posted
Hello, I am new here. I have Morgellons disease and I was told to get tested for LYme disease. I did but I went to a doctor who did not use a lab that I keep hearing is the best Ignex. It was the Quest lab. Anyway I have a copy of the results and I don't really get it. He basically said he doubted I had Lyme disease from what he saw on the tests but I figured I wold ask someone here anyway. I had the elisa test and the western blot. The western blot came back negative then it said IgG indeterminate A . I don't know if tht means much but I'm posting it just in case. Then it says" CDC kDa band;IgM reacitivity noot significantly different from negative control IgG 41. While there is some IgG badn reactivity the results do not meet the CDC criteria for a western blot"Then it says " rheumatoid factor is 7 and lyme result is borderline A nonreactive" WHEW! sorry this is so long... Does ANYONE know what this means. Please don;t tell me to call the doctor who did the test. He was just awful and I made the huge mistake of mentioning Morgellons to him so he thinks Im nuts.. Any info would be appreciated.. Thanks so much Hilary
Posts: 2 | From NY | Registered: Aug 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Post on "seeking a doctor" section for a llmd dr. in your area. Just from the tests mentioned, my guess is he is not well versed in the intricacies of lyme. You will need a lyme literate doctor.
Probably better say if you are east, west, central NY state, but be prepared to travel.
He gave you an ELISA, which is a tad better than flipping a coin. You need Igenix Western Blot. Quest can sometimes pick up, but not always. CDC requirements have nothing to do with a lyme diagnoses for treatment.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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bettyg
Unregistered
posted
quote:Originally posted by sophie123: Hello, I am new here. I have Morgellons disease and I was told to get tested for LYme disease . I did but I went to a doctor who did not use a lab that I keep hearing is the best Ignex. It was the Quest lab.
Anyway I have a copy of the results and I don't really get it.
He basically said he doubted I had Lyme disease from what he saw on the tests but I figured I wold ask someone here anyway.
I had the elisa test and the western blot. The western blot came back negative then it said IgG indeterminate A . I don't know if tht means much but I'm posting it just in case.
Then it says "CDC kDa band; IgM reacitivity noot significantly different from negative control IgG 41. While there is some IgG band reactivity the results, do not meet the CDC criteria for a western blot"
Then it says " rheumatoid factor is 7 and lyme result is borderline A nonreactive "
WHEW! sorry this is so long... Does ANYONE know what this means.
Please don;t tell me to call the doctor who did the test. He was just awful and I made the huge mistake of mentioning Morgellons to him so he thinks Im nuts .. Any info would be appreciated..
Thanks so much Hilary
Welcome Hilary to the board. I just sent you a PM, private message with my newbie links/advise.
Yes, post in seeking drs. section for the state you are interested in going to in subject line.
In text, please be sure to show you're looking for a LLMd, LYME LITERATE MD, who also treats Morgallons ok.
YOU'VE come to the right place for education/support as you go thru this journey with us all.
Also, if you do a SEARCH, found at the top under NEW POST,
type in Morgallons subject line ANY DATE...be sure to change MY PROFILE TO ANY DATE vs the 30-60 days as the default
leave membership blank and you should come up with MAHY past posts on this subject ok. Good luck. Bettyg
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