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» LymeNet Flash » Questions and Discussion » General Support » support groups

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Author Topic: support groups
murph
Junior Member
Member # 7163

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Looking for an active support group in the Fall River, MA., area. Anybody?

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Posts: 8 | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
bg
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Murph, welcome to the board! Using the left hand column support group area, here is what I found and your area in listed!
http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Look for TREEPATROL's newbie links. Print it off, check them as they are read as there are months of good reading there.

Bettyg, Iowa


Posts: 1 | From US | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

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Newbies List

WELCOME To LYMENET


Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in
Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Support Links LLMD's

Lyme State Info Cheryl's
LYME DISEASE TREATMENT & DIAGNOSIS
Cheryl's LDT&D
Lyme Disease Misdiagnosed As ...
Art Doherty Misdiagnosed
Art Doherty Lots a Links


Conflicts in Lyme

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( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test.
- = Not Present
+ = Low
++ = Medium
+++ = High
+/- = Equivocal = Indeterminate its there but not as intense as low) )

See this ( . )thats the size of the larva stage tick...
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A copy of this is stored in computer Help section.

Updated 04/12/2005

[This message has been edited by treepatrol (edited 12 April 2005).]


Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
arg82
Frequent Contributor (1K+ posts)
Member # 161

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Hi Murph,

I'm in your area and unfortunately there aren't any active support groups around here. You can go to Warwick RI if you're able to travel a little way - it meets the second Wednesday of each month from 7 - 9pm at the Warwick Public Library, 600 Sandy Lane, Warwick, RI 02889. You can see the listing of it here.

There used to be a support group in Westport but the leader moved and no one was able to keep it going. I've thought about trying to start one up around here but haven't been well enough to do that yet. If I did start one up, it would probably be closer to me (I'm in Rochester) - Marion or Middleboro are the most likely places because there are buildings I know I could use there.

Sorry I can't be more help. There is going to be a retreat for Lyme disease patients in May in North Oxford, MA (just south of Worcester). It's a long weekend - May 12-15. I'm organizing and running it. It's basically like a long weekend of lots of support and fun activities. You can find out more info at the Lyme Out Website or by e-mailing me at [email protected].

Peace and healing,
Annie

------------------

Lyme Out Retreat Website

Lyme Disease Awareness Products

Click here to join Lyme Pals.

Click here to see my Lyme journal.


Posts: 2184 | From Rochester, MA | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
murph
Junior Member
Member # 7163

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Thanks to Arg82,Treepatrol & Bettyg;

Ihave tried the groups that are posted for Fall River & Westport. I don't think they are active anymore. Thanks for the tip on the Warwick one. Anybody from this area go there?
I can't drive too far @ night, don't see well. Also see lots of colored blotches & streamers. My Dr. calls it occular migraines.

Actually I am familiar with alot of the inf on this site. I have posted quite along time ago & have been lurking since.

I have late disseminated lyme. Diagnosed about 3 yrs ago, have had for probably @ least 10 yrs. being treated by Dr. S. P. in Connecticut. Both for LD & Babisia. Was seroneg. But have some pos. bands. Just doesn't meet CDC criteria. Have been on oral antibiotics, alone & incombination, IV rocephin, & IM biccilin (?sp). Haven't been on anything since AUg. I'm now relapsing, & will prbably be going back on antibiotics.

Anyway just a short background.
I have alot of pain & fatigue and it is hard to keep up. Even with my e-mail and visiting this site.

This site has helped me alot and I use alot of thr artcles and links to educate others. I'm an RN in a doctors office. Hard to believe that some docs still don't want to learn while others at least will read what I give them nad at least try to be lyme literate!

Any way thanks to everyone who contributes here,& Arg82, your web site is beautiful.

------------------


Posts: 8 | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
murph
Junior Member
Member # 7163

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Thanks to Arg82,Treepatrol & Bettyg;

Ihave tried the groups that are posted for Fall River & Westport. I don't think they are active anymore. Thanks for the tip on the Warwick one. Anybody from this area go there?
I can't drive too far @ night, don't see well. Also see lots of colored blotches & streamers. My Dr. calls it occular migraines.

Actually I am familiar with alot of the inf on this site. I have posted quite along time ago & have been lurking since.

I have late disseminated lyme. Diagnosed about 3 yrs ago, have had for probably @ least 10 yrs. being treated by Dr. S. P. in Connecticut. Both for LD & Babisia. Was seroneg. But have some pos. bands. Just doesn't meet CDC criteria. Have been on oral antibiotics, alone & incombination, IV rocephin, & IM biccilin (?sp). Haven't been on anything since AUg. I'm now relapsing, & will prbably be going back on antibiotics.

Anyway just a short background.
I have alot of pain & fatigue and it is hard to keep up. Even with my e-mail and visiting this site.

This site has helped me alot and I use alot of thr artcles and links to educate others. I'm an RN in a doctors office. Hard to believe that some docs still don't want to learn while others at least will read what I give them nad at least try to be lyme literate!

Any way thanks to everyone who contributes here,& Arg82, your web site is beautiful.

------------------


Posts: 8 | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
chainsaw joseph
LymeNet Contributor
Member # 6611

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I wish we had a support group in our area too.I would be a wreck going to it but it would do me and my better half good.Joe
Posts: 308 | From new bedford,Ma. | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
   

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