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» LymeNet Flash » Questions and Discussion » General Support » PCP was going to work with LLMD......but no more!

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Author Topic: PCP was going to work with LLMD......but no more!
Lymie-Pie
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My PCP said he would work with my LLMD concerning my treatment, I got a call from PCP's office this morning saying he absolutely refuses to work with the LLMD now. Im not sure what happened, but I can guess. I just found out yesterday about all my bloodwork, and have 2 pages of confusing notes on what to tell PCP. now it dosent matter, I have to go to Virginia and quite honestly I need to go now because I'm not dealing with all this too well. I am used to being turned away and told my little "maladies" are just that and dont add up to anything. All of a sudden there is talk of portacaths and long term abx, co-infections.........things I have only read about. now Im scared. I knew I was sick, but all of a sudden it's become very real.I know that once I get to VA things will get better, I just want to drop everything and run there, I need help.
Posts: 16 | From Kentucky, USA | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
feelfit
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Hey Lymie,

Can you post some of your blood results? I know how confusing all of this is in the beginning, there is lots of help here.

Your PCP probably backed out because of the aggressive treatment that you mentioned...just my thoughts.

Hang in there kiddo
Feelfit [group hug]

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Lymie-Pie
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how do I post them? they confuse me silly, something is above 164 or something....
rawwwwwwwwwwwwr! I cant think! LLMD said RMSF, Lyme , Babesia and bartonella (wrote that down) since I havent seen him yet I dont understand the results. thanks for the words of encouragement though, I really need it right now!

Posts: 16 | From Kentucky, USA | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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When is your LLMD appt? I really think you will feel better (emotionally) once you talk to him in person about your results .... I know I did! It was very validating to have a doctor say, "Wow, you're really sick aren't you?"

Hang in there! It does get better.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Lymie-Pie
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I will see my LLMD this coming week, and you are

right.

I probably will feel better just getting to his

office.

till then Im just gonna keep freakin out I guess!

thanks for caring!

Posts: 16 | From Kentucky, USA | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
   

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