posted
Great thread! Things I learned or already knew:
Hubby & my close women friends have stood beside me and let me rant/rave by email or in person.
My siblings have NOT been here for me for decades since they think it's all in my head....
I AM IN CONTROL; I take the bull by the horns at every drs. appt. I have my agenda of health issues I want discussed during my time there & make sure I have answers before I leave office.
I was mad at the drs. before for NOT diagnosing me correctly, but when I learned there are over 300 other illnesses MIMICKING LYME; no wonder they didn't test for that. But then they would have sent my blood to the WRONG labs vs. the lyme diagnostic labs we have: Igenex, MD, and Bowen.
I don't make plans for the future; I take it 1 day at a time. I can't travel anyway.
If I don't get anything done today, that's ok. Perhaps I'll have a good tomorrow & will have energy to vacuum or dust after 4-6 months!
I'm thankful for finally being approved for SSDI, social security disability insurance, benefits and medicare to help pay the bills.
I'm thankful for my husband's wonderful state-employee RETIREE health insurance plan with outstanding rx meds limit of $250 out of pocket expenses.
I'm thankful for the LYMENET message board, and all the wonderful friendships I've made! God bless you all, and may we all be allowed to go into remission from our lyme disease.
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Wonderful thread!
1. Realization that I can't take my life for granted. I never know what tomorrow will bring, so live for today.
2. Patience, patience, patience.
3. Yoga
4. Law school. Seriously, I applied to law school when diagnosed with fibromyalgia because I needed to do something to take control of my life. Yeah, I'm weird that way.
5. A mission. When done with school, I will create a movement to empower people with pain and movement disorders to stand up for our rights so we are no longer invisible, no longer fighting for treatment, and no longer defending our doctors.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
wow, Azure, you have a great attitude.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
azure wish et al,
these are truly beautiful and empowering thoughts!!
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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