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» LymeNet Flash » Questions and Discussion » General Support » Has anybody just stopped treatment just because?

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Author Topic: Has anybody just stopped treatment just because?
digirl02
LymeNet Contributor
Member # 7177

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Has anybody just stopped. I mean just stopped. Said, I've had enough. I don't want any more medicines, shots, supplements ... nothing notta no more!

I think I'm going to. I mean before I knew I had the 'disease' I was miserable and in pain and my health failing... yet....

Now I know I have the 'disease' and I'm frickn obsessed with it. At what point can I say I'm done.

I don't want a doctor to tell me ok you've been symptom free for 2 months be on your way.... when in real life .... I'll eventually relapse right ??

I don't know I'm rambling again gary, but I really want to stop.

Can anyone REALLY give me one passionate answer that will touch my inner soul and make me go on ??

I really say really alot don't I? And it's not that I'm giving up... it's just not making any more sense to me to continue.


Posts: 121 | From Gaithersburg, MD USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
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Are you symptom free? In my humble opinoin, if I was symptom free I would stop the antibiotics, but maintain some of the supplements and probiotics, and eat a pretty normal diet. If I was not symptom free I would would continue with antibiotics only if I thought they were helping. If they were not helping, I would try herbs or rife.

However, I am not a doctor. I am not symptom free, but gave up the antibiotics to try and get rid of yeast and balance the body. I feel some relief in just not taking the antibiotics.

Try and stay optimistic that Lyme will not control your life!! Blessings. Hiker


Posts: 8890 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
digirl02
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thanks, no i'm far from symptom free, but do feel like i'm at a 'point' where i'm not sure if anything is working
Posts: 121 | From Gaithersburg, MD USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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What kept me going was seeing what happened to my parents who I believe had/have Lyme. My father passed away 7 yrs before I was dxd with Lyme....so we had no clue that his Parkinson's was really Lyme. [or Lyme caused it]

My mother has had one misery after another for the past 46 yrs. She is now 81 and in a nursing home. She's had 4 MAJOR strokes, congestive heart failure and has a pacemaker.

My mom and dad's life turned into a hellish existence when my dad needed full-time care and my mom was basically too ill to handle it.

She had to, and it was rough...very very rough.

When I found out I had Lyme, I KNEW that was what had stricken both my parents. It was too late for both of them, but it's not too late for me.

Is it too late for you, digirl?? Not yet. You've been treated since April '05?? or earlier than that?

Hang in there, girlfriend....You CAN do it. Do you want to live the last years of your life in a nursing home? I don't.

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


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pb
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hey di,
I'm coming from a different angle here. I rec'd treatment - abx - for @ 2 years; and then decided to not .. not continue for many reasons. It's been about 3 years now, and I'm sure most people here will tell me that's a no-no; ... but I chose it. I decided to go a more natural way. A change in diet was my biggest replacement of the abx. -- plus supplements. I studied things until the cows came home and decided my real question was "which came first, the lyme or the "leaky gut". I decided to focus on repairing intestinal problems which I believe has brought about my inability to control lyme bacteria in addition to other virus (CDC) and which has created food allergies. Anyway, I know everybody has to search for their own answers ... but this is what I've chosen to do for myself and my family. I'm not any worse for it so far, ... and some times I believe I'm better. With the abx killing all intestinal flora, it is impossible to get over things. Check out "Death Begins in the Colon" if you don't already know about it. (kick me everyone for saying this) But like I say, everyone much search and choose for themselves.
Best of luck to you, ... and may God bless your decision.
pb

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cootiegirl
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I can't give you an answer to your question for you, but I can share with you my experience and thoughts.

I've been on abx for three years. I've not stopped. For me, to decide whether or not to stop, I would do so for good and valid reasons. Are the abx hurting me in some way - in other words what is the cost/benefit. What are my options? Are there 'natural' alternatives? Will going without meds help me get well?

In my case, the cost has been minimal to me. I have had no herxes or systemic problems from abx. I've been fortunate enough to only have a couple of yeast flareups in three years.....knock on wood.

For me stopping just because I'm sick and tired of popping pills and sick of this disease taking over my life, has not been an option. I want to get well. There are other diseases that require daily medication, some for a lifetime.

Will the abx do it for me? I don't know but I know it takes a long time and am willing to go the distance. I have been treated for two coinfections along the way and had numerous abx changes - more than I can remember. I've not been on IV.

I am finally starting to see improvement and it feels great. I am getting my life back. While it has changed, some of the changes are for the better. I think I still have a ways to go. I've been challenged by some difficult family problems as of late and while these have taxed me emotionally, they have not thrown me into a flare, so I have to think my immune system is getting stronger and these darn cooties are dying off.
cootiegirl


Posts: 1728 | From New York State | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
GEDEN13
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di, these are all good suggestion's here.

talk with cootie and pb.they seem to have something going for them.

lymetoo has has seen the worst that can happen.stow that in the back of your head ,for drive.

please don't give up.just try a differant direction.it has helped other's..

you seem frustrated ,with no result's.i don't blame you. effort you put in,you wanna see result's.would piss me off also.

i have been trying to get back on abx,for the past two and half year's.

the 4 week's i was on abx,there were some improvement's.so i know abx was working.

now,being off abx,i have tumbled into late stage neuro. also the ravage's lyme is doing to the rest of my body.4 surgery's.

all this cdc "proof " i have.all the fighting i have been through.i'm not giving up.tho, there are time's,i just wanna lay down in the road.

go with cootie and the other's.look to see what they have to offer. there experience alone,is a big head start for you......be well , gary

------------------


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digirl02
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thanks everyone. i get like this.. but i know deep down i won't stop. i guess i wanted to hear about it from others. but i do think i'm going to try some 'cleansing'.

i guess my confusion stems from my llmd thinks his 'recipe' is the way to go - and my family doctor who specializes in the natural 'cleansing' of, as pb says, 'leaky gut' wants to do it his way.

why can't the two somehow go hand in hand. i mean yes my llmd has me on some supplements in addition to aggressive antibiotic therapy but the two sides of
the spectrum in my research says it wont' work.

one doctor wants to do it his way and the other doctor wants to do it his way.

i was finally diagnosed in 2003 since my first symptom i can remember was 1994, and i was tested at least 4 times before the positive during that time period 1994-2003

but from 10/2003 to 8/2004 - i went to to many doctors until i found a llmd i started seeing in 9/2004 to present/still going and i admit i am where i am today because of him

but i just want to quit - i don't want this disease and i want to know why i have it. the past six years of my life have sucked and how many more are they gonna stink.

my father passed away...my strength!

i'm a single mom who should be providing financially for my 2 daughters, yet they sometimes take care of me; i am unemployed because of this disease and had to sell our townhome after only 2 years in it;

because i had endured a 3 year custody divorce battle with my ex and i was on top of the world -- financially, as a strong single mother; as a free woman from abusive ex....

i want my life back that's all. sorry for the rambling...i have too many thoughts in my head all the time...

i do appreciate and thank you all for you input.


Posts: 121 | From Gaithersburg, MD USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
   

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