posted
I've been off-line for months, and really missed you all. Short version of what's happened:
Was actually improving on IM Bicillin over the winter (although early herxes were really awful -- better now).
This past May, started having really bad belly pain.
Starting in June, during a six week period, I had:
- 3 trips to the ER - 2 belly surgeries - 1 diagnosis of a rare condition
The rare condition is "Mucosal Fibrosis". In my case it's located in my small intestine (they removed six inches of it - the "condition" caused a partial blockage which we HOPE was causing all my pain).
I have very little information about Mucosal Fibrosis. Bottom line: I do not fit any of the normal risk profiles, and no one has a firm idea of what caused it.
Has anyone heard of this, especially in relation to Lyme or other TBDs? Any help would be greatly appreciated.
And I'm SO glad to feel good enough to be back on line with you all!
Elizabeth (Who has changed her name to Serena, meaning peace, which I want more of in my life. I did this instead of getting a tattoo for my 50th birthday. More work, but less scary!)
minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Suggest you post this in Medical, where a lot more people will see it.
Sorry, I'm not familiar with this dx -- but have suffered a lot of strange gut stuff caused by LD and Co, that also resolved with LD tx. Best of luck in getting to the bottom of this one.
-------------------- ********************* RECIDITE, PLEBES! Gero rem imperialem! (Stand aside plebians! I am on imperial business.)
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic