posted                

quote:

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Originally posted by daise:
Everyone!

This is an urgent reminder to everyone that they
need to contact the individuals below with their medical needs and concerns regarding their Lyme
infections. If you don't ask for ILADS treatment, you won't receive it!


We need them to see how many of us are being
turned away and not given adequate treatment.

Respectfully request ILADS based treatment.
*********************************************


Please CC: [email protected]
**************************

so I can keep records of who has contacted them. Also, please pass this on to others you know.


We can't get a thing accomplished if we don't step up to the plate and request what we need. Do not let this opportunity pass us.

They are listening....will you tell them what you've been going through? The time to act is now. ************************************


[email protected]
[email protected]
[email protected]
[email protected]


Have a great day!

Colleen Nicholson

Research Assistant to Dr. Burrascano, MD
Founder, Military Lyme Support
Moderator, MT Lyme Support, AK Lyme Support
CALDA, ESLDA, ILADS, LDA, LDPR, TTC
><>��:*�`����`*:���:*�`� � ��`*:���:*�`����`*:��<><

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Hi everyone,

I've been trying to get the word out to our top medical officials about the lack of care at the Military Treatment Facilities for Lyme and it's co-infections.

Please send your brief story and contact info ASAP to:***************************************


[email protected] MG, OASD HA/TMA
******************************************


** Focus on how many doctors you've gone through,

** whether or not you're chronic,

** and if you've ever requested ILADS treatment and been refused by your military doctors.


Please make it short and sweet....
******************************

as they're wondering "how many" are having/had problems.


Also, be sure you are 100% respectful at all times, and address him accordingly.
****************************************


I've been assured that he is an honorable man, trustworthy, and wanting to help us.

Also, if you could, please CC me so I can keep track of who has contacted MG Granger.
***************************************


I may need to assist with a meeting in DC in this regards, so if I can use your story, please send it my way.**********************************


Take heart! Looks like some very good things are starting to happen. Have a great day!


Colleen Nicholson

Research Assistant to Dr. Burrascano, MD
Founder, Military Lyme Support
Moderator, MT Lyme Support, AK Lyme Support
CALDA, ESLDA, ILADS, LDA, LDPR, TTC
><>��:*�`����`*:���:*�`� � ��`*:���:*�`����`*:��<><



In a message dated 3/12/2008 10:37:12 A.M. Eastern Daylight Time, [email protected] writes:


CSM Holland the MHS is standing by and ready to assist these great Americans. Again give us the names or tell them to contact us or their local MTF. Thanks. EG


----- Original Message -----
From: [email protected]

To: Granger, Elder, MG, OASD(HA)/TMA; LAWRENCE.HOLLAND; Casscells, S. Ward, Assistant Secretary of Defense, OASD(HA); Kelley, Joseph, CTR, OSD-ATL; Smith, Jack, Dr., OASD(HA); [email protected]

Sent: Wed Mar 12 00:08:53 2008

Subject: Lyme in the Military

Sir,

I have lists upon lists of people who have come to me because the Military physicians will only treat them according to the IDSA guidelines. Yes, they do get medical care, but it's inadequate at best.


The IDSA's guidelines exclude all scientific data pointing to Lyme in it's Chronic stage.


Because of this, the IDSA is being investigated by Atty. Gen. Blumenthal of Connecticut for violations of anti-trust law, and exclusionary conduct in forming their guidelines.


Sadly, when our Military physicians are asked give further treatment based on the very effective ILADS guidelines, the patients are refused based on the IDSA's guidelines.


They are often referred to an Infectious Disease MD who then continues to give them the same inadequate treatment.


Time and time again, this is the story I hear from our Active Duty members, their families, and our Veterans.


If it would be helpful, I can have every military member with Chronic Lyme email their personal experiences to you, just advise me of who to send them to........

---

daise, this is outstanding that colleen and dr. b are involved and have GOTTEN THIS FAR! best wishes to all of you.


daise, i'll also send this broken up NORMAL width post to my entire LYME LIST GROUP ... they may know of more VET LYMIES who could submit their stories for this SPECIAL PROJECT FOR EQUAL JUSTICE for our military vets/active members of our armed forces!


may i suggest to others that they also send the broken up version to THEIR OWN LYME LIST GROUPS/SUPPORT GROUP MEMBERS, ETC! we can really get the word out quick on this then!!
WELL DONE EVERYONE!
Bettyg

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