Are you sure your "lymes doctor" is an LLMD?, I am not judging the man-lady but I understand most of the LLMD'S get testing done at the begining of treatment, and even if tests are negative Lyme should be a clinical diagnosis according to the best LLMD'S in the country.
Treatment for Lyme is very loooong and treatment for coinfections is a MUST, regardless of test results.
Can you switch LLMD'S or at least seek a second opinion?
I really undestand how you feel, as Lyme patients we get neglected like if there was no tomorrow, with any other disease at least you get simphaty; with LYME everybody (but another Lyme patients) thinks you are delusional.
Take care, Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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posted
Red Deer, I am concerned that your doc (who I've hear of because you told me in an email) would wait until the 3rd visit to conduct tests.....That was the 3rd thing done at my first 3 hour appt.......complete medical work up followed by a physical exam, some blood drawn there, but most IGenex work to be drawn at my local lab. I then had the results in 4 weeks when I went back and we had a better idea of what we were dealing with....hmmm
Well I still would hang in there and go get the blood work......and then ask later why was it that this wasn't done sooner??
Did you get a scrip for gel??
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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posted
Did I say this before, if so please pardon me.
You need to find a support group locally to get you thru this. We can only do so much for you on-line. If the group is too far away or you can't drive, call someone. They talk to people on the phone all the time. Try to find a buddy in that group who is more experienced and will be more available than the leader, who may be swamped.
Not that we don't want to help here, not at all, but it seems to me that you need a more personal touch. This disease can be overwhelming at first, and the political situation in your state makes docs very nervous and not always as sympathetic as you might want. Look for treatment from the doc, sympathy and understanding from your friends, family, and a support group.
Posts: 8430 | From Not available | Registered: Oct 2000
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I'm sorry this hit you the wrong way and I will not reply to your posts again. Maybe someone else will do better for you.
In fact, maybe it is time to take a vacation from this board. I am sick too and can't really stand many tongue lashings, especially when my intent was to be supportive.
Posts: 8430 | From Not available | Registered: Oct 2000
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lymeloco
Unregistered
posted
Red Deer,
We understand your plight, but lou was only trying to help you. Sometimes we feel at a lost when we're not close enough to help someone.
I know his intent was meant in a positive way. We know how this disease can play with our minds, and tend to read into things the wrong way.
All the times that I've been on here, lou has been more than helpful.
Please don't take it that way. You cannot read the tone or see the body language of a person through writing, and when the disease effects are brains, we tend to see things in a different way. Trust me...I've been there!
lou's right about the support groups, but I never got a reply back from an e-mail or a phone call last year when going through some deep dark depression. Hopefully you will have better success. We are here for you! Hang in there!
A lot of us have a nuturing side to us, and feel helpless when we can't help someone.
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Sorry Red,
I've heard of the LLMD that you are going to. He is definately an LLMD.
My aunt who is from the area says she has two friends that got Lyme. One got better w/ your LLMD on I.V. and the other didn't.
I believe her friend that didn't get better had to find another Doctor.
I know he has probably helped many patients. Maybe he's just not right for you.
I'm so sorry,
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
For what it is worth, I have heard of docs who try the patient on antibiotics to see how they react (usually while waiting for the outcome of a battery of tests, however).
Sounds like your doctor was on the same track, but you got caught in the middle of some other things going on at his office. When he couldn't see you on the second visit, the pa just continued the regimin you were on. When you reacted badly, the doc saw that he needed to rule some other things out.
Some people don't get a herxheimer reaction right away. I am not saying that is what tossing your cookies was. Doxy can be really crummy, I know first hand. The good thing is that something worked on the joint pain.
The whole deal is not good, but maybe things will get sorted out for you. If you have a co-infection, treating that first will make the treatment for Lyme (if that is what you have) work much better.
I am very sorry you have to go through all this when you are so aware of how people should be treated.
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