posted
I've been on orals, buhner, and other alternatives for 1 year. My llmd wants to go to iv next week. I'm terrified.
It means I won't be able to swim with the kids all summer, blah, but that's better than being in bed, yes.
I'm nervous that insurance will boot the claim and then realize that my dd is costing $1500/month in meds for lyme, babs. I don't want to mess up her tx when she's so close to better.
DH doubts my docs advice, but I don't know why and I'm too weak to even advocate seriously. He says, you've only been bad the last couple of days. No it's been weeks of real bad and years of pretty bad, but he's in denial. Like I would choose to stick needles in my arm and risk dd's insurance coverage for fun.
And, the worst part is, somehow with orals and alternatives, I could lie to myself that I wasn't really sick, if you can believe that. Now I have to come to terms with the true scope of my situation: things are really bad.
Thanks, lymenet and all its posters, for being there when I need you and not getting mad when I feel too sick to visit or when I feel good and I'm out trying to forget about lyme.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Catskillmamma
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I was pretty freaked out about getting an IV put in. It's been worth it. I've had such a significant decrease in my pain levels.
I've also been lucky, in that my insurance hasn't given me any grief. I've seen the bills, and I really feel for people that are paying out of pocket.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
In August I'll be coming up on four years of treatments with orals, supplements, and most recently, IM injections.
At my LLMD appt in two weeks, I will be BEGGING for IV.
I think I've earned it, I think I'm due...I think it's time.
I am counting the days to that appt. I feel like it is my last thread of hope to hold on to.
I would LOVE to have had IVs offered at the one year point, but both LLMD's I have been treated by are not fans of IV treatment, and reserve it for a last resort.
I'm pushing for it now, though~I am way more terrified of NOT getting IV treatment at this point!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Cobweb
Unregistered
posted
So last summer I couldn't swim because of having a picc-but now it is this summer without a picc- and last summer is a distant memory. Small glitch in the whole scheme of things.
I had a SPECT SCAN done prior to picc line. It demonstrated neuroboriolisis (sp) so insurance paid up, and there was minimal cost to me.
I, too , was a wreck prior to the picc. It's one of those things where the anticipation is the hardest part.
Yes Lyme disease is real, and it makes a lot of folks real sick. The picc line also helped me grasp how deeply Lyme was entrenched in my body.
And IV made a huge difference in my recovery.
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I think a little denial of how sick we are is necessary to cope with this disease...
i know it has been for me.
The people around me dont always know how sick i have been... that sick was pretty sick .. pretty sick was terribley sick.. etc...
its also easy for the people around me not to know the true extent when i try to deny how bad it is
Picc line wasnt that bad. Keep it clean though. it is very important
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