LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » sucess stories

 - UBBFriend: Email this page to someone!    
Author Topic: sucess stories
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 10 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
hi i went thru some old posts to find some sucess stories... just to reenforce that there is hope.

1. andagail
Greetings All,

I was a part of this group for several years as I fought the battle against Lyme. I've
been gone a few yrs now (love the new format!). I took oral abx for over 4 yrs and
went thru hell. However, my wonderful LLMD told me to hang on and he'd make me better. He did. After 13 yrs of undiagnosed Lyme, a 2nd bite and infection totaling 17 years of Lyme Disease,my life stolen from me, I've now been symptom free for 2 plus years.

I work 60 hrs a week and have (most) of my health back. I was left with a Candida
strain that was/is hard to get rid of despite profalactic(sp?) Diflucan. I can't have
ANY sugars and little carbs or the "yeastie beasties" make a comeback. A very small price to pay to be rid of Lyme.

I'd take all those pounds of abx again if I had to do it over again (4-6 big pills a day,
uck, for 4 yrs straight). I was bedridden for 2 years, had Bells Palsey, partial use of my limbs, partial eyesight at times, headachs, loss of who I was...a nightmare.

I was diagnosed w/ fibro/m years earlier and it took 6 years to get thru college (and I still can't spell ). I had a full diagnosos of 3rd stage Lyme. I'm now left with some crepitis in my right knee and permanent "floaters" where the "vitrius" fluid of
the eyes had permanently gaped. Otherwise I'm better than when I was a kid, am in good shape and...Oh, I do have my Lyme Scar as I call it. A line between my eyes from squinting with pain for all those lonely years.

I now feel wonderful and the best part is getting my mind back and getting rid of some excess emotions.

My humble advice is to stay on your abx, try to love yourself and laugh at "Lyme Brain" as much as you can. Stay away from all sugar if you are on abx and take your vitamins.

This group sustained me when I could only crawl to the desk and barely lift my hands and hold my head up to read a few posts. I've had many a cry on my keyboard with this group. I was usually too ill to say much but when I did I was always met with kindness and support. I will always come back to give hope with my story. You all have so much to look forward to. YOU WILL GET BETTER!
that's the good news...

A warm hug to you all. You all are in my prayers and thoughts.


andigail


2. Roadrunner

I am 100% but it took over one year!! it does happen if you listen to your doc and do what he tells you!!most important thing are no drinking,(beer,wine) resting,taking your meds,eating healthy!!

------------------
"Beep Beep"

3.oreo

It's been a long time since I got on this board and I remember when I was newly
diagnosed how frightened I was of the future, partly based on the horror stories I
read here. So I feel it is my duty ( and pleasure) to reassure all the newbies out
there that there can be a happy ending to Lyme. After two rocephin sessions ( 3
months , then 6 months) I am now symptom free since last May. I am going to
consider myself cured and hopefully it will stick ! Yes, it was a long road ( 2 years,
and I was treated almost immed. ! ) but sometimes you get lucky and I have faith
that many others will be as blessed as I have been ! Keep the faith ! Oreo

4. GiGi posted on jan 2001

After gotten bit in 1996, I have gone through a great variety of treatments and therapies, all of which together gave me my life back, but not 100%. I kept searching for a solution, being told by my doctor that he suspects a viral omponent to go with Lyme or to play a role in Lyme. Stac's had felt the same way and having come back pain-free from "doctorofhope.com", I explored it further
also, checking with other patients that had been treated there. My own doctor
encouraged me to go. My husband, who had recently been diagnosed with Parkinsons Symptoms/Lyme Disease, and I went to Mexico for four weeks to be treated.

We are both very encouraged by our noticeable improvement. I have not felt as good in many years; my husband started to improve right away while still at the clinic, yet has a bit to go with healing of the damaged nerves. As for me, I am absolutely pain-free, my racing pulse and heart palpitations are gone for the first time in years and I can sleep soundly for many hours.

Explore the above website.
You can also call 1-800-770-6772 for further info. Please note, the phone number
on the website is not correct and will be updated in a couple of days. So dial the
800 number. You are welcome to e-mail us or call. [email protected]; Phone
(206-232-7603).


5. lymerx

ceftin and doxy together in big doses.

then suprax and tinidazole together big.

then suprax, tini, and zythromax more moderately.

All these taken over 17 months. No symptoms now. I was lucky to have no babesia. I take B Complex 100 for nerves and Milk Thistle
for liver. Also acidophilous to restore beneficial bacteria. I found the natural
rememdies (grapeseed extract and olive leaf) just too toxic and not nearly as
effective as good old anbx.


---------------------------------------
im sure there are many more . i'll try to look lateer... i had this idea about a month ago and its taken me this long to get the energy to do .it .well imvery tired and fingers hurt.
best wishes :P

[This message has been edited by AZURE WISH (edited 18 May 2003).]


Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Tunes
LymeNet Contributor
Member # 2946

Icon 6 posted      Profile for Tunes     Send New Private Message       Edit/Delete Post   Reply With Quote 
What a great idea! I cannot think of a

better way to start my day then to read about

Lyme success stories. Thanks for the time

and effort it took to post this. Hope you

are feeling good!


Posts: 183 | From wheaton, il | Registered: Aug 2002  |  IP: Logged | Report this post to a Moderator
GailAnne
Member
Member # 3946

Icon 1 posted      Profile for GailAnne     Send New Private Message       Edit/Delete Post   Reply With Quote 
Good for you! Patients need to know that there ARE success stories out there. When we get better, we tend to close the book on LD and get back to living again, so many of us leave this cite (I did) and forget how important it is to share our successes!
Posts: 17 | From Holland MI USA | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Beverly
Frequent Contributor (5K+ posts)
Member # 1271

Icon 10 posted      Profile for Beverly     Send New Private Message       Edit/Delete Post   Reply With Quote 
What a great idea, thanks for posting this!!!
Posts: 6639 | From Michigan | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
a2s3p4
Member
Member # 157

Icon 1 posted      Profile for a2s3p4     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks for the great stories all. I think this is a great idea to share success stories. because of the great llmd, these are becoming more the norm. I continue my fight, but i have a great llmd now and it will be a matter of time before im well. This little set back im experiencing now is just another bump on a trail i have endured for the past decade. God bless all of us. N
Posts: 51 | From Minneapolis Minnesota US | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Nancy-OH
LymeNet Contributor
Member # 3567

Icon 1 posted      Profile for Nancy-OH     Send New Private Message       Edit/Delete Post   Reply With Quote 
I always appreciate hearing 'good health' stories!

They give us all hope.


Posts: 963 | From N. Olmsted, OH USA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
lifeline
LymeNet Contributor
Member # 3445

Icon 1 posted      Profile for lifeline     Send New Private Message       Edit/Delete Post   Reply With Quote 
I can't wait to be a "success story" someday!

Thanks for printing them. I'm saving these posts to reread...great job!

lifeline


Posts: 983 | From FL | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
Stella
LymeNet Contributor
Member # 3119

Icon 1 posted      Profile for Stella   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
My story is one of sucess too....

Don't ever give up, it is well worth the fight!!!!

XOXO!


Posts: 712 | From Ottawa, ON, Canada | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
to the top for heartsickmommy

keep in mind these are just a few of the success stories ... Ive seen many names come and go on this board.


Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
heartsickmommy
LymeNet Contributor
Member # 6417

Icon 1 posted      Profile for heartsickmommy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you so much for bumping this up for me. That was really very kind of you. I hope that someday I'll be able to post my daughter's success story on this thread!
Posts: 134 | From calif. | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019

Icon 1 posted      Profile for TheCrimeOfLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ifyou do a search under the user name "MelanieReber" she has a very long post titled success stories. Hers and this needs to be bumped so people can add their stories.


Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

Icon 10 posted      Profile for Melanie Reber   Author's Homepage         Edit/Delete Post   Reply With Quote 
Heartsick,

There ARE many stories of successful treatment!

Here is the link to make it easier for you, and I will also bring it back up in Medical.

(hey Jodie love )

My best to you,
Melanie

Success Stories: http://flash.lymenet.org/ubb/Forum1/HTML/022173.html

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]


Posts: 7052 | From Colorado | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
I found this old link .....

thought people might be interested....

Over the years I have been frequenting this board i have seen ALOT more get well....

Everytime I disappear from the board for awhile ...

I come back and almost all new names....

Even though I always miss the old people

it makes me smile thinking of them resuming their lives when I know how much they endured.

You and I will all get there too...

Best Wishes [Smile]

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
trails
Frequent Contributor (1K+ posts)
Member # 1620

Icon 1 posted      Profile for trails     Send New Private Message       Edit/Delete Post   Reply With Quote 
Same experience as you Azure wish! I left once for 3 years straight--never even thought about the board...and when I returned...allllll new names.

Except I recalled Tincup, but then there was a lot of troll action here and I think she left.

TOO BAD!

Anyhow---I got better for 3 years, almost 4! But I relapsed. I didnt treat babs, bart or Erlch, so that is one reason and I got a steroid shot, that is reason 2.

I cling to the success stories uncontrollably. It might be my latest new symptom:
uncontrollable clingyness to lyme success stories [Big Grin]

Posts: 1950 | From New Mexico | Registered: Sep 2001  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

Icon 1 posted      Profile for AZURE WISH     Send New Private Message       Edit/Delete Post   Reply With Quote 
up for morningsonshine [Smile]

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
morningsonshine
Member
Member # 8529

Icon 1 posted      Profile for morningsonshine     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you soo much, can't tell you what this means to me!
I'm strugggle with taking my ceftin 2000mg a day.
In two days i've only gotten 1000mg down. This will help me be a good girl.

Posts: 25 | From Northome, MN | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.