member # 6508

posted

That is "good" news because my doctor wanted me to get one, but after my knee-tap results came back negative, he wasn't convinced a spinal would be any better and left the decision up to me. I said no way.

------------------
-Mike

Posts: 96 | From Atwater, Ca | Registered: Nov 2004 | IP: Logged |

Paisley
LymeNet Contributor
Member # 6502

posted

Don't know of any documentation, sorry. But i just had a spinal tap in may that didn't show lyme even thought I have it.

Posts: 298 | Registered: Nov 2004 | IP: Logged |

zipzip
LymeNet Contributor
Member # 6226

posted

the yield in csf (spinal fluid) by tap is very low.

a) it is extremely hard to culture csf serum.
b) the spirochetes can be residing in deep tissue, the brain and even bone marrow, but not necessarily in csf.

too elusive....

Posts: 795 | From nyc | Registered: Sep 2004 | IP: Logged |

kam
Honored Contributor (10K+ posts)
Member # 3410

posted

It's out there. I don't recall where. But, I do recall either reading about it or hearing about it right after I had been to Samsun clinic and had a Spinal Tap.

Results were negative. But, results were also negative for MS so it helped to rule MS out.

Even with MS, I have read that it is like fishing in a stream. The odds of catching whatever it is they are trying to catch is pretty slim.

I think I heard the information on Dr. B's audio I purchased from FIAM a year or so ago.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002 | IP: Logged |

troutscout
Frequent Contributor (5K+ posts)
Member # 3121

posted

I can't find the study...but;

Recently one was published showing that out of roughly 60 patients that were CONFIRMED CDC positive Lyme Sufferers...over a course of 18 months 3 Spinals were done on each subject...of which.......drum roll...

7% came up positive.

That's RIGHT!!!! The darn test missed 93% of the control control that was sero-postive through ELISA and Western Blot both.

So...I guess if the Dr wants a negative test result....well....

Trout

PS...on the other hand...this also shows that IF you were tested POSITIVE on a tap...there is NO denying Lyme

Posts: 5262 | From North East Iowa | Registered: Sep 2002 | IP: Logged |

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