posted
Digestives issues due to LYME????? Dad has had Lyme for 4 years. Lately: He lost 25 pounds in two months Huge anxiety issues 3 MRIs can't locate pain in abdoman PET Scan results tomorrow Possible mass on pancreas Sleep problems Full of despair please respond if there are others with experience with similar problems!
Posts: 1 | From New Jersey | Registered: Feb 2007
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posted
I lost 15 pounds in fewer than 4 months. I also had lots of GI issues and ate double or triple what my husband, who is 6'2" ate! I am 5'8" and got down to 121 pounds and looked gaunt. I ate so much to maintain 121 pounds and not lose more that waitresses would even comment on it ... especially when I'd order two full meals!
I started eating gluten-free (no wheat, barley, rye, and oats) and gained 10 pounds back. The digestive issues went away, too.
This all happened before I knew I had Lyme. They originally thought I had celiac because the symptoms can be so similar ... I don't, but gluten does make me sick.
I don't know if it will work for your dad, but it sure worked for me.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Big yes on digestive issues.
Big yes in that I have lost weight & can't seem to put it back on.
Yes. On anxiety issues. My frustration limit is also very short. Also being chronically sick & having so much loss it tends to make the anxiety worse. Big time worse when I am herxing.
Big yes on sleep problems. It takes an elephant dart to get to sleep since lyme struck.
Yes. Do battle with dispar on a regular basis. I have to be careful. And try harder to look at the postives...some days are easier than others.
Treatment has helped on most levels. I hope your dad can find a way to feel better soon
Blessings Dana
ps if you post this in the medical section you will probably get alot more responces. Not as many people make it over to general support
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Is he still on abx?? Has he been treated for babesia? Babesia can cause anorexia.
Ditto on the gluten. I can't tolerate it either.
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue* Arthralgias* Myalgia* Drenching sweats* Headaches* Emotional lability* Depression* Dark urine* Splenomegaly* Dizziness* Nausea and vomiting* Cough* Dyspnea* Fever* Chills* Hepatosplenomegaly* Jaundice* Malaise* Shortness of breath* Bleeding tendencies, bruising* Thrombocytopenia* Hemoglobinuria* Hyperesthesia* Pulmonary edema* Encephalopathy* Low to normal range leukocyte counts* Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia* Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
welcome coe to the board on behalf of your dear dad!
i'm sending you a private message, PM, with 45 pages of newbie links, advise, longer symptom list, ss disability insurance info, GLUTEN INFO/LINKS, etc.
please sign the 2 lyme petitions and also add FAMILY MEMBERS. forward them to family, friends, co-workers, etc.
has dad ever had a SLEEP STUDY to see if he has APNEA? i learned in mine; i do have apnea....stopping breathing. but most importantly, the 2 nightly tests showed i get NO DELTA 4 SLEEP where my body can rejuvenate healing injuries and feeling refreshed waking up.
i'll send the links now to you. you can view it in MY PROFILE or in your home inmail box.
i'd suggest keeping this info in HOME FILE FOLDER to refer back to and print off as well. so you can read in the waiting rooms, etc.
good luck to your dad on results! come back again and post what results were, etc.
if it's medical questions, post there.
if you/dad need SUPPORT; post here.
if you need a lyme literate dr., post in seeking drs. area ok! we need 50,000 on one by Lyme Disease Assn, LDA, which is going to CDC and congress! we thank you.
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posted
Lyme disease and coinfections all can cause G.I. problems. Hubby's primary symptoms are nausea/vomiting/dry heaves and tremors/myoclonus/seizure-like episodes. These symptoms have been present for the entire 6 years of his illness and fluctuate in severity.
Hubby recently had a paralytic ileus and is now on nausea meds every 6 hours. His pancreatic enzymes were elevated during his hospitalization but have normalized over the last month.
Hubby had 5 abdominal xrays and 2 abdominal CT scans in the last 2 months. Tests sure leave a lot to be desired.
G.I. problems could be due to Lyme, babesia, bartonella or even ehrlichia. Other possibilities include parasites, candida and gluten intolerance or casein (a milk protein) intolerance.
Very difficult to diagnose and treat G.I. symptoms. CDSA (comprehensive digestive stool analysis) from Great Smokies lab (now called Genova lab) would be a good place to start.
You really should read the article "Bell's Palsy of the Gut". Can be found at this website.
posted
I have read medicle journal articles were lyme patients lost many pounds due to the bowls,spasming in overdrive,makeiong the food go right through you.Also there has been articles of bowel paralelisis.All due to nerves out of control from the lyme infection.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
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posted
Yeah, me too. I have lost 40 lbs since this started. Gluten and casein free diet has helped. Threelac seems to help with the gut issues and I never forget my digestive enzymes.
I use coconut oil in everything - tablespoons full. I also eat almond flour muffins as much as I want - it helps to put on some weight, without the wheat issue. I also feel a lot better since I started taking electrolyte formula.
Take care
Posts: 104 | From connecticut | Registered: Jan 2007
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Digestives issues due to LYME?????
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