posted
I'm sorry about my post being all in capital letters. To be honest with you i didn't even remember joining lymenet last night until i checked my email tonight, I'm having a really tough time remembering anything these days. Here is my revised post.
About 2 months ago, I started feeling sluggish and more fatigued every day. I'm only 33. I then started having an unusual fever off and on, night sweats, heart palpitations, stomach problems (I lost 50 pounds in 2 months, I'm down to 82 pounds). One day out of nowhere I woke up with numb, swollen, aching extremeties, especially in my wrist, hands, and fingers. Every day since then my condition has worsened to the point I can hardly get out of bed.
The doctors have me on Doxycycline for the lymes, but I continue to worsen and the pain is so unbearable at times that they've had to put me on Effexor for depression, and Serouquel for the suicidal thoughts, because I just really feel like I'd rather die than live like this. They've put me on Methadone for pain, which I'm told is one of the strongest pain killers on the market, and I still have no relief. I feel like a hypocondriac, every day it seems like I have a new disorder or ailment. I also feel as though the Doctor is treating me as a hypocondriac. In the past couple months I've been consumed by doctor appointments and tests almost everyday. They all missed the lymes disease, but managed to diagnose me with bipolar 1 disorder, depression, post traumatic stress, attention deficeit disorder, mitral valve prolapse, heart murmur, syncope, supra ventricular tachycardia, SA node dysfunction, hypotension, acid reflux, chronic irritable bowel syndrome, migraine headaches, cervical cancer with no human papiloma virus, Addison's disease, allergies, arthritis, degenerative disc disease, I'm probably forgetting a few but these days I just can't think straight. (All this in a couple of months, and everyone in my life wonders why I'm losing my mind!!!!!!) I recently had to be hospitalized because I went all the way down to 75 pounds. I went through 13 bags of IV fluids in 3 days. The hospital ran what I thought was every test known to mankind, but they NEVER tested me for lymes. They kicked me out, with no excuse as to why I was so sick. I believe it's because I have terrible health insurance, but I'm furious now looking back that they never checked for lymes. I'm a single mother, I get NO help at all financially or otherwise from my son's father. I need to get myself together but this Lymes Disease is really kicking my *ss. I sleep about 20 hours a day and still wake up exhausted. It takes all I have to even get up because the pain is horrible. I seem to spend the brief time I'm awake either crying or on a rampage because I'm so easily irritated. I'm not the person I was before lymes. Has anyone else out there gone through this? Tonight I took my medicine, ate dinner, then 5 minutes later vomited, is this normal, because I don't even know what normal is anymore? I don't know what to do, I can't even go to work anymore, the lymes is destroying my life. I've considered suicide countless times recently, because I've had persistant pain and fautigue for what seems like an eternity now. My fingers/ feet/ wrists/ and fingers are constantly swollen and aching to the point I can't hardly use them. My back constantly aches, my son tried to give me a hug today and I actually screamed out in pain when he touched my back. I continue to keep non-stop low grade fever. Lymes has attacked all my pre-existing medical disorders and made them ten times worse than they ever were. I actually feel like I'm dying. I've even become forgetful, dizzy, and disoriented at times, to the point I really believe I'm losing my mind. The doctors are now telling me they think I've had lymes possibly for a lot longer than they thought, because the symptoms are so severe. Any advice? I've never felt so alone in my life. My family and friends don't understand, they think I'm going crazy, and at this point in time, I'm starting to agree with them.
-------------------- kris Posts: 3 | From delaware | Registered: Jun 2006
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I am splitting up your post for those of us who have trouble reading solid blocks of print. My comments are at the end.
[quote] I'm sorry about my post being all in capital letters. To be honest with you i didn't even remember joining lymenet last night until i checked my email tonight, I'm having a really tough time remembering anything these days. Here is my revised post.
About 2 months ago, I started feeling sluggish and more fatigued every day. I'm only 33. I then started having an unusual fever off and on, night sweats, heart palpitations, stomach problems (I lost 50 pounds in 2 months, I'm down to 82 pounds).
One day out of nowhere I woke up with numb, swollen, aching extremeties, especially in my wrist, hands, and fingers. Every day since then my condition has worsened to the point I can hardly get out of bed.
The doctors have me on Doxycycline for the lymes, but I continue to worsen and the pain is so unbearable at times that they've had to put me on Effexor for depression, and Serouquel for the suicidal thoughts, because I just really feel like I'd rather die than live like this.
They've put me on Methadone for pain, which I'm told is one of the strongest pain killers on the market, and I still have no relief.
I feel like a hypocondriac, every day it seems like I have a new disorder or ailment.I also feel as though the Doctor is treating me as a hypocondriac.
In the past couple months I've been consumed by doctor appointments and tests almost everyday.
They all missed the lymes disease, but managed to diagnose me with bipolar 1 disorder, depression, post traumatic stress, attention deficeit disorder, mitral valve prolapse,
heart murmur, syncope, supra ventricular tachycardia, SA node dysfunction, hypotension, acid reflux, chronic irritable bowel syndrome, migraine headaches, cervical cancer with no human papiloma virus,
I'm probably forgetting a few but these days I just can't think straight. (All this in a couple of months, and everyone in my life wonders why I'm losing my mind!!!!!!)
I recently had to be hospitalized because I went all the way down to 75 pounds. I went through 13 bags of IV fluids in 3 days.
The hospital ran what I thought was every test known to mankind, but they NEVER tested me for lymes. They kicked me out, with no excuse as to why I was so sick.
I believe it's because I have terrible health insurance, but I'm furious now looking back that they never checked for lymes.
I'm a single mother, I get NO help at all financially or otherwise from my son's father.
I need to get myself together but this Lymes Disease is really kicking my *ss. I sleep about 20 hours a day and still wake up exhausted. It takes all I have to even get up because the pain is horrible.
I seem to spend the brief time I'm awake either crying or on a rampage because I'm so easily irritated.
I'm not the person I was before lymes. Has anyone else out there gone through this? Tonight I took my medicine, ate dinner, then 5 minutes later vomited, is this normal, because I don't even know what normal is anymore?
I don't know what to do, I can't even go to work anymore, the lymes is destroying my life. I've considered suicide countless times recently, because I've had persistant pain and fautigue for what seems like an eternity now.
My fingers/ feet/ wrists/ and fingers are constantly swollen and aching to the point I can't hardly use them.
My back constantly aches, my son tried to give me a hug today and I actually screamed out in pain when he touched my back.
I continue to keep non-stop low grade fever. Lymes has attacked all my pre-existing medical disorders and made them ten times worse than they ever were. I actually feel like I'm dying.
I've even become forgetful, dizzy, and disoriented at times, to the point I really believe I'm losing my mind.
The doctors are now telling me they think I've had lymes possibly for a lot longer than they thought, because the symptoms are so severe. Any advice?
I've never felt so alone in my life. My family and friends don't understand, they think I'm going crazy, and at this point in time, I'm starting to agree with them.
-------------------- kris [end quote]
I am so sorry you are going through all this. I hope people will respond here with good answers. Lyme disease can produce all the symptoms you mentioned.
You need to have one experienced doctor who has treated Lyme disease.
If you go to "seeking a doctor" on this site, you will learn of the best in your area.
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