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Originally posted by sunseaflower:

i have had lyme disease since I was a child. Now I am 42.

I think, I got infected lyme disease when I was 6 or 7.

When I was a child, I was getting tired quickly. Then I had memory problems. My social memory was really bad. I studied always by writing.


And when I was a middle school senior, depression attacks began. And nearly every year these attacks occurred. In the last year of university I realized these attacks were depression.


When I was 26, manic depressive disease began. I have had manic depressive disease for 16 years. But the attacks, as normally occurs once in every 3 or 4 years, occurred more rapidly. Despite the treatment, nearly every year I had manic attack or depression.


12 years ago, suddenly my memory became dull and my attention ran low.

Then I started to feel much more tired all the day.

My memory problems and tiredness reached at a bothersome stage.

My neck and back ached too much. 4 years ago I thought I had chronic tiredness.

For a year I used different kinds of medicine but they did not prove useful.

I am a doctor, too.

For that reason, I had some tests related to the diseases breeding tiredness done and at the end lyme elisa test was positive.


In western blot IgM test, 3 specific band were positive.


Then I persuaded infectious disease specialist to make rochephin 2 grams day iv treatment for 8 months.


In the first 3 months it had some effects but then this effect vanished. At the end of the 8th month it did not have any effects.


In the meantime I had a serious depression and I gave the treatment a break. This depression took 6 months.


After that, for 3 months ketek treatment, for 2 months augmentin treatment and for 2 months roxitromisin treatment did not prove useful.

I had looked at opportunist infections.

Ehrlichia, bartonella, babesia tests were negative. mycoplasma igm was positive and with the treatment the positiveness vanished.


And I used fragyl for a month but I did not see any effects of it.

A year ago I started to samento. I started with low dose then increased slowly. While 6 months I was using 30 drops, in the last month I have increased it to 50 drops.


And I have been using andrographus, resveratrol ve sarsaparilla that are in the book healing lyme.


I was using the last three herbs with 2x4 tbl dose and I increased it to 3x4 dose for a month.


But I don't think I have had the effects of samento and the other herbal medicine I am using with.


While in july 2007 my natural killer cell level was 254, now it has decreased to 84.

In july wbc was 6100 but now 3900. So the protocol in the book healing lyme did not work on me.


For the last 4 years I have had hybertension and for the last 2 years diabetes have been added to these.


My brain functions are really bad. My memory, my attention is disordered. I am really tired. I hard do my job and I received reports because of the depressions.


In Turkey, there is not any informed doctors in the treatment of chronic, long last neuropsychiatric lyme disease.

I do not have the opportunity to go abroad.

My English is not enough, I can understand partially what I read, I can not express myself.
I don't know what to do.

A sentence to give me some idea, show me some way will be really precious for me. Thank you for the ones who will show me some way out. Ahmet

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Ahmet, I broke up your long paragraphs so those of us with neuro lyme could comprehend and read it.

Wow, to be so far away and NO lyme literate drs. near you. So glad you have been reading a lyme book to help you.

best wishes to you; up for others to help if they can....

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Name of Support Group: EuroLyme
Contact Person for this Group: Gill Reese

Contact Person Telephone:
Contact Person E-Mail: [email protected]

City:
State or Province: Other
Country: UK

Regions of your state / province served by this group (i.e. south-east Pennsylvania): All Europe

Your Name: Gill S Reese
Your E-Mail Address: [email protected]
Other Information:
URL For Support Group: http://groups.yahoo.com/group/EuroLyme

Comments:

EuroLyme is a European-wide Lyme disease support group.

We have moderators in English, French, Spanish, German and Danish.

We aim to supply support to Lyme sufferers and good information to them and their carers.

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