pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Do you people know that we have a new Lyme Bill? It's similar to last year's bill, and we are talking about it on Activism. Please come over because activists can't do this alone. Everyone has to do their part.
Are we finally going to have a voice at the federal level as to how funding is allocated? The Advisory Committee gives us a voice for the first time. Please come to Activism and see how you can get involved.
LDA has made it SO EASY even neuroLymies can do it! Go to http://cwork.com/
All of us "activists" will be working on it, but legislators need to hear from their constituents. Let's ROLL! Let's do it like we're doing it for Oprah!
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
| IP: Logged |
bettyg
Unregistered
posted
well done phyllis; it takes us ALL working as a JOINT EFFORT in accomplishing as much input as we lyme patients have done from ALL LYME BOARDS; not just this one!!
if you are so sick you can't do it, PLEASE ASK FAMILY/FRIENDS TO EMAIL YOUR CONGRESSMAN FOR YOU !! thank you!!
i truly think with the march 28 joint PLANNING meeting with HOUSE REP FRANK WOLFE; this IS YEAR 09 LYME BILLS WILL BE ON "SCHEDULES" AND DISCUSSED AT LAST after 11 plus years !!
come and join us! we need every ONE OF YOU.
IP: Logged |
posted
We all need to be activists now, to the extent that we can, as public awareness momentum is building from the ongoing UOS film showings, Pam's book, legislative efforts, etc.
Little actions, big actions, it all adds up. Whatever level you're comfortable with...
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
pmerv
Frequent Contributor (1K+ posts)
Member # 1504
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Phyllis, Please do re join us at www.lymefriends.com and post this. Our site crashed and we had to start over, but we have about 350 members, who would be receptive and would do this.
I think it would be good for them to hear from you!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Copy and pasted letter today and found out who to send it to.
Also added my own story.
Hoping to get it in the mail tomorrow.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/