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» LymeNet Flash » Questions and Discussion » General Support » We comment on Lyme related film now being made

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Author Topic: We comment on Lyme related film now being made
Ann-OH
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Here is a "pre-review" of the movie about Lyme disease in the 70's. Followed by comments by a few of us from this board.
Ann - OH

www.cinemablend.com/new/Alec-Baldwin-Gets-Lyme-Disease-8052.html

Alec Baldwin Gets Lyme Disease
By Ed Perkis: 2008-03-04 18:56:41


If you're like me, you probably think there haven't been enough independent comedies about Lyme disease. I can only think of 10 or 15 off the top of my head. Alec Baldwin agrees with us and is going to produce and star in the movie, Lymelife, about what happens when deer ticks go bad.

Actually, according to Variety, Lymelife is about more than Lyme disease. It is described as a ``dramedy'' set in Long Island suburbia in the 1970's. The Lyme disease combines with relationship and real estate problems to come between two families. Baldwin will be joined in the cast by Emma Roberts (recently of Nancy Drew), Cynthia Nixon, Rory Culkin, Kieran Culkin, Jill Hennessy and Timothy Hutton. I liked this movie better when it was called The Ice Storm. Hopefully we will not be subjected to another key party.

The co-writers and directors of Lymelife are Derick and Steven Martini. I have never heard of them, but they wrote and starred in an indie film called Smiling Fish and Goat on Fire about eight or nine years ago. They also have a few other scripts in development. This will be their first directing experience. Hopefully they are ready, since filming will begin in New Jersey next week.

RELATED: alec baldwin, lyme disease

[Comments:]


Betty G, IOWA LYME ACTIVIST Says:

March 5th, 2008 at 17:41
To Martin Scorsese and Alec Baldwin,

I hope you will use FACTUAL info about CHRONIC LYME disease patients in this lyme story of Alex getting lyme disease.

I do hope this movie will show this as CHRONIC lyme, and not a tick bite embedded or a bulls-eye rash where the patient is lucky enough to get to a LYME LITERATE MD PROMPTLY and cured!

I've had chroinc lyme disease for 38 years; 34 years MISDIAGNOSED by 40-50 drs. I have many other complications since I believed every drs. OTHER diagnosis they gave me for 34 years.

In my case, it was a tick off my folk's LIVE CHRISTMAS tree that bite me 1969! I was able to track this back using my journal diaries! It was sub-zero Iowa weather so I wasn't outside gardening; I had no pets and neither did my roommates. All normal ways of getting bitten were NOT present.

I hope most of all that Martin's movie will get into the LYME CONTROVERSAY!!

Our good LLMD, lyme literate MDs from ILADS, International Lyme Associated Disease Society vs. the bad drs., IDSA, Infection Disease Society of America, who do NOT believe in CHRONIC LYME.

The IDSA drs. treat for UNDER 30 DAYS! They proclaim the patient, CURED OF LYME! NO WAY JOSE! HOG WASH !! The IDSA drs. are responsible for us being in such bad shape as we are, and of the MANY LYME DEATHS due to other complications of chronic lyme.

Martin, I do hope you will get Wisc. author, PJ LANGHOFF'S, recent 2-08 lyme series books, "IT'S ALL IN YOUR HEAD". Book 2 has 80 lyme patients internationally in it; I'm in this one.

Book 1 has the basics of lyme disease, and 8 other lyme patient stories including of 2 patient's lyme deaths, and part of PJ's continuing lyme story with the 12 year COURT system in trying to get her 2 children back from her ex-husband.

Book 3 will cover other things including controversial lyme subjects!

Martin, I have respected your work for decades, and I hope you will get our CHRONIC LYME DISEASE story across where our family, friends, co-workers turn their backs on us since we do NOT have a VISIBLE illness; it's all INVISIBLE!

Martin, I enjoyed them recently honoring you for your work!! Kudos Martin to a very deserving man.

I also hope you touch on this: the high costs of finding a LLMD/lyme literate MD to treat us who will NOT TAKE INSURANCE; the health insurance companies refusing to pay ANY LYME RELATED EXENSES; the loss of jobs, a spouse, your children, your home, bankruptcy, and being homeless!

How our veterans do NOT receive help from our US govt. on paying any of their lyme expenses when they were BITTEN WHILE IN SERVICE!

Looking forward to a 1st class chronic lyme movie! Thank you all!


Diane J. Marie Says:

March 5th, 2008 at 23:08
Over the years, Martin Scorsese has "gone places" with his honesty in movies.

So very many citizens in the US suffer from chronic Lyme disease, a very painful and disabling disease that wrecks lives, divides families and very often causes financial disaster. The overwhelming majority of doctors ignore us--by belittling us.

Chronic Lyme disease is defined as a brain infection of the Lyme pathogen: neuroborreliosis, a neurological disease.

About half who get Lyme disease are children. Often they can't go to school and can't participate in life with their friends. It can hurt to think. 90% of kids with Lyme have bad head pain. But will these kids (and adults) get the antibiotic treatment they need to help them?

The infectious disease doctors in the US (IDSA) lie by saying chronic Lyme disease does not exist. They do the bidding of many for-profit health insurance companies that don't pay for treatment.

It is profits over patients.

Who else profits? The painkiller, statin and antidepressant superindustries. Follow the money.

The overwhelming majority of people with wrecked lives caused by Lyme don't know that Lyme is the name for their illness. It's the magic keyword on the Internet to connect with others.

We'v been ignored for decades.

Except by ILADS (International Lyme and Associated Diseases Society) physicians--our hero doctors!

However, some of our hero doctors have had to fight legal battles for all of the above reasons.

And I wonder, where has America gone?

I refer readers of my comments to PJ Langhoff's 2 new books of a 3 book series, "It's All In Your Head." These contain Lyme patient stories. My story is in there.

As are stories from around the world. Ticks with Lyme can't read road signs!

I look forward and am grateful for Mr. Scorsese and Alec Balwin's efforts in the upcoming movie, Lymelife.

Diane J. Marie


Jennifer Says:

March 12th, 2008 at 15:37
You have GOT to be kidding. A movie about the disease that has brought nothing but heartache and suffering to my family including my 3 year old who was born with it. I'm so not happy about this.

George Howell Says:

March 21st, 2008 at 14:33
This idea is controversial, but then "Lyme" is controversial. "Lyme" beyond the acute stage is really a "Th1 inflammation". The bacterium that causes "Lyme" is one of fifty-three known bacterium that causes the "The inflammation", and is the reason that sooo many people cannot get tested Positive for "Lyme", but yet seem to have the illness. For more information, go to www.autoimmunityresearch.org or www.bacteriality.com, and read the articles that are linked in the right hand column. The truth is that the IDSA docs do not know what chronic "Lyme" is, and the ILADS docs only know the answer partially.

Ann Hirschberg Says:

March 21st, 2008 at 23:35
Ed:

I guess I am not like you, as I have never seen an independent comedy on Lyme disease.

This movie was developed at the Sundance Film Workshop, so it has some credibility, I think.

The Tribeca Film festival in April will include a really excellent documentary on Lyme disease called "Under Our Skin". There you will get a good idea of the scope and seriousness of the disease and the other diseases that can be co-infections with it. Check it out.

I am glad the movie you discussed includes real estate issues. Real estate and tourism may be part of the reason that Lyme disease has been pooh-poohed and shoved under the rug over all these years - 40 so far since it was identified - resulting in little useful research, no accurate tests, and poor treatment options.

p.s.
I am pretty sure Martin Scorsese has nothing to do with this film

[ 23. March 2008, 03:18 PM: Message edited by: Ann-OH ]

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bettyg
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Oops, I just added an apology online here! When it's approved by moderator there, I'll copy it here!!

my neuro lyme mind was playing tricks on me about Martin Scorsese ... but I'm positive I read this somewhere ELSE about him directing this film!! [Frown]

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pingpong
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up for viewers who missed this

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