posted
It is so incredibly frustrating to get any questions answered or anything done outside of an appointment.
I NEVER get a live person on the phone when I call. It takes days to get a response, if any. I give them 24 hours like the phone message says, then I start wondering if I'm going to get a response at all, so I call again. I also fax, which doesn't seem to make a difference.
Sometimes I just give up.
It is so stressful and demoralizing. I know it is bad for my health. I ate a lot of junk yesterday from the frustration, and woke up with a pounding heart this morning.
Maybe a counselor would help, but why should I need to go to a counselor to deal with my LLMD?
Posts: 311 | From CA | Registered: Jul 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
not acceptable!
And the stress of it makes your symptoms worse.
Is this an issue with all patients? I would mention this to yoour doctor at your next appt.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Janice,
I really feel for you. My LLMD is just the opposite.
He will spend alot of time on the phone if necessary and he and his wife, the nurse, gave me their home phone #, which I have not used.
Are you satisfied with your care except for when you need to call for something?
I can't imagine being that stressed out by the Dr who is in charge of getting me well.
Is there any chance of seeing a different LLMD?
Good luck!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I hope you can find a solution.
I find - about the junk food - that it's just best to not even buy it. If it's not there, you can't eat it.
You mentioned a counselor, while your LLMD contact problems won't be solved by anyone else (other than a new LLMD), you might be able to come up with all sorts of healthy ways to deal with all the frustrations that come from chronic illness.
It would be best to see a LL counselor, though.
And stock up on carrots and celery to chomp on. There are some great gluten-free crackers that pack a crunch, too: Google "Mary's Gone Crackers"
A mini-trampoline also is a good stress reducer if used gently.
posted
Someone at my LLMD always gets back with me the same day if I have called before 3:30. I work in a doctor's office though so I know how hectic it can get. People call over and over and pharmacies fax scripts over and over. The poor nurse spends her day running around in circles. It really is a mess.
-------------------- Dying is easy. Living is harder. Posts: 257 | From owensboro kentucky | Registered: Mar 2008
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posted
My LLMD is just one person, a secretary, and a part time nurse.
If I call during the week, my call is 100% returned within a few hours (I've been seeing her for 5 years)
She is readily available by cell 24/7 and has even met my husband at her office on the weekends when we have run out of supplements
Numerous times she has returned our calls immediately on Sat on Sun when I was in a crisis situation.
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
Be careful how much you complain HERE. About 6 months ago a big stink was started with a post like this... same dr.
It resulted in several people being banned.
Wouldn't want to lose you, Janice!
( I have nothing to do with who gets banned, just to be clear. )
I just remembered... the person posting the thread was dropped by her dr because he found out about the thread.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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There may be another way to work with this. Ask your doctor for a list of reading materials that will help you when you need answers to questions between appointments.
I would like the Singleton book might be a good choice as there are so many self-care tips in that as well as in Burrascano's guidelines. Even if your LLMD does not follow the treatment protocol, there are many great self-care guidelines.
And, the local lyme support group may be a good contact, too.
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