posted
Can you stop the meds for a DAY? You sound like you need a break.
Hugs, hugs, and more hugs. May God send his angels to comfort you.
I'll pray that your children will be little angels today too!!
btw, received your mail today... thanks!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
dear Geneal-
i'm sorry to hear that you are feeling so bad, and i know it must really be bad because you are always so good at seeing the glass half- full.
what you are feeling WILL pass. I promise.
I know that part of what makes all the rest feel so bad is that your heart gets dragged down into that deep hole with the rest of your body.
You have a rescue team of friends who love you waiting for you up here, shining lights and sending prayers down to you, we'll sing to you until you are out of the hole, we will not allow you to be alone.
quote:Originally posted by sometimesdilly: I know that part of what makes all the rest feel so bad is that your heart gets dragged down into that deep hole with the rest of your body.
Boy, is that the truth!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Cobweb
Unregistered
posted
We all know what are own limits are.
I personally do not believe you need to feel like you are on death's door to be getting better.
I have stopped taking a med that I thought was making me too sick. You have even more day to day stuff to handle than I do.
My LLMD is the one who gave me that directive-we all know how much we can handle.
Of course this is a weekend so you can't call your LLMD- or can you?
Bottom line- When I get that "Feellike I'm dying feeling" I listen to my body-and stop doing what I'm doing. Treatment need not kill you in the process of getting well.
This too shall pass-one way or the other.
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bettyg
Unregistered
posted
geneal,
gosh darn it, one of our most positive, supportive lymies is really down right now, and you KNOW you have ALL our understanding and compassion to raise you back up from the bottom of the barrel.
you mentioned your kids, but didn't mention your 8 FRISKY DOGS in your trailer home too!! goodness gracious; kaos!!
seriously, i too think stop taking the meds when you are this bad, and see what difference it will make to your system.
praying God will carry you like FOOTPRINTS IN THE SAND during your deep, dark days right now geneal!!
we love you; YOU ARE A VITAL, SPECIAL PART OF LYMENET, and we so enjoy what YOU bring to the board daily!! you've been thru so much and being a KATRINA SURVIVOR.....yes, this too shall pass!! we're here for you 24.7...
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I have had my share of days lately with the...I must be dying feeling........
........with treatment.....each time it comes ....every few weeks now..... I feel a teeny bit better.....and I'm shocked .....every time...
but....OMG...it is awful.....I am so sorry.....
you are not alone....you don't have to suffer in silence...we are here...and even though our support maybe silent....our hearts are screaming for better minutes.......hours and days for you ....
this too shall pass...
..take a deap breath....and think of all of us here waiting to read your encouraging words you always have for us.....
I'm with ya...... mtree pm me if you want.....
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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I am thinking of and praying for you this very second! I am so sorry you are going through this.
I am having a rough ride too. It's so hard to feel incredibly bad after knowing that we've been through it and gotten way better.
I think these diseases are so deeply entrenched in us that we truly are peeling back thin skins of an onion with herxes between each skin! Wish I knew how big my onion was...
Perhaps what others have said is good advice: back off on some of the medicine to come up for air.
I'm weaving around like a drunk with flu aches and brain fog myself. If only we could find a "dry tank" to herx together!
Much love and hugs and a basket of peace,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
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posted
I'm sorry you're feeling so bad Geneal. Babesia treatment is tough. It does get better.
Once in while, if I felt really bad, I'd skip a dose. I didn't do it often .... maybe three times total. It might let your body catch up with the die-off.
Hang in there!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Hi, my hubby is so bad also, he has that can't go on feeling...Dr. put him on Mepron & Zith over three weeks ago and last week he was so weak, ran to the bathroom for both ends, and his head & eye pain from a 1 to 10 is about a 20 he say's...could this be the med are starting to kill the the damn things..or just a reaction to med in general
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thanks for the support and encouragement.
It is just so hard sometimes.
I just so happened to get my monthly friend at the same time.
Your words, prayers and support have made me feel better.
Thank you so much. I always tell myself that this too shall pass.
It means so much more coming from all of my very wonderful, special friends.
I may be down....but not out yet.
I am to do flagyl tomorrow (1 x a week to prevent c. diff).
I think I am going to take a day off the mepron/biaxin combo.
Your kindness and support in my darkest hours are a shining light to me
That helps to guide me back to a better place.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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quote:Originally posted by madge: Hi, my hubby is so bad also, he has that can't go on feeling...Dr. put him on Mepron & Zith over three weeks ago and last week he was so weak, ran to the bathroom for both ends, and his head & eye pain from a 1 to 10 is about a 20 he say's...could this be the med are starting to kill the the damn things..or just a reaction to med in general
I would say it's a major herx. Please tell him to listen to his body.
A day's rest could do wonders for him.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Cobweb
Unregistered
posted
Geneal-I thought flagyl was for cyst busting? Anyway- if you find it hard to swallow-dippity doo da it in Olive Oil and it slides down smooth.
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Just got back from a LONG day in an OLD house tearing out very irritating dusty insulation out of walls,,,AND I thought I had it bad!!
Sounds like my day was a piece of cake compared to YOURS!!
I am thinking a tiny break for you also,,,but what do I know??
My thinking is TOO much going on at ONCE there!!
If you normally get a flare this time of the month,,,and then a herx on top of it,,,yikes,enough overload for ANYONE!!!
It shall pass,,question is FAST enough for ya??
I will be hoping and praying it beats the post here!!since IB--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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bettyg
Unregistered
posted
that monthly friend visiting you also; misery loves company; i don't miss that at all!
so good you posted again. YOU LIGHT UP "OUR LYME" LIVES HERE! you're one of many i put up there on that high PADDED pedestal of HOPE, ENCOURAGEMENT, COMPASSION, AND SURVIVOR!' ***************************************
better days are coming; not sooner enough for us all!
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posted
Wow, do I know what you are going through. I am now in my 8th month of being on antibodics and it feels as if it is killing me also at times. I just spent the past 4 days in bed due to a horrible headache and stomach issues from the flagyl. Most of it crying! I have had lyme for 29 yrs. It is said that the worse you feel the more Lyme your antibodics are killing. It is called herxing. Everytime a lyme is killed it is releasing bacteria and viruses that are held within. That is why you feel as if you are dying. Now with that being said, this too shall pass, or else! lol Is your dr. helping you build your immune system back up? That is also key in fighting lyme disease. This year has been hell for me but my family is seeing tiny improvements and so am I but I am just losing my patients! I'm tired of being tired.
Posts: 101 | From NJ | Registered: Apr 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I believe a break is order when you are to the point that you are totally non-functioning. There is no way that can be a good thing at all!
My LLMD used to say-take a break. That's an abx break. These guys don't multiply that fast that you can't give your body a rest from abx.
Give you body a ton of good things. Abx on top of abx to kill them all, doesn't help anything. IMHO
When every part of you is hurting, it's your body & brain screaming at you. When your liver, gall bladder, kidneys and colon are mad- Watch out, don't ignore their many cries for help.
Rest during the day, when possible. But most importantly, how is your sleep? Are you going into the deep relaxing sleep that every ill body needs?
Geneal, I can't image having children to tend to everyday on top of all this. I like Tutu sending you angels. Angels help relax your mind and hopefully the children also. lol
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
You all are so kind to think of me today.
I actually backed off my meds and do feel better.
Was able to at least be functional for my five year olds birthday party.
I am to speak to my LLMD in a couple of weeks for a phone appt/consultation.
I didn't take the flagyl today either.
I am not taking it as a cyst buster at this time,
Only as a preventative measure against c. diff.
Only one pill one day a week.
My POTs symptoms are really acting up. Maybe time to change that med too.
You have all made my day (again!).
I am so blessed to be worried about and thought about by all of you.
I am hoping to get my husband (real soon) to show me how to post pics of the new house.
Today I am excited again. Yesterday, I could have really cared less.
What a difference a day makes.
Of course all of your prayers and positive thoughts really helped me out of this funk.
God Bless You all. You are truly givers.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Oooo, Oooo, Oooo!!!! Pics of the new house!! Can't wait to see it!!!!
So glad to hear that you are doing better!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I think we should all just run away. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
glad you had a better day today Geneal.....
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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bettyg
Unregistered
posted
geneal, thanks for update on yourself; i too can't wait to see your new house photos coming along!!!
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
geneal, i'm thinking of you and sending you lots of love. please remember to be kind and gentle with yourself.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
kam, where are we running to? I can't run. Can I walk?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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I'm so sorry I wasn't here for you when you were feeling like poop!!!! Now I feel like poop!!!
I AM glad that you had everyone else here to carry you through and I'm SO happy to see that you were able to pull out of it.
I think I would have only had the same things to say anyway. (about you being wonderful and possibly backing off for a day :rolleyes)
I had a thought, since the timing was corresponding with your "friend", have you had your iron levels checked? Anemia can knock the heck out of you. Have you been taking sublingual (under tongue) B-12? That might be helpful.
A nice, long, REALLY warm Epsom Salt bath might be in order, along with a couple of liters of lemon water for detox. Tell hubby he needs to field the kids because you need to detox in order to stay in the game.
When I did the detox bath I stayed in for about 45 minutes, while drinking a liter of H2O, took a 15 minute break to reheat the tub & reload the Epsom Salts, then repeated. I used a whole big box of Epsom Salts each time.
I brought in a radio (not too close to the tub, as tempting as that might seem LOL), put on some relaxing music to drown out the racket of DH & DD and brought in a couple of candles so I could give my eyes a much needed break too.
It truly worked wonders. I was much more pleasant to be around, at least for a little while.
If anybody DESERVES a GOOD, LONG detox, Sweetie it's you!!!!! Tell hubby it's a "medical necessity"!
I would definitely get the iron checked and find out whether supplementing is OK, while on Mepron, because I don't remember. (sorry)
If you haven't been supplementing your B-12, I think now's the time to "get busy with it". It's also good to take it along with some B-complex, it helps with the utilization.
and EAT YOUR SPINACH!!!!!!!
hugs & prayers, Ali
PS-sorry I was late , here's an extra hug (((((((((((((((((((GENEAL))))))))))))))))
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Laurie
Posts: 256 | From long island, new york | Registered: Feb 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am going to have to wait until that new house is finished for a bath.
My daughter, who has been off meds for almost 2 weeks due to an allergic reaction
Is now showing her Lyme symptoms again.
I had a bad day again today. Yet, despite telling everyone that I don't feel well,
I still am the "official" go to person.
My daughter is to start back on meds today.
It is so upsetting to see her regress so quickly after so many months of antibiotics.
I don't want my reality to be my child's life.
Some days it is just so overwhelming.
She is crying constantly for no apparent reason.
That vague "I just don't feel good" answer.
I have to get myself together so I can crusade for my daughter's treatment.
I suppose we will have a family "herx" weekend.
Fun, fun, fun.
I can do this. I can. Just have to convince my body to go along with this.
I will add in some B-12 today. I have been remiss in that area.
So much going on with the house and all.
They are to start putting sheetrock in today.
I am determined to go forward. One wobbly step while holding on to the walls, at a time.
I can't tell you again how much your support and friendship means to me.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Geneal, I just want to say I am so sorry you are having a sucky time of it.
You are truly a gem here on Lymenet. You have helped, inspired, and uplifted me so many times. You deserve only good things!!!
Thank you so much for being all you are to everyone here. I am sure if we could, all us lymies would be marching over to your house right now to cook, clean, and babysit for you, make you healing detox baths, give you massages and fan you with a giant palm frond.
Yes, this too shall pass, but it still sucks for now!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Now I feel like poop!!!![[Roll Eyes]](rolleyes.gif)
LOL), put on some relaxing music to drown out the racket of DH & DD and brought in a couple of candles so I could give my eyes a much needed break too.![[bonk]](graemlins/bonk.gif)
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