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» LymeNet Flash » Questions and Discussion » General Support » A day that will live in infamy: DIAGNOSIS CONFIRMED!

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Author Topic: A day that will live in infamy: DIAGNOSIS CONFIRMED!
MissMari
LymeNet Contributor
Member # 11274

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After 14+ years,

one faintly positive Lyme IgM 9 years ago,

multiple tick bites,

multiple EMs (with photos),

a dozen other diagnoses,

$$$$$$$$ of other tests and treatments from general practitioners, internists, orthopedists, rheumatologists, neurologists, psychologists,

$$$$$$$$ in medical leaves and lost jobs,

and family and relationships gone down the crapper...... [toilet]

MY NEW LLMD, WITHIN TWO VISITS, A COMPREHENSIVE EXAM, THOROUGH HISTORY, AND $2600 IN LABS LATER...

FORMALLY DIAGNOSED ME WITH CHRONIC LYME TODAY!!!!

AND NOTHING ELSE!!!!! [woohoo]

I broke down and blubbered like a baby in his office.....

He said he is used to it.

WORTH EVERY PENNY!!!!!!!

AND I got meds!!!! [Big Grin]

THANK YOU GUYS!!!!!! (esp TinCup, mtree, and OptiMisTick) [group hug]

--------------------
The Bite: July 1995
Next 13 years: Treated for things I didn't have
Symptom total: 45
1 faint Lyme IgM May 2000
5 More negative tests
IGeneX says YES! 3/16/09
Finally feel human: 2012

Posts: 120 | From Plainsboro NJ | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
JaimieB
LymeNet Contributor
Member # 19076

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I feel like saying congratulations but its really nothing to celebrate. However, living with countless symptoms and the unknown is AWFUL!! I am glad you finally got an answer and are on the road to recovery!!
Posts: 171 | From the land of oz | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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welcome officially to OUR CHRONIC LYME CLUB! [Smile]
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375

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I knew you were one of us "very special" people.

So glad you know.

I cried in relief too when I finally was diagnosed.

I could only say "Thank you" to the nurse who called to tell me.

Keep us posted on how you are doing on the meds.

Let us know if you need anything.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Put on your dancing shoes momma, we're going out tonight!

 -

 -

 -

 -

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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We'll have lots of

 -

And...

 -

And... the special part.

Meet your date... a rather cool kind of fellow...

 -

And when the fun is all done...

Here is what you can tell all those ducks!

 -

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Ocean
Frequent Contributor (1K+ posts)
Member # 3496

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MissM,

yea!! So glad for you! I was SO relieved when I got my diagnosis too!

It's so comforting (in a strange way) to know what has been wrong for years and years.

Are you starting treatment now??

Take care,
Ocean

--------------------
http://www.healingfromlymedisease.blogspot.com/

Sick since 1996...Diagnosed 10/2008

IgM:23-25 IND, 31+++, 39 IND, 41 +++
IgG: 31 IND, 41++, 58+

Posts: 1619 | From Ohio | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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 -

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
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[woohoo]

Hopefully (yeah, that's a sad statement) I'll be joining you in a few weeks.

I'm so ready to be done with the uncertainty!

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
mtree
LymeNet Contributor
Member # 14305

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oh happy day!!! [bow]

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

Posts: 968 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
DaveNJ
LymeNet Contributor
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MissMari,

i am so happy for you. You are now an offical card carrying member of NJ Lyme club. If you need something please let me know.

Dave

--------------------
On my journey to wellness - One day at a time.

Posts: 989 | From NJ | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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GREAT!! Now that you know, you can now GET WELL!!!

I hope you have found a great LLMD... sounds like you have!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95414 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Now see what you've done?

I am STILL up dancing and prancing for you!

Shake your bootie... shake your bootie!

Don't ya LOVE those nights when you are WIDE awake at 5 AM?

[Eek!]

I should be dancing, yeah.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Leelee
Frequent Contributor (1K+ posts)
Member # 19112

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I want to say congratulations (in the best possible way)!

I am sorry you are struggling with this disease, but it is wonderful that you now have a diagnosis and can start the road to better health.

For years and years I have suspected that I have Lyme Disease, but like you and so many others, the diagnosis and treatment are not forthcoming.

My first appt. with a LLMD is March 17 and I am literally counting the hours.

I'm wishing you a ton of happiness and good health as you go on through this journey.

--------------------
The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Need Lots of Help
LymeNet Contributor
Member # 18603

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CONGRATS!!! I am new to this too!

I was happy to finally know what was wrong with me too.

My husband said I wouldn't be happy, I would still be upset that I am sick. And, I am, just a little, but I have a path to follow now.

I know there is a chance, and I am going to try to beat it!!

Shalome

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

I am so glad you are getting treatment, finally.

I remember the day I saw 3 positive Western Blots for lyme, babesia, and an ehrlichia (HME).

My ND had ordered the tests from Igenex because my GP would not do the right test.

When I saw the results (in '97) two decades of illness made sense. I thought, finally, a chance for life.

But I was shocked I when I could find no MD in my state to treat. Most violently discounted the tests and my symptoms.

It would be long before some of the books were out that are now helping me.

I am so glad that you have a good LLMD - as least now you know how to proceed.

Best of luck.


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
MissMari
LymeNet Contributor
Member # 11274

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Well, I almost want to use Groucho's old line about not wanting to be a member of any club that would have me....

And on one hand, this is a bugger of a club (I know, bad pun, I slap my own face!) [bonk]

But on the other, it is filled with the BEST people! [spinning smile]

And so I just want to thank ALL of you and send you a bug hug! [group hug]

I honestly would not even be here today without your caring and support --- I mean that with all my heart! [Big Grin]

And I have to say that although this is not a diagnosis I would wish on anyone, the gratitude that I have for all of you as well as my LLMD

Is because of the VALIDATION that was given to me!

I think that is such a huge, important part of dealing with this disease.

SO --- Started the doxy Tuesday.... today I feel like the bus ran over me, and backed up over me, and ran over me again

Parts of me hurt that I never had hurt before, fever, chills, headaache, muscle aches ---- you know what I'm talking about! [dizzy]

But I knew to expect this herxing, so I'll just ride it out.

And again, on one hand it's REALLY bad [shake] (I'm going back to bed as soon as I finish this!)

But on the other, this reaction means that Lyme has been there as I thought.

--------------------
The Bite: July 1995
Next 13 years: Treated for things I didn't have
Symptom total: 45
1 faint Lyme IgM May 2000
5 More negative tests
IGeneX says YES! 3/16/09
Finally feel human: 2012

Posts: 120 | From Plainsboro NJ | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
mtree
LymeNet Contributor
Member # 14305

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Mari [hi]

..."today I feel like the bus ran over me, and backed up over me, and ran over me again..."

Some days I feel like a chewed up peice of gum on the bottom of some ones shoe...and they keep stepping on me... [bonk] [Big Grin]

all you can do is ride it out now....

you know where to reach me....
thinking of you...

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

Posts: 968 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Melodymaker
LymeNet Contributor
Member # 16434

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At last, an answer for you. so happy that you're finally getting treatment.

You'll make it through the herxing, just take all the rest you need. You deserve it girl!!

--------------------
Wishing You Showers Of Blessings!
Lyme since Fall 1983 = Diagnosed Summer 2008
IV Rocephin 7 weeks Stopped due to drug fever
Now doxycycline
"For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11

Posts: 421 | From Sunny South | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
   

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