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» LymeNet Flash » Questions and Discussion » General Support » So much for grassroots research

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Author Topic: So much for grassroots research
microw
LymeNet Contributor
Member # 14702

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A certain person has removed some of my posts on his forum because I was showing my findings of what I know to be problematic intracellular microbes in the blood of a person.

He does not think these are related to the infective agents involved in autoimmunity disorders.
I disagree, but I'm just a guy with a microscope.
I was ready to embrace the concepts offered by him, but now I suspect he is protecting professional
dogma.
The protocol first evaluates vitamin D levels as prerequisite for treatment program, and will require the patient to avoid sun.
How does one avoid sun?

Sorry, I'm just a bit miffed at being censured.

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microw

Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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Not to feel bad. I've actually been tossed off a site .. banned. My crime?

I posted information about Lyme on an MS site to help folks. Once.

Others here got tossed off too.

It seems some folks hang onto their diagnosis like there is no tomorrow. They don't want the truth. Also...

Some of these sites are run by ducks and they DON'T want the folks they have misdiagnosed... their cash cows.. to leave. So instead they kick off the one who might spill the beans.

Sorry you had this experience... but you are not alone.

It is a hostile world out there.. devoid of learning in some places.

[Big Grin]

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
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MP no other opinions but his Not even a MD

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Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
doc
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who & y, I though this was about exchange of ideas, and support? can anyone delete others posts. newbee, Doc
Posts: 95 | From nys | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
microw
LymeNet Contributor
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Thanks I needed to hear that.

Doc, I cannot post names, but there is a certain PROTOCOL which is marshalled by a certain doctor who does not want to confuse his patients with things he does not understand, such as forms of blood borne bacteria other than the ones he recognizes.

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microw

Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
charlie
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....and the 'protocol' is so monastically ritualistic I wonder if there isn't a trevorian chant involved somewhere....
Posts: 2804 | From Texas | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
microw
LymeNet Contributor
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Thanks! I needed that belly laugh [lol]

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microw

Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Good one, charlie!! [Big Grin]

Microw....Hundreds of people have been banned from his site. No worries. He's not worth the effort.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
bettyg
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microw,

i didn't understand your post before, but you are talking about trevor m; gotcha now! he is the rudest man i ever encountered and his former moderators feel the same way; that's why they quit him!

on his board he reads EVERY PRIVATE MESSAGE SENT/RECEIVED by every member!

so glad you left there for a better education over here!

i was diagnosed at the same time his present board was started; so joined it as i thought sarcoidosis and lyme were the same things from things handed to me by local folks!

i was there 2 months and then only MP could be discussed; if you were NOT taking his protocol you couldn't post.

with the blessings and encouragement of 1 former moderator, she "steered" me here; what a difference to have freedom of speech! [Wink]

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microw
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I am very big on freedom of speech, and it seems these freedoms are slowly eroding. I have family members who fought in wars over this, and when I see what is happening within the science community, it makes wonder. I don't think there is time to play around with egos when a massive health issue is looming.

[ 05. March 2008, 10:02 PM: Message edited by: microw ]

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microw

Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
microw
LymeNet Contributor
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Very good. You seem to be well informed, thanks for the info.

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microw

Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
doc
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o, i thought u meant it was on this site. it seems open to discution here ? am i missing something. newbee,Doc
Posts: 95 | From nys | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
   

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