posted
I spoke with Tincup on the phone about a month ago. She recommended that I try out the discussion on Lymenet.org. I have found that knowledge on Lyme Disease is scarce in Texas. I finally got my computer set up and on the internet after living in my new house for a year. You could call that slow unpacking. Unpack and rearrange one day, then lay in bed and pay for it for the next 5 days. I guess I am just in need of some conversation with someone that can understand what I am going through. I have pretty much ailenated myself from all of my family and most of my friends over the past two years.
-------------------- melissa Posts: 24 | From crosby, tx | Registered: Jan 2007
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You will find alot of information and support here. Make sure you read newbie help links, and ask anything you want. But if you talked to Tincup, you probably got alot of info allready...
posted
Yeah, as odd as it might sound, it was quite refreshing talking to Tincup and having some kind of response to my numerous list of symptoms other than the blank face that I have rec'd from doctor after doctor. Over the last 10 years I have had to educate myself on Lyme disease. It's just a pity I could'nt diagnosis and medicate myself as well and maybe I would'nt be where I am right now.
-------------------- melissa Posts: 24 | From crosby, tx | Registered: Jan 2007
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We've all been the blank face route....I actually prefer the blank face to some of the things they can say!!
Do you have a Lyme literate Medical Doctor? We call them LLMD over here.....if you don't, there is a section where you can post for help in finding one.
We have lots of nice people from Texas here, and some that are rather questionable.....(they all know who they are )
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Well hey there! Welcome to LymeNet!!!
You made it!!! Good for you! Good also to know that after a year you've finally got your computer set up! Your moving at "Lyme speed", I see! Well join the club!
The folks here are quite wonderful and will be happy to help you. I would be careful around one of the members though. Her name is Lymetoo, but we call her tutu.
A bit weird.. but if you smile and act nice.. she won't bite. She does have an annoying habit of dropping her drawers though... all the time.. all the darn time!!! And she doesn't seem to care who is watching. (By the way.... don't tell her I told you she is weird.. she can get a bit cranky about that sort of thing.. ok?)
Obviously my dear.. I am exhausted and my brain is totally fried.. but I was just closing down for the night and saw your post... and decided to jump in with a big Texas howdy do! If I had ONE ounce of think left in my brain.. I would tell you some really neat Lyme stuff.
But the brain is a marshmallow right now.. I hope you'll understand and forgive me.
TOMORROW is the day I am smart. Catch me then.. ok?
In the meantime.. let us know how we can help.
And do you remember what I told you when we spoke? Ok.. me neither.. but I THINK I said...
You aren't alone anymore!
Glad you found us... we can chat later... unless, of course, you are under my bed when I go upstairs.
posted
Well I'm glad you found TC and lymenet and you get on the road of healing.
There are so many people in your situation. They don't know whats wrong with them doctors have told they have numerous other illnesses, and they get worse.
I just talked to someone today that is going through just that. I gave her a doctors name and told her to get tested. "They" are saying she either has Lupus, Crohns, IBS, MS or something else. (She has all of the lyme symptoms) But no one has even suggested lyme to her... because of course we don't have lyme in Michigan.... ya right
I think that it is very important tat we spread the word about lyme and not let these ignorant doctors get away with just shoving pills at us anymore.
Are you on abx yet? How is it going? The first few months can be the toughest.
posted
Actually, I have found a doctor that I want to go to. However, since I lost my job in August for being absent too often, I lost my health insurance along with it. Right now my GP is just giving me meds to help with the symptoms until I can find a way to get to a LLMD. I just recently applied for disablity. A really depressing thing to do at 30, but I am about at my ropes end.
-------------------- melissa Posts: 24 | From crosby, tx | Registered: Jan 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Well Lisi is so sweet. I think you will be in good hands with her, Tex. Thanks Lisi.. I just can't seem to think tonight.. my brain is running on empty... so I appreciate someone filling in for the blanks in my mind. You're so kind!!!
And...
Talk about NUTS!
I just HAD to see my little buddy tonight. I LAUGH!!!
posted
I had a 'classic bulls-eye bite' 10 years ago. My doctors office didn't know what it was and said to keep an eye on it and come back if it got worse. A year later when the arthritis symptoms got really bad I went to another doctor who said that if it had been Lyme, that it would have been killed over the last year if I had taken antibiotics for any purpose during that year. Just recently, I went to a rhematologist that told me that he wouldn't treat me for an infection that occured 10 years ago and then he preceeded in writing out prescriptions for 5 different medicines. I just want to scream.
-------------------- melissa Posts: 24 | From crosby, tx | Registered: Jan 2007
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bettyg
Unregistered
posted
HOWDY TEX!
i'll send you a pm, private message, with my 30+ pages newbie links/advise
Maybe around last 15 pages deal with SSDI, social security disability insurance app/good info to get you approved 1st tme/ 1st step !!!
since you have NO insurance, look in the beginning pages for NEEDY MEDS, etc...like 3-6 links there to help folks down on their luck ok!
also to help us neuro lymies who can't solid blocks of text, please break up your posts into short paragraphs of 3-4 senences max until you're a wordy person.
hit the enter key twie after EACH paragraph until you are done with your pos.
posted
This discussion board thing is all new to me, so I hope I haven't broken any codes of ethics. HA HA! Thanks everyone for listening to me moan and groan I will talk at ya'll again later but it's time for me to go to bed. I'm about to fall over. Nice meeting all ya'll.
-------------------- melissa Posts: 24 | From crosby, tx | Registered: Jan 2007
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It's midnight here and I'm ready to hit the hay also...but I don't want to miss the opportunity to say that there are many here from Texas who can point you in the correct direction for an excellent doctor.
The bullseye rash is indicative of lyme disease and I'm sorry to say that many doctors are ignorant on how to treat this disease. You need an LLMD ASAP.
I'm sure you'll find so many more replies tomorrow when we're all clear headed and awake! See you then
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Welcome to you texangirl from tree sorry you need to be here lyme is NO fun Your in good hands with tincup.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E ! ! !*)!*)!!!!!!!!
Lyme is no fun, but LymeNet is*)! Hope you find a good LLMD- that is half the path to wellness!!!!!!!!!!!!!!!!!!! Best wishes, Sarah in CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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I had to reply when I saw your title. Now there is one more of us texan gals on the board.
I can relate to many of the things you mentioned, the blank faces, the difficulty finding doctors and care in Texas, and having to leaving to leave work and start disability at 32.
Many here can (well not the Texas part) relate. So glad you found us.
You can send me a private message if you'd like to chat more.
Posts: 628 | From the south | Registered: Dec 2005
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Hi Texangirl!
I have only been in treatment for two months, so I'm just starting out, but I can say that this board was the best place I found for support and education for lyme.
As far as the blank stares from doctors, it happens even up in the northeast, where we KNOW we have lyme and yet the doctors still don't take it seriously. So I can only imagine how horrid it is in other parts of the country when we can't even get an accurate diagnosis here.
I'm glad TC pointed you here and I hope you stick around. Please keep us posted on how you are doing and again....WELCOME to Lymenet.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Sorry you need to be here texangirl, but you're in good hands
Miss Tin.....Even though I'm nutty nuts, I do know there are others FAR nuttier. So I wear it proudly!-(cause it could be worse)-again, not mentioning NAMES!! lol
quote:Originally posted by Tincup: I would be careful around one of the members though. Her name is Lymetoo, but we call her tutu.
A bit weird.. but if you smile and act nice.. she won't bite. She does have an annoying habit of dropping her drawers though... all the time.. all the darn time!!!
You thought I wouldn't see this, huh!!!? Well, think again!!!
I can't help it if my drawers keep falling down. Dan designed them that way, and you know how men are!!
WEll, hey! TexanGirl! What are all of you Texans doing down there? We have quite a few new Texans on the board. Has this been an exceptional year for ticks??
I'm from Houston, BTW, so I know where Crosby is...how about THAT!?
Are you a member of the Houston area support group?? Have you been to see the dr in Lufkin?? Do you need more names of LLMD's??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 95663 | From Texas | Registered: Feb 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
welcome Texangirl
Glad to meet ya. This is a great place to come because people here are so kind, patient and are living threw the same things as lyme can bring. So much understanding.
Saved my life a few times emotionally & physically too.
and if you have any medical questions you can pop a question over in medical and people are more than willing to share their experiences.
Take care & hope you can find some treatments that help you on your road to wellness.
Blessings Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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