posted
murph Flash Member Posts: 3 From: Registered: Apr 2005 posted 12 April 2005 16:30 -------------------------------------------------------------------------------- Thanks to Arg82,Treepatrol & Bettyg; Ihave tried the groups that are posted for Fall River & Westport. I don't think they are active anymore. Thanks for the tip on the Warwick one. Anybody from this area go there? I can't drive too far @ night, don't see well. Also see lots of colored blotches & streamers. My Dr. calls it occular migraines.
Actually I am familiar with alot of the inf on this site. I have posted quite along time ago & have been lurking since.
I have late disseminated lyme. Diagnosed about 3 yrs ago, have had for probably @ least 10 yrs. being treated by Dr. S. P. in Connecticut. Both for LD & Babisia. Was seroneg. But have some pos. bands. Just doesn't meet CDC criteria. Have been on oral antibiotics, alone & incombination, IV rocephin, & IM biccilin (?sp). Haven't been on anything since AUg. I'm now relapsing, & will prbably be going back on antibiotics.
Anyway just a short background. I have alot of pain & fatigue and it is hard to keep up. Even with my e-mail and visiting this site.
This site has helped me alot and I use alot of thr artcles and links to educate others. I'm an RN in a doctors office. Hard to believe that some docs still don't want to learn while others at least will read what I give them nad at least try to be lyme literate!
Any way thanks to everyone who contributes here,& Arg82, your web site is beautiful.
posted
Annie and Murph,are there any LL primary docs in our area?
Posts: 308 | From new bedford,Ma. | Registered: Dec 2004
| IP: Logged |
arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
Hi Joe,
I don't know of any really good LL PCPs, but my PCP is okay with Lyme. Basically she knows about it but doesn't want to treat it or take responsibility for any part of the treatment. When I was seeing Dr. L in NY and he wanted me on IVs but needed a local person to take over the actual overseeing of it, she didn't agree to it, but she would have given me shots if I needed it. However, her practice is basically a women's health practice, so I don't know if it would be much help for you. Don't really know of anyone else in the area. Sorry.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic