everyone has thought I was crazy at some point and many still do.
It's the never ending struggle of trying to educate people so they might understand.
As time is passsing though, it doesn't really bother me any longer what people think.
The people who are worth anything have stayed or come back around and have opened their mind to understand.
The rest we don't need.
Posts: 12 | From Texas | Registered: Apr 2008
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
It's quality not quantity that counts!!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Eric, quite typical - people usually just don't understand. Our lives have been altered in significant ways by a still poorly understood condition (hopefully that will change soon as more publicity gets out), yet most of us look ok.
Hey - maye we oughta start something here - how about if we could figure out how to get something visible, like green measles, or something like that? Little green spots showing up all over us? Then people would see something... (that's a green measle with some teeth)
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I have become reclusive because I just cant stand people telling me how good I look.... with the unspoken heavy in the air of 'how can you be sick if you look so good?'
Posts: 234 | From BC Canada | Registered: Aug 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Yes ,,, the friends i had before i was disabled are long gone...
besides here at lymenet i have found understanding people on chat and lymefreiends
quote:Originally posted by Robin123: Eric, quite typical - people usually just don't understand. Our lives have been altered in significant ways by a still poorly understood condition (hopefully that will change soon as more publicity gets out), yet most of us look ok.
Hey - maye we oughta start something here - how about if we could figure out how to get something visible, like green measles, or something like that? Little green spots showing up all over us? Then people would see something... (that's a green measle with some teeth)
Robin, if ever in Phily, look me up, since i still know how to draw real well, I can make some measles on you in any color you wish, this just might work...
Posts: 570 | From philadelphia, pa | Registered: Dec 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
sad but true.
i even have a nurse friend and she doesn't believe me.....
you loose so much....
and when your spouse doesn't believe you, it's even worse....
we are truly alone....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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quote:Originally posted by Liz D: I have become reclusive because I just cant stand people telling me how good I look.... with the unspoken heavy in the air of 'how can you be sick if you look so good?'
I HATE hearing that. It really makes me mad now. So I tend to not talk about it unless I have to. Luckily my family listens. Not sure how they really feel about it... but they will support me no matter what. Also, I agree with a previous poster, it's quality that matters.
-------------------- I am so sick and tired of being sick and tired!!!
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(that's a green measle with some teeth)
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