posted
This is copied and pasted from my post on the medical forum...
It's so amazing that I have to share this with you all.
A lot of this post is copied from another post below on garbled speech, but I wanted to post it under a different heading as to reach other people who might not look at that post.
I was bit in the summer of 2004.
I had these sx (garbled speech/arm numbness)by Jan 2005, and was thorougly worked up for a stroke. At one point I would have difficulty enunciating properly, had difficulty swallowing and would sometimes start to choke on things, esp liquids, that I didn't swallow properly.
I was really worried. Ultimately my Drs found no evidence of stroke, although I AM predisposed to have one bec they found I have a patent foramen ovale which can allow clots to pass through the ventricle walls.
Over 8 more months passed with worsening sx, including horrible sore throats, flu-like sx, double vision, terrible tremors and jerking of just about every part of my body, heart palpitations that sent me to the ER thinking I was having a heart attack, difficulty judging distances, increased anxiety, depression, dizziness, increasing numbness of my extremities, loss of strength, joint pain, and increasing fatigue, without any diagnosis by my physicians.
It took googling my sx to discover the culprit myself, then finding an LLMD through this site and others like it to finally find a Dr who could diagnose and treat me. That was Sept. 2005. Abx therapy was started immediately.
Thanks to them and a lot to perserverence on my part, I'm now starting to feel almost normal...about 21 months after initial diagnosis and starting abx. How have I done this? I've tried just about everything out there...abx, herx, rife, IRT, ozone therapy, hot baths, you name it. I'm convinced that you must be very aggressive, as aggressive as you can tolerate. (meaning generating herxes that you almost CAN'T tolerate) I know this goes against some popular opinion that advocates gentle herxing. I'm not a Dr and can only speak from personal experience. My tolerance for pain may be higher than some of you.
When I was herxing severely, there were times I thought I might never walk again. My leg used to drag, and I had to lean against the wall as I came down the hallway. For a while I had to be taken everywhere by wheelchair.
Well, I want everyone to know that yesterday I rode my bicycle 8 miles! Today I walked 5 miles and ran another mile for a total of 6 miles...that's twice around the Rose Bowl.
This is amazing considering that only in March my LLNP told me that I'd never get well. I was really doing badly at the time. After she said that, I got really upset and told her that they weren't being aggressive enough with me. That prompted her to increase my Bicillin injections to once every 3 days instead of once a week. I was also on Tindamax and Buhner's core protocol.
I was suicidal most of April, and decided to change Drs. The increased Bicillin dosage started to increase my herxing. My GP, who had treated one Lyme pt in the past added Rifampin 600mg qd to the mix, and this made me herx more.
But after a while, the herxing started to wane. Then at the beginning of May I added IRT. My improvement continued. A few weeks ago my Doug coil arrived and after my first session I immediately had a strong herx that lasted about 10 days. As soon as I felt better, I gave myself another session of equal length, and this one gave me only a mild herx. But all these therapies have combined to bring me to this point of feeling almost normal again. Detoxing continuously is a must.
Actually yesterday morning I felt completely normal, and only started experiencing some sx in the afternoon, probably from over exerting myself in the morning. And today, I've had the slightest of sx...slight numbess in my left big toe and left hand, some slight pressure on my eyes giving me the feeling that my eyes are on the verge of drooping. Some stiffness and aching of the back and shoulders. But through it all, my energy is good and my head is pretty clear, and as long as it's good, I'm going to push myself physically as much as I can. A remarkable turnaround from March 31st.
I want you all to know what's worked for me. Everyone has to decide for themselves what they're willing to do. None of my LLMDs advocated rife or IRT, and my first LLNP and LLMd didn't even advocate herbs. I made the decision to do those things myself along w/the abx they ordered for me. Some rife advocates say not to use rife while on abx. I don't know...I chose not to follow that and all I can say is look at me now. How many of you can say that you ran one mile and walked five in addition this morning after riding your bike 8 miles yesterday?
I'm not going to leave any stone unturned...and I'm not going to leave my well being solely in the hands of my Drs, even the LLMDs. However, even though they don't advocate all the things I'm doing, I DO let them know what I'm doing.
My plan is continue everything for a while, but begin tapering off the herbs first, then the abx and IRT, and continue on only w/the rife as long as necessary.
I wish all of you the best, and hope you all get back to at least the point I'm at today if not 100%, totally and completely well.
Patti
Posts: 975 | From California | Registered: Apr 2007
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Patti, I am so happy for you. How wonderful it must be, and so soon since March.
I, too, am much better than I was. I was bedridden and wheelchair-bound for many months.
Now, I can go most days without my wheelchair, though I'm still bedridden 2-3 times a week.
I've been on levaquin, pulsing and at low dose, and it is doing wonders for me.
I feel really hopeful again.
Keep up the great work! - lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I am very happy for you! It gives me hope that I too will reclaim my life and feel well again. God bless- melissa
Posts: 3905 | From USA | Registered: May 2007
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