posted
I am a spouse of someone suffering from the later stages of Lymes. My husband has gotten Meningitis and encephalitis along with what was finally diagnosed as Lymes. After the typical circus of seeing over 7 doctors, he has now seen a Lymes doctor (EXPERT) who is outside our HMO. He is finally on the right road to recovery and is on an aggressive antibiotic treatment plan.
I write this now to thank everyone who responds on this forum as a life-saving support system which helped lead my husband to a doctor that could actually help him and treat him. As we went through the last whirlwind of what felt like a never-ending almost two years of not knowing what what happening to him, accompanied by doctors making him feel he was a hypochondriac and someone "labled" as "Oh, another guy with anxiety issues", this forum site was our only sense of reality that what he was going through was based on a real illness that doctors do not understand or understand well enough.
This forum was our only support to know that what he was feeling was normal for a classic Lymes symptomes.
It has been very hard, and scarey to watch someone you love go through personality changes, crying with horrific headaches, SUFFERING from bizzare (to say the least) symptoms, going through "foggy" periods, and periods of forgetfullenss. It honestly felt like he was dying. We were on a road of going to the Emergency room many times in one month. It felt like he was sliding downward.
I am very thankful my husband continued to research his symptoms on the web, and link onto this site. With the combination of findings from multiple tests at the doctors (most of them showing inclusive findings yet some proving there was evidence something was wrong), he was able to find a doctor who could help him. It is such a relieving feeling to see someone who believes in your symptoms and is educated enough to tell you what is going on and get you on the road to recovery.
Without my husband asking questions on this site, "we" were feeling very alone in his suffering.
So, again, I just want to personally thank all of you for caring for others. This forum reflects compassion we seem to be slowly loosing in our todays society.
If you don't think your postings make a difference. You are absolutely wrong!
May God Bless each and everyone one of you!!!!
Thank you Again! : 0 )
Posts: 2 | From Wisconsin | Registered: Aug 2008
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posted
Dear Lymetoo, Thank you for your wonderful comments. After reading your story, you are an inspiration to keep fighting the good fight. I feel so bad after hearing your story. You have a wonderful dispostion though, and the way you cope with life sounds like what has helped you to manage through the challenges life as presented you with.
Again, God Bless You, and give you peace and happiness in your life!
Posts: 2 | From Wisconsin | Registered: Aug 2008
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi KLK,
Welcome, welcome!!!
Am so glad that you and your husband found this site.
I know it was a real lifeline for me also.
So glad to hear your husband is improving.
Hang in there!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6149 | From Columbus, GA | Registered: Jul 2004
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bettyg
Unregistered
posted
klk,
what a wonderful surprise to come on here and read your heartfelt thank you note from you and hubby about how much LYMENET MEMBERS have helped him/you thru this devastating IT'S ALL IN YOUR HEAD DR. MENTALITY!!!
thanks for taking the time to say to us all, YOUR WORDS COUNT AND MEAN SOMETHING TO THOSE OF US SUFFERING!!
please pass along our site to others who MIGHT/ARE going thru lyme/co-infection journey!!
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posted
I agree, KLK. People here put in volunteer labor time the equivalent of a job! Constantly here for people coming on for help. This group is amazing. Thanks for your appreciation and I hope your husband continues to improve.
Posts: 13116 | From San Francisco | Registered: May 2006
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