Topic: Trying to start a Lyme Disease Support Group in NJ
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
To All:
I am interested in starting a Lyme Disease Support Group in Sussex County New Jersey. If anyone would be interested in getting together once or twice a month to discuss anything and everything about Lyme & the obstacles and everyday challenges from this disease, please feel free to contact me.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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posted
I would come if it was on the weekends, work times and travel make it impossible for me to go meeting during the week unless it starts really late.
Posts: 526 | From NJ | Registered: May 2007
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Radfaraf
We are planning on meeting twice a month....one meeting will be from 4-5pm and the other would be 8-9pm.. we are still in the process of finding a location and picking the day of the week in which we would meet. Please feel free to contact me at through a private message...Katie Reynolds.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks for the link... I will definatly check it out! We are in the process of starting a Lyme Support Group in our area and have been getting responses and phone calls so it seems like there will be a great turnout out here... Can't wait!!!! Thanks again!
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
To All:
Thank you for responding if anyone know of anyone else that would attend the meeting please let us know... I will get back to you within the next few days regarding the place and the exact day of the week the meetings will be held on.... we are hoping to have as many people possible at these meetings so please pass the word on!
Thanks Again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
I would probably be able to make 8-9PM (Monday - Friday, weekends anytime is ok) unless the group ends up being farther away than I think it will be.
One way to run the group might be with meetup.com, unfortunately they charge the group leader for this. It would get the group a bit of exposure for other potential members to find it.
Also as mention above lymefriends.com would be a good place to post, there are several people in a NJ group on there.
Posts: 526 | From NJ | Registered: May 2007
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Radfaraf:
I am hoping to get 2 mondays a month... I was planning on doing a 4-5:30pm and then a 8-9:30pm. The 8-9:30pm would work for you?
I am tryinging to get a location in the sparta area.
I am going to try thoses sites you & Tracy9 mentioned. Thanks again for the link!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
To all:
It looks like our meetings will possibly be held at the Lafayette Township Munincipal Building right off Route 15.... Thats not final though... we have called several places in Sparta and they are not giving us an answer. We want to get this support group rolling.... As soon as we get a location we will be posting our support group in the NJ Herald soon and posting flyers all over. The group is called The Lyme Disease Support Group of Sussex County... Thanks again and if anyone has any questions feel free to call or ask. Roy & Katie Reynolds
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
katie,
may i suggest you delete your home email and telephone no?
we have healthy TROLL troublemakers who come here daily collecting this info and then HARASS those who post their home info!!
we have PRIVATE MESSAGE, pm, that works great and both yours/their home email addresses are kept SECRETY!!
you can share your home/phone info in a PM w/folks interested.
just trying to keep you/others SAFE from those preying on us sick folks.
to edit, click on PENCIL, 3rd box to right, and there were 2 separate posts giving out your home info. i suggest deleting that; they can PM you for that.
BEST WISHES on getting your support group up and running! it will be a success!!
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Betty G,
Thanks for the advice... wasn't really thinking but you made a very good point... Anybody interested should contact me through a PM and then we can talk further..All private info has been deleted. Thanks again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
| IP: Logged |
bettyg
Unregistered
posted
katie, thanks for understanding, and good luck on a good turn out!!
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posted
8-9:30pm would work for me. Looks to be roughly 1 hour to Lafayette, NJ for me in Bergen County.
Posts: 526 | From NJ | Registered: May 2007
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bettyg
Unregistered
posted
breaking up katie's post and adding this...
have you checked with YOUR LOCAL LIBRARY? we are allowed to meet there FREE?
or how about a hospital conference room if you have a hospital there? betty ... again FREE!
quote:Originally posted by Kreynolds:
To all:
It looks like our meetings will possibly be held at:
Lafayette Township Munincipal Building right off Route 15... . Thats not final though...
we have called several places in Sparta and they are not giving us an answer.
We want to get this support group rolling.... As soon as we get a location we will be posting our support group in the NJ Herald soon and posting flyers all over.
The group is called Lyme Disease Support Group of Sussex County...
Thanks again and if anyone has any questions feel free to call or ask.
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