posted
Hi Everyone I am not sure what is happening anymore. I am on day 33 of the IV Rocephin with 250 zith for the last three weeks. My burning is still really bad and I am crying all the time. Is it not working?
I wish I could stop crying...I am trying..I swear. When my 6 year old daughter begged me to go to her Christmas paty I lost it again.
It is tough to travel everyday and get the IV without much improvement. Please tell me I will get better. I am so disgusted and tired....still not sleeping an horrific nightmares. So sad, I am sick of myself.
Posts: 422 | From CT | Registered: Oct 2007
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
try to ignore the crying just think of it as a result of this sickness NOT YOUR Fault!!! Theres so many things happening inside your body toxins,pain, etc that your overwhelmed. Just try and concentrate on Getting through each day. God Love ya
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Day 33???
YES you will stop cryinG*)!!! And the vast majority of the people I know who did IV Rocephin came out SO glad- so just hang in there!!!!!!!!!!!!!!!!
This, too, shall pass- and you will have years of wonderful parties with your child!!! Sicnerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Hi Yes, thanks everyone. I just came home from the IV. I was crying there too.. It is amazing..you would think there would be no fluid left for tears after a while.
I told Dr. C..day 33 of this Rocephin...he smiled and asked if I took any ativan today. I am one of the lovely people that cannot tolerate anti-depressants because of increased tremors and palpitations. I can take the ativan but I hate to do it.
By the way Dr. C is working on Christmas day. How many doctors do you know would do that...not any that I have seen up to now.
Sarah, it is wonderful that you stay on here even after you are better. It helps us all so much!
Posts: 422 | From CT | Registered: Oct 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Thinking of you..
I know this is hard,
hang in there,
melissa
Posts: 3905 | From USA | Registered: May 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Tears are nothing to be ashamed of. I have them
Alot while pulsing my flagyl.
I try to remember a couple of things.
One. I am not crazy, I am sick.
Two. My mother always said the more you cry, the less you have to pee.
(Makes it beneficial in another way. )
Three. You are not alone. My neighbor's Mom, who is also pulsing
Doxy and flagyl missed her only grandson's birthday party because she could not stop crying.
Hang in there. Better days with less tears are coming.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
BTW.. I took the ativan. I have a good one for you...my 6 year old asked the doctor when they were going to get the tick spit out of mommy. I forgot that was how I explained it....
That is what is making us cry..neurotoxin tick spit..LOL.
Posts: 422 | From CT | Registered: Oct 2007
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posted
It goes slow at first. This sucking disease is slow to turn around. For me it was 30 times longer, and about 30 times worse, than mono, which is supposedly notorious for being a long ordeal! Any prayer or meditation you are into will surely help! And remember, though it may seem otherwise at times, Lyme etc. is just one of the vast array of problems we face as human beings. Like the song goes, "feel your whole life stretchin' out in front of you, starting from, TODAY! I wish you the fastest possible recovery
When you feel like crying, meditate or pray! And the psyche can unquestionably help the medicines work more effectively. We have so much power within our lives, though it may not always seem reachable! Best Wishes, for each and every day of the year, DaveSPosts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
When you feel like crying, go ahead and cry. It is not good to suppress it. Dave is right that you should meditate or pray. You can do that while you cry. You will get over it. Crying is cleansing, too.
I am a person who never cries, but I sure did on Rocephin. It was a herxing thing.
At the time, I told the nurse that she would have to forgive the person who was crying, It was the sickness, it was not me, but I knew it would pass. She had never had anyone explain things that way and actually thanked me.
Hope Rocephin helps you feel better soon! Hang in there!
posted
Mepron made me bawl like a baby non-stop for days! It was embarrassing but did go away. I agree that it is better to just let it pour out.
It's too hard to hold it in. Save your energy for other things, like getting well.
Posts: 390 | From Oakland, CA | Registered: May 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I'm not on IV but over the last few months, I'm finding that I'm going through weekly crying jags and don't have a clue what is wrong with me.
As a whole, it doesn't feel like depression since after the cry, I'm fine and just keep going. I know when I started the mepron, I was told to watch out for the mepron blues, but I honestly never had it since they said it would hit within the first month if it was going to happen.
I'm STILL on mepron and have been since about May but is it possible I was just slow having this hit? I've been on Zith with it the whole time and just don't know why I keep crying.
It's not like a cry of being in pain, although I get that too and it's not because anything is sad. I just start crying for NO REASON. Hormonal?
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Monica, maybe the next two days you will be dry. It will get better. Sarah was telling you the truth, not just feel good stuff.
Tears are a great way to detox. Are you taking anything to help with your sadness?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
I suffered from 5-6 crying jags per day for YEARS. Most of them were at night when I crawled into bed with mega amounts of pain.
I also felt a deep sense of gloom and doom about my life. For this, I tried almost every AD on the market but nothing helped.
Blood testing showed my IGF-1 was very low as were the rest of my hormones. No matter what I tried my levels would not come up to normal.
We decided to purchase two Norditropin Nordiflex growth hormone pens to treat and see if my other symptoms improved on HGH.
The crying jabs disappeared within a 3 days. I felt more at peace during the 6 weeks that I was taking HGH.
My insurance would not cover HGH without a stim test so I had to go off of it for 2 weeks to have a stim test. The crying jags came back in 3 days.
I called the endocrinologist administering the test. He said I obviously need it. I went for the test and flunked it. Unfortunately, I had to wait about a month total for the insurance company red tape.
Within 3 days of restarting HGH the crying jags disappeared again. My dose is .4 mg per day. I'm hoping once I've been on it for 6 months solid to see more improvements. My sense of well-being is the best it's ever been.
Posts: 192 | From Dwight, IL USA | Registered: Mar 2007
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posted
Hi Pam I started taking something called Deproloft...an herbal antidepressant. I tried the cymbalta and zoloft and all they gave me very bad tremors and reactions..seizure like activity....so I am afraid of all of them now.
The Deproloft is not really strong enough but I figure it cannot hurt. I think it is just the nasty bug detox like you all told me....but it is rough at times.
Ativan also helps keep me from jumping out of my skin when the neuropathy is unbearable.
It is like grieving for my old self....horrible. I just keep telling myself my old self will be back soon!
Posts: 422 | From CT | Registered: Oct 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Monica, one thing I've learned (I became pretty slow, it took me 6 yrs to learn) it's not like grieving for your old self. It is grieving. It's a loss of oneself when you have to deal with a chronic illness, loss of career, friends, pain, life style, unknowns of day to day being??????
Gigi has many good posts about the need to heal all the old stuff that we all carry around with us and sometimes it's not until the immune system and our weakened bodies hit rock bottom...that our life garbage comes to the surface.
Do you know how to do a search under someones name to bring up old posts? If your interested?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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