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Originally posted by Lizzie55:
My boyfriend found this community for me! I am happy to find people like me, I am becoming extremely frustrated, but trying to stay optimistic.

Here is a shortened version of my story: I work as a veterinary technician in Connecticut. That line says it all, I come in contact with cats and dogs every day that have ticks on them, we have tick jars in every room label tick morgue. That's were we put the bodies, the bodies that are causing all of such harm. Here's a good trick submerge the tick in alcohol and leave it in there, it will die.

I have been relatively healthy my whole life (could lose some weight though) so when I was hospitalized in July 06 we had no idea what was going on. I was 25 years old. The best way to describe it all my limbs, and face felt extremely heavy, it was hard to move anything, like I had lead weights all over my body. I my face felt heavy, and I had slurred speech. My body had tingling and burning sensations, and migrating pain in all kinds of areas-joints and bones. I had trouble walking and swallowing, and with fine motor skills like writing. This first episode lasted many hours. Initially I had a cats can, MRI, blood work, cardiac ultrasound, they found nothing obvious and sent me home. I was like this for 24 hours at a time. My first neurologist had me do more blood testing, an EEG and a spinal tap.
The EEG had slightly abnormal brain wave activity, and my spinal tap had antibodies for mycoplasma bacteria. I had 3 lyme disease tests over the first few months, and repeat MRI. A second 24 hour EEG that ruled out seizures. A second neurologist gave me a ``working diagnosis'' of severe migraines and put me on gabapentin.

For a long time I had been living with this. My systems were very cyclic. I would be okay at times, but still have pain, and tingling. It flairs up and I have times of the heaviness where I have trouble walking, moving around, and slurred speech. It can last for an hour to many hours. I haven't figured out a pattern to my flare ups, definitely stress can make it worse. Periodically, I would have more blood and see more doctors, I had two inconclusive lyme tests.

Other symptoms have had ringing in ears, temporary hearing loss in one ear, loss of taste, dry mouth, trouble swallowing. These are not very frequently. I do get very dizzy and extremely tired easily. Lately, I have been a bit foggy with my thoughts.

This went on for a 1.5 years until Jan 2008, I went to an LLD. She started me on doxycycline. I finally tested positive for lyme disease from an IGENX. I have since been on doxy for 4 months, then biaxin for 2 months and now amoxicillin.

I have been having very bad herx reactions, but they don't seem to have any patterns. I have been missing so much work, and am lucky to have a job still. I am not sure what medications are preferred; I imagine it depends on your symptoms. I do have an appointment with good LLD in South Carolina, Dr. J. Anyone have a good outcome with him?

I am sorry my post in so long. I welcome any information and I am so happy my boyfriend found this page for me. Thank you

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