posted
There are several ppl that have been posting at Pro Health about Lyme, and getting ppl to get tested, etc. We have gotten quite a few ppl that had been Dx'd w/ fibromyalgia/CFS to get Igenex testing, and of course, they really had Lyme all along.
So, first the Lyme ppl were no longer allowed to post on the CFS board. Now, they are just banning Lyme ppl and deleting all of their informative posts.
It is, of course, in their best interest for no one with *CFS* to EVER discover they have Lyme, but COME ON!
I didn't realize it was this bad.
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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posted
My guess is that they don't make much money off of Lyme members.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
odd, i guess I sort of assumed they were allowing the lyme posts and being more open these days. Guess not.
I go on there for ideas on disability and medicare since most of them are on it or I should say more of them are on it than on here. Good mold postings as well.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey keltyl...
Bless your heart! Thanks for taking a chance and being your own advocate.
Good for you!
A couple of us here have been banned from fibromyalgia boards... I was one of them.. and it was only for posting a scientific article linking fibro and Lyme as a possible thing. I didn't even get a chance to give anyone the what-for... nor did I disrupt anyone.
The site we were tossed from WAS run by doctors who had an interest in their patients pocket books $$.... and truth be buried as far as they were concerned. Plus.. had they sucked them all dry and given them the wrong diagnosis... and...
They would have been sued had word gotten out and had patients found out after all those years they had Lyme.
It is obvious the ducks were scared of the truth... as the patients they misdiagnosed could have been treated properly... and gone on with their life.
emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Hey Tincup,
I got banned from a fibromyalgia group also and I am not even someone that posts alot.
I was just trying to explain to the people on that group that the symptoms of fibromyalgia may actually be caused by Lyme Disease.
But I got kicked off after only one post!!!!!
That was a bit disheartening.
And it seems to me that the ducks just want to treat the symptoms. But wouldn't it be better to treat the CAUSE of the symptoms instead of just treating the symptoms?
I often wonder how many people that get diagnosed by a duck with Fibromyagia and Chronic Fatigue really have Lyme Disease or one of its co-infections.
And it aggravates me to no end that those people suffering with the very real symptoms of Fibromyalgia and Chronic Fatigue could be helped if not out right cured if they were to go to an LLMD!!
Posts: 1223 | From U.S.A | Registered: Jul 2007
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posted
If you have fibro or even just cfs, you are going to buy more of their products than if you have Lyme. I know for me, when lyme came into the picture, my treatments are revolving more around the Lyme.
I have my own theory anyway....sure I contacted lyme as a child and once it had ruined my immune system all these other buggers moved in. Meanwhile, I have been labeled with cfs (amoung other things, actually alot of other things, like being mentally ill). LOL
I really do believe alot of people with cfs and fibro actually have lyme. These beliefs have been the cause of havoc on PH, and they are losing or booting alot of good people.
Sorry everyone, I guess I have run of the fingers tonight (this doesn't happen very often). Usually it's an effort just to read.
Linda
Posts: 847 | From upstateNY | Registered: Dec 2007
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
keytyl: Thanks for the compliment! I got booted from PH today - LOL
They said I had been warned before about posting a URL - I questioned this - it was in 2006!! The administrator said he's going to "fix" things when he gets back from vacation - I scolded them pretty well. I told them to review my posts. I was never rude, only politely offered suggestions and not always about Lyme.
Posts: 1761 | From USA | Registered: May 2006
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posted
mojo....good for you. In case you don't know, I'm wld285 on PH and Lymezone. I sort of screwed things up when I joined here.
I know it gets confusing for me when people change their names on different boards. I have gotten used to your new name now, but some of the others are still confusing my frosted brain.
Linda
Posts: 847 | From upstateNY | Registered: Dec 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
wow mojo, im suprised you were kicked off. Do you think they will let you back.
Again I just assumed they were allowing the lymies to post there.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
... i'm surprised on this! i'm a regular poster on Q/A when i see things where i feel it's definitely LYME and have told them so.
i have given url to here or whatever; no one told me we couldn't!
i had a really long reply and someone else saw it and replied; then POOF ... IT WAS GONE!
i sent them also the FINANCIAL BURDENS compiled by melanie reber and added on by me as someone got new info for it.
THEY PUBLISHED IT ANONYMOUSLY! *********************************
i wrote them immeidately, and said it was me, BETTY G, who sent them this, and i was NOT anonymous when i sent them that. they did acknowledge their error.
a few others things have disappeared as well. ***********************************************
posted
Booting mojo was the final straw for me! She NEVER posted anything rude or argumentive. Only good info regarding Lyme (as well as other things).
They are just trying to silence Lymies!
I am appalled at what y'all are telling me! That ANY post about Lyme on some FMS sites is enuf to be booted???
What does that tell you about FMS/CFS??? They want to keep as many ppl in the dark as they can. That horrifies me, it really does!
It also tells me the link is VERY real, or they wouldn't care if you posted about Lyme.
Too bad for the CFS sites that more and more ppl are learning about Lyme, and can get help.
Just a sad state of affairs!
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Hi former prohealthies! or should I say...poor healthies!
I got banned too! From the lyme board, for posting about lyme! Why do they even have a lyme board if we can't even post there!
You all are right...Rick and Co are all about the $$$.
I will not go back there again. I am happy to say, that the posters there helped me find a Dr that diagnosed me correctly with Lyme. I am even happier to say that I helped 5 people get a correct diagnosis.
I will not give up that fight, I will just go elsewhere to help people.
What a shame...they are just like IDSA, they don't care about people...only the green!
blinkie (now...anti-prohealth)
Posts: 1104 | From N.California | Registered: Jan 2008
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posted
I'd really like to know how many on PH were helped to get a Lyme diagnosis??
From my estimates, it's at least 20. What do you guys think??
We also have people here from www.celiac.com .. sixgoofy and lion are two that come to mind. They found out from my posts and others on the board that they had Lyme.
[I don't mean to be taking the credit here... but know I played a small part in their finding out.]
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Linda - I have too many names, too.
Frankenstein: I knew you were from here but didn't know exactly who - you gave us some great help over there!
I think we've helped more than 20 people over the years. For so long we were able to speak openly to each other on the Fibro/CFS board. So silly.
I only bought my vitamins from PH. I will miss them but I'm sure I can find something good at vitacost.
IMHO The Lyme Community (capitilzed on purpose!) is a very committed and powerful group and I think it's a bad idea to mess with us.
Posts: 1761 | From USA | Registered: May 2006
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posted
I have been a regular on the ProHealth CFS/FM board since getting CFS 2 years ago.
I was diagnosed with lyme ONLY 3 WEEKS ago! The only reason I thought to consider lyme and knew to get tested through Igenex was because of fellow posters like Mojo and Blinkie who suggested lyme and then answered all my questions regarding testing and finding an LLMD.
I have not yet been banned from PH, but am prepared for that possibility.
What I find most disturbing about the PH censorship is that they continue to allow controversial posts about other topics, but are axing anything and everyone connected with Lyme.
Posts: 408 | From California | Registered: Apr 2008
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posted
Erica, I noticed that also....if you go to the CF/FM board, many people talk about cancer, transfer factors, aids, off topics and other stuff but those posts have been allowed to stay on that particular board.
When LD gets mentioned, the posts are either moved to the LD board and/or deleted in whole.
I've lost a great deal of very valuable information off that site. I have no idea where to begin to find it on the internet.
Many compassionate people have taken their time to go find this information and post it there only to have it removed.
I just wish everyone could get along. What is wrong with lymies helping CF and FM folks and vise versa?
We all are experiencing basically the same things except some of us have official DX's to back our symptoms.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
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posted
Hi I'm LIESANDMORELIES I was the second one banned recently in this rash of censorship at PH...Femme was first and as you can see there have been others too i/e blinkie, mojo and the list goes on....
I am very thankful that ppl helped me there at the time to find out that I had Lyme....
It's obvious what they are doing, or else why would this just be happening to Lymies...
I have found this site and lymezone and will be frequenting these from now on...You can read my story there.
We must all band together to help people with Lyme.
I have moved past this and will continue in my own little way to help people....I am proud of what I have done to help with this fight.
This is nothing new for us and will only make us more resilient.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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quote:Originally posted by mojo: IMHO The Lyme Community (capitilzed on purpose!) is a very committed and powerful group and I think it's a bad idea to mess with us.
YEP!!!
Hi liesandmorelies!! I recognize that name! Now I feel sad that I didn't work harder on that board with the time I had!
I have my hands full over here, but could have spent more time over there, darn it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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I believe it could be at least 20 in recent times and probably much more. Many are still finding out....It would be great to know....I have been saying we are like Harriet Tubman and the UNDERGROUND RAILROAD....This whole thing is going to explode when more and more evidence comes out.....
It feels so good to know when you have helped someone. I'm happy you feel the way we all do.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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Thanks to everyone that has helped others to get the correct Dx! I feel good for each and every person that has been helped.
I only wish more could! That's all!!
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
Update
They reinstated me with a rather rude email. I never asked to be reinstated. I replied to the email to please remove me again.
My sister, Dar (aka mollystwin or twingirl) asked to be removed so they "banned" her. They just throw that word around.
Any way - I'm done being negative - I've been spending more time here and at lymezone lately. What I really like over here is I can ask a health question and get a lot of answers due to high traffic and lots of experienced lymies with many protocols.
posted
HI Bunnyfluff, It took me a few days to remember how to post a reply on this board, I;m such a lyme tard!! Anyway, just wanted to say thanks for posting this thread. I think it's important for people to know when we are being discriminated against!!!
dar
-------------------- dar Posts: 95 | From michigan | Registered: Sep 2007
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posted
I was banned by PH back in 2005. I was never argumentative, rude, or disrespectful to anyone. I was slammed by one member on the Fibro board and I found myself banned and the other poster stayed...go figure. (The member did not believe in Lyme).
All of the information I had posted, be it Lyme, FMS, CFS, support was deleted. I believe 5-6 people from PH came here to Lymenet after that banning.
Everyone here welcomed us and we found a new home. But it still hurt me and I feel a lot of good information was lost from them deleting my posts.
Not sure what the reasoning was, I wrote them a nice letter explaining how I felt Lyme awareness would be beneficial to all of us and PH was kind enough not to reply(sarcasm). They have their reasons, we just don't know or understand them.
For those of you recently banned; Welcome! The members here are very supportive and full of great information. I am sorry that you lost good friends and a daily support that helped you get through each day at PH, but now you have us.
Wonderful, supportive members/friends and outstanding information. Foggedup
Posts: 106 | From Texas | Registered: Jun 2005
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posted
But on the other side of the coin, if somebody was to post here about CFS and how so many people here are misdiagnosed with lyme, he/she would get booted off. Plus CFS treatment is pretty much the same as Lyme, except maybe for the LLMD.
Posts: 13 | From U.S of A | Registered: May 2008
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Plus CFS treatment is pretty much the same as Lyme
Really? They treat CFS with bicillin, flagyl, zithromax, amoxycillin, tetracycline, minocycline, tindamax, doxycyline, etc?
Studies to support this statement?
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
lymecarnitas said:
quote: if somebody was to post here about CFS and how so many people here are misdiagnosed with lyme, he/she would get booted off.
i don't recall anyone getting banned from lymenet for posting about misdx of lyme.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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RoadRunner
Frequent Contributor (1K+ posts)
Member # 380
posted
Plus CFS treatment is pretty much the same as Lyme
Really? They treat CFS with bicillin, flagyl, zithromax, amoxycillin, tetracycline, minocycline, tindamax, doxycyline, etc?
Studies to support this statement?
you forget IV rocephin, biaxin
RR
-------------------- "Beep Beep" Posts: 2630 | From ct | Registered: Nov 2000
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posted
Yep definitely they use antibiotics as well, also antivirals. For example Garth Nicolson Ph.D. has his own theory that some cases of CFS are related to mycoplasm infection.
and herbal protocols are the same, nutritional supplements, etc
Posts: 13 | From U.S of A | Registered: May 2008
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posted
I was never treated with ABX with my FM or CFS diagnoses. I just don't know about that statement you made.
I for one am glad I am here at LymeNet....I have found tons of support from many members that live in my area.
Thank you all that cared to help me figure out why I was feeling like I did and to understand the symptoms I had, to find a doctor to treat me and all your support.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
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emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Professor Garth Nicolson is not a typical scientist.
Dr. Nicoloson believes that Chronic Lyme Disease exists. Dr. Nicoloson believes in long term oral antibiotics and believes in IV antibiotics as a treatment for Lyme Disease. Dr. Nicoloson speaks at ACAM conferences.
So Dr. Nicoloson's views on how to treat CFS and Fibromyalgia are not shared by the majority of the medical doctors.
I wish they did share professor Nicoloson's views though!!!!
Professor Garth Nicoloson's ACAM presentation about Lyme Disease.
The typical medical doctor or "DUCK" as some people call them would not usually prescribe long term antibiotics or anti-parasite medication as a treatment for Chronic Fatigue Syndrome or Fibromyalgia.
Well, I should say that didn't for me anyway.
And it would probably never occur to the average medical doctor that maybe the real cause of Chronic Fatigue Syndrome and Fibromyalgia could be Lyme Disease.
So therefore the average medical doctor would not prescribe antibiotics as a form of treatment for CFS or Fibromyalgia.
This needs to change though.
Posts: 1223 | From U.S.A | Registered: Jul 2007
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You can search old posts by going to the top of this page... [actually you may want to access it over in medical... or be sure to change the forum to medical once you get there}
Look for the little word "search".
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Evergreen, Welcome....I understand the being tired part. I wish you healing and recovery from this DD.
To all, FYI. I believe there are some ppl who are undercover and don't want us to know what the true cause is of our Lyme Disease. I believe there are those that are paid to keep us from finding the truth. These ppl obviously have the energy to go around and ban ppl from sites and follow them around and bash Lyme etc....
We must stay strong in our fight against this horrible disease.
Have a good day! Also when I rcvd my FM/CFS dx I was never given any ABX. I believe they are few and far btwn too. If they have been perscribed, that is great and many of these sufferers would be clued in to the fact they may have Lyme.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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You guys gave me such good advice and direction and then suddenly you were gone!
Nice to know I know where to find you when I finally get tested!
I'm so shocked you got banned!!! Absolutely furious. Had I not seen your posts on that website, I might never have decided to challenge the status quo dx of fms/cfs.
You may have been banned... but I certainly see this popping up and being questioned by a lot of people on the PH main board. They heard you! The gears are turning and you made a difference!
For example... i just noticed a couple of people that I never saw post on the Lyme board just up and out of the blue post that they just got diagnosed with Lyme! CDC no less!
Of course by the time I go back and check on these threads they will probably have been poofed!
I just wanted to thank those of you that helped me and let you know that even though you've been silenced, many heard you and many are questioning the status quo!
-C
Posts: 19 | From Mississippi | Registered: May 2008
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
evergreen: I remember those cigarette and boob job threads. I was shocked, too. Welcome.
Celestia: So glad you found us - we are here at lymenet and also at lymezone dot org. We were very worried about folks finding us - so glad you did!
Posts: 1761 | From USA | Registered: May 2006
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Just noticed you were here and wanted to say hello. So glad you found us. Thanks for the nice comments about all the Lymies good work at prohelpless... I pm'd you! Hope you get it.
Hugs, LAML
PS PROHELPLESS JUST BANNED SWEET ERICACFIDS YESTERDAY FOR TRYING TO HELP SOMEONE!!!! CAN YOU BELIEVE THAT??????
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
| IP: Logged |
posted
I got the BAN too.........for what? For posting about being a good samaritan and helping others.
I give up....I hope the others over there can find their way to this site. It's a total shame that this is happening and I get the feeling someone is trying to hide something over there.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
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Ericacfids is the sweetest poster I know and she helped so many.
What a shame!!! I will say this though, these nut jobs over at prohelpless will have to answer to a higher power as they will be held responsible both morally and ethically for keeping people from finding out what is possibly wrong with them.
They will be punished one way or another. Karma has an interesting way of going around.
These nut job psyche/K posters and nut job moderators are keeping people from finding out if they have Lyme. How mean and evil would you have to be to stoop this low????
Believe you me, these moderators at prohelpless and wacked out posters are living with the guilt and shame. The problem is they live with it and are proud of it. They are truly that evil, mean, corrupt and hateful.
We were trying to help people find out if they "had" something, they are trying to "keep" people from finding out if they have something. They can spin it anyway they want, but it's very obvious.
We must keep up the good work by spreading all the nasty little details of this DD, until every person gets it.
DIE LYME DIE
I tend to believe in Karma and believe what they have done will be rewarded with a huge punishment!!!!!
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
| IP: Logged |
posted
Thanks for finding me guys! LAML and PJ pm'ed me about Lymezone as well and I have applied. Thanks!
I haven't been banned from PH yet, but that's probably only because I haven't been diagnosed yet. I keep expecting it as anytime I post about anything re: Lyme on the main fibro board, those posts just "poof" disappear.
Anyway... headed home to Texas to check on my dad for Father's Day.
Have a nice weekend and Happy Father's Day to all the Father's out there!
-C
Posts: 19 | From Mississippi | Registered: May 2008
| IP: Logged |
posted
One of the senior members there baffles me. She has had severe FM and CFIDS for 15 years and was on morphine a long time ago for pain. She posts her latest "therapies" or attempts to improve her health in great detail and seems to want to be the group guru.
I asked her repeatedly if she had ever considered an Igenex test for lyme or for a western blot test . She was repeatedly evasive or basically in denial that lyme could be a possibility , despite the fact that many of us were getting strong positive DXes with lyme at Fibro Fatigue Centers . I was puzzled that she wanted to be viewed as the expert of CFIDS /FM but would not consider a KNOWN disease as a possibility .
Basically they became rather nazi like in the moderation , and it was not attached to reasonable standards .
posted
CFS is just a description of symptoms, not a "thing" as Bb infection is. CFS is also a diagnosis of exclusion.
That means is NOT possible to say that one doesn't have Lyme because he/she has CFS.
But it IS possible to say that one doesn't have CFS if he/she really has Lyme.
The resistance of the CFS community is sad, since so many of us here were once diagnosed with CFS and only got better with antibiotics from an LLMD. Which, limecarnitas, almost no CFS doctor prescribes - at least not the ones visited in the past by many people on this board. I saw two very prominent CFS doctors and the subject never came up. All they offered were useless treatments that got me nowhere. Unless they've changed their tune in recent years?
Posts: 621 | From US | Registered: Jun 2006
| IP: Logged |
posted
I know quite a few more have been banned recently as I keep in contact with them. Banned for NOT violating rules either but because several members there are chronic complainers and report ever single post they don't agree with.
PH is not what they appear to be and I found little to no support there for my Lyme Disease.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Well I think I was the latest one to be banned from PH. Just found out today! Still don't know what I did wrong.
I was diagnosed with FM over 2 years ago, just got my Lyme diagnoses 6 weeks ago.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
posted
I have not yet been banned from PH, but do not post much anymore since I get blasted whenever I put the word Lyme in a post.
It's all about the $$$ there, and I had recently ordered some supplements. Probably that's why I'm still ther. Some of the posts have been deleted though.
My guess is that in the near future they will be coming up with supplements for Lyme. And as for the other board mentioned, they are completely crazy there, will bbe asking soon for them to remove me.
I learn so much on this board, thank you!
Posts: 847 | From upstateNY | Registered: Dec 2007
| IP: Logged |
It would do no good to tell you who is running that board, because they think the only way to win against this disease is if you are totally in their camp and only their camp.
This so called Lyme board has even sided with the ppl who have been cruel to Lymies at Pro-Puke and they also try to act as if none of this cruelty has been going on, even though they themselves had to ban someone for harrassment who followed us to that site.
Even one of their administrators has called pro-puke names and yet the other administrator is pretending to be mad that we call them Pro-puke just to make us look bad. They are very hypocritical and say one thing and do the same thing themselves. I wonder if these two Administrators are even on the same page.
They have decided to choose sides with pro-puke. They can spin it however they want, but everyone knows of pro-pukes reputation and all the many ppl who have been banned there for speaking their mind about Lyme Disease over the years. It's pure censorship.
This so called Lyme board as recently as this week made fun of a member who takes some meds to survive daily life because she has to support a family alone and could never survive on SSDI alone. This so called board basically implied that this member was a druggie. It was the most mean, hateful thing I think I have ever read on a board to date. And what's more sad is that it was done from one Lymie to another just to further the appearance of their camp "C" stance and to take credibility away from this person.
Well, that backfired on them too!!!
I don't think it's even worth mentioning who runs the board there, because I don't think we should pay them any attention and besides, the posting frequency at that board has become non- existent now anyway because all the really active members are no longer there or are no longer posting, because they are disgusted.
I am happy that we can agree to disagree here.
I would hope that that other board would come to their senses and make a public apology on their site. This was beyond anything that I have ever seen. I fear if they don't do this ASAP then their site will be doomed for life.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
| IP: Logged |
posted
I got banned from prohealth too and all I did was try to help lymies get diagnosed.
Even had help from my buddy frankenstein a few times. I went back a while ago and counted about 40 people who we helped get diagnosed. And about a dozen more are seriously looking into lyme so we helped a few-pj
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
| IP: Logged |
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I recognize that name! Now I feel sad that I didn't work harder on that board with the time I had! ![[group hug]](graemlins/grouphug.gif)
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