She is scared of anyone and everyone. I am doing my best to just keep her calm and here at home.

She tends to try to leave and wander--looking to find her home!

I took her to her local doc and they did labs--nothing showed up. I called her lyme doc and he said he wanted to talk to the local doc.

I just saw your previous post.. but unfortunately you did not respond back to let anyone know if she is on meds or answer their questions. This info would help us to help you and her... which we would like to do.

If you are concerned.. always first take her to the LLMD or the ER... or call them again.

Have you read about herxing?

Has she stopped the meds she was on?

I'm sorry.. just need more info before we can put things togehter.

I'll check back tonight to see if you have replied.

Has your dr consulted with the Lyme Pediatrician in New Haven, CT?
He's given permission to give his name & contact info.

Dr Charles Ray Jones
Phone: 203-772-1123
Fax: 1-203-772-0682

For more info about him: www.wildernetwork.org/LDpediatricfund.html

Eventually, the abx will alleviate these symptoms, but in the meantime definitely check with your doc, and keep a very close eye on her. Move your bed into her room if you have to, so she doesn't get up in the middle of the night.

quote:

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Originally posted by Rgarfield:
It has now been 3 1/2 days since my daughter recognized me or even herself. She is in a constant state of confusion.

......
Am I being paranoid or worrying too much? Has anything like this happened to any of you? I need help!!!!!!!

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You are most certainly not being paranoid nor are you worrying "too much". You need to watch your child every second while she is in this state. Try to marshal whatever help you can from friends,family or neighbours, and impress on your LLMD that it is an emergency.

Two eight year old twins with Lyme became confused, along with all their physical disabilities. One had frank hallucinations. Both had periods where they did not know where they were, did not recognise familiar people or objects.

NP40 is absolutely right. You must watch them every second. A child (or adult) in this state can do anything, including hurl themselves out a window.

I don't mean to terrify you by telling you this, but you need to be forewarned, and understand that you are absolutely right to worry, and be on your guard at every moment.

But you should also be comforted by knowing that both adult and paediatric Lyme patients have pulled out of this state.

The two children I described became 80% well of all their symptoms - mental and physical - on high-dose amoxycillin. They relapsed when taken off the abx, but recovered later after being given the anti-helminthic drug mebendazole - purely by chance, as it was given for a different reason. Why they recovered on this drug, I do not know for sure.

I hope you find the strength, practical help and medical assistance you need to see your child through this terrible situation.

Any info from your LLMD?

Are you all o.k?

You both are in our thoughts and prayers.

quote:

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Originally posted by Linda LD:
Rgaefield,

Are you all o.k?

You both are in our thoughts and prayers.

Linda

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