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» LymeNet Flash » Questions and Discussion » General Support » Herx' hypersensitivity, irritability, etc

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Author Topic: Herx' hypersensitivity, irritability, etc
BugBarb
LymeNet Contributor
Member # 210

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Just needed to talk.

I've been on Ceftin 500mg twice a day since new year's eve. The first two weeks were awful. Fatigue, aches, increase in neuropathy, hypersensitivity to sound, irritability....The symptoms have lessened, but not gone away.

I was absolutely miserable for a couple of days and put in a call to my doctor for approval to increase my neurontin (which really helps) for pain and other relief. I thought that he would call me back that day......no, it wasn't until Saturday afternoon, a full 24 hours later that I got a call back. I'm grateful for the ok to take as much as I need, but I really could have used it yesterday.

I'm tired of feeling crapppy. Before the ceftin, I had severe neuropathy that responded well to neurontin, but I felt good/great most of the time. Now, I feel crappy most of the time and have brief periods of feeling good. And when I feel good, it usually means I have taken my med's, not that I really am feeling good.

I switch between being able to stay up til' midnight to falling asleep at 8pm. No warning. No discernible pattern.

I've been spending most of my online time on the ADA Type 2 Diabetes discussion board, because I now have diabetes to contend with. Between being bipolar, having lyme, herxing, checking my blood sugar, feeling guilty for not exercising regularly and watching what I eat [dizzy] and it being pms time......I have to work really hard at not coming apart at the seams.

My poor cats. I get irritable and can't stand them touching me. I yell at them. They retreat like...Barb is in one of those moods, let's go hide. It isn't their fault. Poor kitties, all six of them. Poor husband, all one of him.

thanks for listening, barb

--------------------
Lyme is like the flu. You can get it and recover, but you can always get it again.

Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
bettyg
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oh barb! [group hug] [kiss]

when it rains, it pours! uffda.

not on your meds, but feel for you as i was dx with type 2 diabetes 6 mo. before my correct lyme diagnosis 5 yrs. ago. it's hard alright.

i'm to give up gluten/wheat and dairy...milk, cheeses, egg white, and garlic. i have NOT succeeded on that one.

so many things to contend with; sound off anytime ok! [Smile]

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Geneal
Frequent Contributor (5K+ posts)
Member # 10375

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I feel like that sometimes.

Don't want to be touched, talked to, questioned, etc.

I just pray....... a lot.

I ask God to help me be at peace so I don't

Hurt my children's feelings or my husbands'.

This disease takes so much from me.

I don't want it to take from my relationship with my most precious babies.

I pray.

Praying for you and hoping that you get to feeling better soon.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
BugBarb
LymeNet Contributor
Member # 210

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Thanks for the suppport.

Today is a good day right now.

My husband asks why I'm cranky....I just am. He lived through my lyme 12 years ago and is using the same coping skills now. He locks himself up in his room....stays away from me.

I'm able to be nicer with the cats due to more pain medication. It is good for me to hold them. Each one has different therapeutic powers.

I have finished my basic tasks for today
which were to find out why my disability payments weren't resumed....(I have to have the doctor fill out new medical forms...easy one.) and to file a claim on my long term disability insurance....

(problem with that is there is a one year limit on filing. Due to my brain, uh duhhh, I have only 2 weeks left to get all the paperwork in. This includes documentation from the atttending physicians...and how many have I seen? Three neurologists and my primary care doc....I haven't seen one doc for over a year and another one I dumped about six months ago. Good luck on trying to get them on board. Can't hurt to try.)

I feel so much calmer, knowing that I don't have to suffer.

I can take the pain med when I need it,
because of the lifting of restrictions by the doctor. I can take it continuously, so the pain/hypersensitivty doesn't seep back in. The doc said that it one can't take too much of this stuff because the intestines only are capable of absorbing a limited amount. That is why I have to take small amounts, several times a day for maximum relief, rather than a large amount all at once.

I deal with the noise of washing and putting away dishes by wearing industrial hearing protectors as well as ear plugs. Even then, I can only stand doing a small amount at a time.

--------------------
Lyme is like the flu. You can get it and recover, but you can always get it again.

Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

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