posted
I am curious about a friend of mine with Lyme. She had her family tested, and turns out both members, including her little girl have babesia and bartonella. Neither one displays symptoms, but she wants to treat child anyway. It's sort of a tough call. How do you know if the positive tests for Lyme-related things are proof of disease state? Microw
-------------------- microw Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008
| IP: Logged |
posted
I don't know, but if you'll put medical questions in medical, you'll get more replies.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
When my daughter was first diagnosed, her LLMD told me that I was most likely infected as well, but my immune system was keeping it suppressed.
I would say that everyone on the planet has it in their system. It's just trying to figure out why some have an immune breakdown and go chronic.
I know that my LLMD would most likely hold off treatment until symptoms start to show.
I had very mild symptoms for years and chalked it up to the epstein barre virus my husband and I had for three years back in the early 90's.
Lately, I've had an increase in symptoms like being more fatigued than usual, night seizures, and breathing problems.
I tested negative for all lyme and co-infections, but the doctor put me on six months of zithromax. At the end of that time, I took one Rifampin and my head felt like it was going to explode.
Had the blood test done again, and this time tested positive for bartonella and HHV6. He said a biofilm had formed and then got compromised releasing the bacteria into the blood. This bacteria can hide in tissues.
At this time, I am just doing vitamin D therapy. We are hoping this will kick my immune system back into doing it's job.
Make sure the kids get at least 15 minutes of unprotected sun daily.
But, ultimately, it's the doc's and the parent's call. I would always wonder what this bacteria is damaging behind the scenes.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
posted
I am glad you are opting for the Marshal approach, although I understand it is very hard to keep up. I think this is a good way to see if you can jump start immunity functions, esp. where biofilms are involved. Microw
-------------------- microw Posts: 129 | From Toronto, ON Canada | Registered: Feb 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
Printer-friendly view of this topic