posted
She probably isn't a Lyme expert, like she said. It's probably like her trying to treat your child for some form of illness that she never encounters in her day to day work... she would just look in a book to determine guidelines for treating or refer you to another doctor.
She said she would look at Dr. B's guidelines, so maybe she will treat for her later. This is why it's important to change the actual guidelines, because this doctor sounds like she is unaware of the illness(if she's looking it up) and she may be caught in the crossfire between the politicalness of this illness.
It's pretty sad when the Doctor states "We see these complaints from a lot of children your daughter's age-->joint pain, fatigue, headaches, sore throat, night sweats, etc., the children are the future(of course these are the symptoms of the flu, mono, and other common illness, if short-termed).
Is it maybe the toxic mold in that area from the floods? Or tick/mosquito infections from the flood.
Whenever the flood happened... they talked about the cost of restoring the buildings, but the medical concerns would seem to be more(of course, the people have to pay for that on their own).
Maybe the positive thing about this is that it might delay seeing the LLMD for however long you have abx. LLMD's are expensive, so if you saved 3 weeks, it might be approx $300 you saved, because that's 3 weeks less you'll have to see the LLMD.
-------------------- Never walk through a cornfield backwards.
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Sounds like food for the alligator pit,,,ducks are like that!! cant teach them new tricks with a big hammer!! THEY are the only important people in the room,,,and educated SOOOO much better!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thought your post was well written. I could almost picture the appointment in my mind.
Even after lots of duck visits, I still have this hope that a miracle will take place and the doc will be interested in my health and providing treatment.
So, I can understand. It was worth giving it a try.
I know the frustration is great. I have yet to figure out how not to get upset.
I do look at my hand at times and think wow...that is a pretty unique hand you have there...all a duck has to do is shake it and it goes ca ching.
I can't imagine what it would be like to try and get help for your child.
Good thing you have a lyme doc to go to for help. He or she will make up for today's visit.
I wonder if he or she would be interested in your story to wall paper his or her office?
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
Cobweb
Unregistered
posted
Well, at least you weren't blindsided by her reaction.
My daughter's pediatrician outright debunked the Igenex testing, diagnosis, and treatment by our LLMD.
Sad part is- I really liked this pediatrician, except now I realize C should have been tested for lyme in kindergarten-instead she was put on Prozac!
Yes, it grieves a mother's heart. But you are armed now with the correct knowledge, so hopefully your daughter will have a chance to become the person she is meant to be.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thanks for the support and not the "We told you so..." (even though I know you did)
Forgot to mention that my child's lymph nodes are swollen.
Asked duck to check this.
She feels under my daughter's neck and asks if she is running a fever.
No. I tell her that she is running a below normal body temp around 97.2.
"That's good" she replies. (HUH???!!!)
She then does a strep culture...which of course is negative.
I did manage to get a Rx for vitamins as over the counter supplements for children
Have NO magnesium in them.
I was sent out the door without a Rx for antibiotics, or a causative factor for those enlarged lymph nodes.
(even though I know what is causing it)
I think my biggest fear is also co-infections. I know that is WAY, WAY out of her league.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
You tried- and it may bear fruit later- ten years from now- when that doctor sees a kid with a bulls-eye!!!!!!!!!!!!!!!!!
You tried!!!!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
Cobweb
Unregistered
posted
As KAM said, even though I knew I was taking Carolyn behind enemy lines I still had this hope her ped was enlightened. But alas twas not to be...
IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hey, a night in jail for punching a duck...
Seems very fair to me.
Plus I wouldn't have a husband, children or dogs to take care of....kind of like a vacation.
My husband (who has lost his mind) suggested I find another duck in the area.
I told him that there was nothing more important than our children's health and
Therefore cost is of minimal consideration.
Who knows...maybe our LLMD will give us a family discount.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
My old LLMD used to do a two-for-one thing with me and mine!! Did it for other people too!!!!! Can't hurt to ask!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/