LymeNet Flash: Support Patients - Help Pass HR 2526!

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»	LymeNet Flash » Questions and Discussion » General Support » Support Patients - Help Pass HR 2526!

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Topic: Support Patients - Help Pass HR 2526!

LymeCaucus
Junior Member
Member # 7528

posted

Post deleted by user

[This message has been edited by LymeCaucus (edited 27 June 2005).]

Posts: 2 | Registered: Jun 2005 | IP: Logged |

LymeCaucus
Junior Member
Member # 7528

posted

Post deleted by user

[This message has been edited by LymeCaucus (edited 27 June 2005).]

Posts: 2 | Registered: Jun 2005 | IP: Logged |

janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

posted

Another new face urging support of the weaker bill???????

TC warned us before she went off to fight for legislation to beware. TC worked on HR2877.

I'm following the lead of ILADS and they support HR2877.

Janet

Posts: 2001 | From NJ | Registered: Mar 2005 | IP: Logged |

Mo
Frequent Contributor (5K+ posts)
Member # 2863

posted

Hi LymeCaucus..

I've been up on the reading regarding the two bills, and the various posting on concerns about the bills..

and I've seen no 'attacks' on the legislation or it's supporters, just discussion on which is better for Lyme patients...and some concern for the financial supporters of Senator Kelley.
That matters in politics, so is important to consider.

More important is the text of the two bills, though.

The IOM issue has also been raised...and within the text of the Smith Bill, there is a safeguard regarding the advisory panel and the direction of the research.

It also assures broad scientific research and literature (inclusing ILADS Doc's work) be included, which is a strong plus that is not included in the Kelly Bill.

I would be very concerned to know legislation was passing without assurance of LL involvement. That spells trouble.

The Smith Bill also refers to chronic
Lyme several times in the text, whuch will help negate the problems where denial of chronic Lyme's very existance comes into play.

The CALDA website explains things much better than I can.

I also read that Kelly was planning to co-sponsor the Smith Bill..

I hope, if she does, the Lyme community will also pull together to get this much needed legislation passed.

Many lives are depending on it.

[This message has been edited by Mo (edited 28 June 2005).]

Posts: 8337 | From the other shore | Registered: Jul 2002 | IP: Logged |

Ruthanne
Member
Member # 7484

posted

Mo,
I think you made a mistake in what you were trying to say. You said ILADS doctors are not included in the Smith bill. I think you meant to say they are not included in the Kelly bill. The Smith bill is the only one of the bills that mentions and includes ILADS.

Posts: 18 | From Kansas | Registered: Jun 2005 | IP: Logged |

Mo
Frequent Contributor (5K+ posts)
Member # 2863

posted

ooops..

fixed it. TOOOO many bills..

Check em out for yourselves, Lymos..
I'm sure this is some kind of trick
neuro-psych
testing..

Posts: 8337 | From the other shore | Registered: Jul 2002 | IP: Logged |

ellenluba
LymeNet Contributor
Member # 1707

posted

Hi everybody,
Please remember that the Kelly blll does nothing for CHRONIC Lyme.

It only provides for diagnostic test, surveillance and prevention.

The SMITH bill provides for all the above AND gives money for research in the TREATMENT OF CHRONIC Lyme disease.

I don't know about you, but if I am going to work to pass a bill, I would at least like it to be one that benefits me.

Call me selfish.
Ellen

Posts: 819 | From New York, NY | Registered: Oct 2001 | IP: Logged |

GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151

posted

hey? who you guy's talkin' to? ,gary

------------------

Posts: 1108 | From PA. | Registered: Jun 2003 | IP: Logged |

Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020

posted

"Any bill that can get through to support Lyme is positive," Callahan said. He said Kelly is planning to co-sponsor Smith's bill and she hopes Smith will back her proposal.

This is a quote from the article posted recently. This does not mean Kelly is giving up on her bill to support Smith's bill, it means that Representatives often support each other's bills. It sounded like a very nice courtesy to me.

At this point in the scheme of things, it is important to remember that either bill is a very long way from any kind of vote and that many many changes will be made to either one before it reaches voting stage.

Ann - OH

Posts: 5705 | From Ohio | Registered: Jan 2002 | IP: Logged |

ellenluba
LymeNet Contributor
Member # 1707

posted

Although the quote in te news article says that either bill might help Lyme disease in general, the Kelly bill is not going to do anything for those of us who are already ill.

That probably means all of us here.

THe Kelly bill only covers finding a diagnostic test, improving surveillance and prevention.

Kelly has nothing in it on treatment research and nothing on chronic Lyme.

The Smith bill on the other hand is a bill about CHRONIC Lyme disease and funds research for treatment.
Ellen

Posts: 819 | From New York, NY | Registered: Oct 2001 | IP: Logged |

Mo
Frequent Contributor (5K+ posts)
Member # 2863

posted

Huge difference, even for those yet to become ill!

Posts: 8337 | From the other shore | Registered: Jul 2002 | IP: Logged |

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