posted
Hi, I just wanted to say I've been lurking for a couple of weeks and have finally decided to join.
I guess I should tell a little about my story. I am a SAHM with 3 kids, and am 38 yo. I started having weird health problems a couple years ago. In 2006 they got worse dizzy spells, neck spasms, leg pain, all sorts of stuff attributed to different things. In Oct. I almost passed out in a parking lot and ended up in the ER - they said I was dehydrated and must have had a virus. My regular doc tested me for everything (including lyme) but when I didn't get better he treated me for lyme anyway with doxycycline for a month. In the meantime I had made an appt with a Lyme doctor by the time I went to see him I was very sick again. He tested me and I was positive (with Igenex) and was positive for babesia. I did a month of tetracycline (herxed unbelievably) took a week off and am just finishing up with Mepron/zithromax (6 weeks). I feel like the Lyme is creeping back in though. I will be starting a round of Tetra with diflucan in another week.
I am struggling with my moods and what feels like the total loss of my life. Friends don't understand and my DH is starting to lose his patience and I don't blame him - he gets the brunt of my frustration and anger. I was just about to start studying to be a fitness instructor and personal trainer and now I can barely do laundry. I am trying to have patience and hope but some days it is so hard. Today is one of the days I just want to give up. After reading some peoples' stories I know I have not had it nearly as hard as some but I am still completely overwhelmed that this is now my life.
Thank you for reading and listening - I feel a little better saying this to people who can understand.
Posts: 3 | From CT | Registered: Apr 2007
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome to LymeNet!
Good to meet you. Your story sounds very familiar, unfortunately. I am sorry you are having to deal with this rotten situation... and that hubby is having to take the brunt of the anger about it. But that too is normal, unfortunately.
I don't recall ever seeing anyone here say they have kept all their friends once becoming this sick.. so don't feel like you are the only one this has happened to... please.
We have made new friends.. many of them right here.. and they are GOOD friends. We all come from different backgrounds and different parts of the country.. but we do have one thing in common.
The desire to get better.
So take your shoes off and set a spell.. unless of course you are north of the Mason Dixon line... then you might just wanna hold that thought for another month or so till the weather is SERIOUS about warming up.
If you need anything.. we are here for you.
Never forget that... ok?
PS Don't believe anything Lyme tutu says about me. She is the one with the droopy drawers.
In any case , you've done yourself a great deal of good by going to an LLMD.But I can't imagine having Lyme and young children ,too.
My 16 year old daughter was diagnosed with Lyme. When she's non compliant I flash my IV line at her and point out "This is your future." It just seems to inspire more attitude though.
Yes, it does feel as though Lyme has taken over-for the time being. It seems to put us in a world apart, like most chronic illnesses. Sometimes I feel like I'm making progress, other times I just don't know. But I keep trying to follow doctor's orders.
I have friends who don't "get it", but lymenetters do-so now I hang out here a lot.
Take Care, Carol
TC said don't believe anything LymeTuTu says about her-but I gotta tell you-Tincup likes to wear ducks on her head-and that's the truth.
IP: Logged |
Vanilla
Unregistered
posted
Sorry to hear about your health and I hope it improves. I lost many friends since getting diagnosed too but I have kept the real ones.
IP: Logged |
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Welcome aboard.
Just wanted to say what a beautiful NAME you have!!!
Keep getting good long tern treatment and get your life back!!!
Welcome,,,stick around and chat a bit!!being --just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
| IP: Logged |
posted
LynnAnne - Welcome and Best wishes for a speedy recovery!
Try to learn as much as you can about this disease. Knowledge is Power. The newbie links near the top of the Medical Questions thread is a good place to start. I don't think my husband understood what was going on with our daughter until he started reading too.
Y'all: SAHM means Stay At Home Mom.
Posts: 115 | From USA | Registered: May 2006
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Just wanted to say welcome
Hang in there things will get better with treatment.
posted
Thank you all for your nice welcomes. I will definitely read the newbie threads. It is tough with the kids but my parents are retired and have been helping out when things get real bad. I am definitely having a better day today though. I will definitely be checking in and chatting so you will be hearing from me again. Thanks again!
Posts: 3 | From CT | Registered: Apr 2007
| IP: Logged |
posted
Hi , I am new here too, but I am not new to Lyme disease. Like you , I have hung around this site for a while and the help and support is what I need from those who understand. MY story is a long one ,but to make it short,I have Fibromyalgia and it was only learned later that it was probably caused by Chronic Lyme which I have been diagnosed with for four years now. I have been through all the known treatments -minus the Iv's.I have learned a lot about Lyme but I don't have a support system and it it horrible sometimes going it alone. I hope we can find the support we need here and I have to tell you that with treatment you can and will be better. Hang in there and I will be watching for your post and will help you all I can
Posts: 11 | From Kingston, TN. | Registered: Apr 2007
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E to both of you*)*)*)*!)!!!!!!!
Wow, I AM a SAHM but I was thinking reading it, "Single Asian Hispanic Male????" but then got all confused with mention of a husband and was going, 'Okay, he has a partner so he can't be SINGLE unless he's nonmonogamous but then why would he call his partner the Dh which means husband because nonmonogamous people don't usually use "husband" over "partner" as an appellation..."
I need more coffee*)!*)!
W E L C O M E! ! ! ! ! ************************** your fellow SAHM, Sarah in CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
p.s. to both of you!!*)!! LynneAnne & DragonFly- many people do not just have Lyme but one of the coinfections Ehrlichiosis and Babesiosis or Bartonella- so make sure you are evaluated for those as well as Lyme because they are treated with different meds and to get a good recovery you need to be treated for what you have! If the doctor you are seeing doesn't know what those diseases ARE, that is a sign you need to find a LLMD!!! best wishes*)!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
I just wanted to say welcome and I joined 3 months ago. This place is really great and there are a lot of people armed and ready to help you out. It is a huge support system.
I have learned a lot from the people on here and they have helped me a lot. So, thanks to them and I hope you find everyone as helpful as I did!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
| IP: Logged |
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
welcome to lyme net!!!!!!! stay away from just don,docdave(stymielymie) and others and you will be okay. don: stop hitting on her already ,she just got here.
now some info: neurologic signs are a normal symptom of lyme and many here have neuro problems. many can come from babs. i have found even after treatment, many symptoms will continue.
neuro symptoms are hard to get back to normal, but they can get close. many here, cobweb, lymetoo, cavey are too far gone, thats why all the jokes. many off us can only concentrate for minutes or hours at a time.
now to make your life easier, because i have gone thru this same problem, here is some advice.
get yourself a good psychiatrist and therapist that deal with chronic ilness. even if you get cured this will be beneficial.
the doc need to get your depression under control with a ssri. plus if you have temper rages, then may want to consider trileptal which helps keep your anger level even without making you spacey, if you take at night.
these drugs restore the brain level chemistry of norepinephrine and serotonin. a decrease of these levels causes mood swings, depression , lack of interest and many more neurologic symptoms.
once you reach a certain point off low levels of these brain chemicals, you can not restore them without medication.
the ad on tv is correct once depressed you need meds, you can not get out of it without.
this is a chemical imbalance and has nothing to do with "being crazy" or "seeing a shrink" the stigma is over, it is now considered a disease, and as such must be treated.
god luck and keep us informed SINGLE AUSTRIALIAN HIGHLAND MALE.
DOCDAVE, YES IM ONE OF THE ONES YOU HAVE TO LOOK OUT FOR.
SORRY ALL NAMES USED IN THIS POST WERE FOR MEDICAL PURPOSE ONLY AND DO NOT RELFECT ON ANY ONE PERSON TO HAVE BRAIN CELLS LEFT
DOCDAVE Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[hi]](graemlins/hi.gif)
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic