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» LymeNet Flash » Questions and Discussion » General Support » My LLMD's office is hurting my health

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Author Topic: My LLMD's office is hurting my health
Janice70
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It is so incredibly frustrating to get any questions answered or anything done outside of an appointment.

I NEVER get a live person on the phone when I call. It takes days to get a response, if any. I give them 24 hours like the phone message says, then I start wondering if I'm going to get a response at all, so I call again. I also fax, which doesn't seem to make a difference.

Sometimes I just give up.

It is so stressful and demoralizing. I know it is bad for my health. I ate a lot of junk yesterday from the frustration, and woke up with a pounding heart this morning.

Maybe a counselor would help, but why should I need to go to a counselor to deal with my LLMD?

Posts: 311 | From CA | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
feelfit
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not acceptable!

And the stress of it makes your symptoms worse.

Is this an issue with all patients? I would mention this to yoour doctor at your next appt.

Feelfit

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Dekrator48
Frequent Contributor (5K+ posts)
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Janice,

I really feel for you. My LLMD is just the opposite.

He will spend alot of time on the phone if necessary and he and his wife, the nurse, gave me their home phone #, which I have not used.

Are you satisfied with your care except for when you need to call for something?

I can't imagine being that stressed out by the Dr who is in charge of getting me well.

Is there any chance of seeing a different LLMD?

Good luck!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Keebler
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-

I hope you can find a solution.

I find - about the junk food - that it's just best to not even buy it. If it's not there, you can't eat it.

You mentioned a counselor, while your LLMD contact problems won't be solved by anyone else (other than a new LLMD), you might be able to come up with all sorts of healthy ways to deal with all the frustrations that come from chronic illness.

It would be best to see a LL counselor, though.

And stock up on carrots and celery to chomp on. There are some great gluten-free crackers that pack a crunch, too: Google "Mary's Gone Crackers"


A mini-trampoline also is a good stress reducer if used gently.


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
abigail
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Someone at my LLMD always gets back with me the same day if I have called before 3:30. I work in a doctor's office though so I know how hectic it can get. People call over and over and pharmacies fax scripts over and over. The poor nurse spends her day running around in circles. It really is a mess.

--------------------
Dying is easy. Living is harder.

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Larkspur
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My LLMD is just one person, a secretary, and a part time nurse.

If I call during the week, my call is 100% returned within a few hours (I've been seeing her for 5 years)

She is readily available by cell 24/7 and has even met my husband at her office on the weekends when we have run out of supplements

Numerous times she has returned our calls immediately on Sat on Sun when I was in a crisis situation.

--------------------
"We must be willing to get rid of
the life we've planned, so as to have the life that is waiting for us" - e.m. forster

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Janice70
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Larkspur, that sounds heavenly. Maybe I'll move to Pennsylvania.
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Tincup
Honored Contributor (10K+ posts)
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Sorry you are having communication difficulties.

No excuses in MY opinion.

Let the doctor know next visit.

Good luck!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Janice70
LymeNet Contributor
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Yes, Michael_Venice. From yours and others' comments, I am now at least convinced it is nothing personal.

Or maybe they don't like all of us, lol. ;-)

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Lymetoo
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Be careful how much you complain HERE. About 6 months ago a big stink was started with a post like this... same dr.

It resulted in several people being banned.

Wouldn't want to lose you, Janice! [Smile]

( I have nothing to do with who gets banned, just to be clear. )

I just remembered... the person posting the thread was dropped by her dr because he found out about the thread.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
Honored Contributor (25K+ posts)
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-

There may be another way to work with this. Ask your doctor for a list of reading materials that will help you when you need answers to questions between appointments.


I would like the Singleton book might be a good choice as there are so many self-care tips in that as well as in Burrascano's guidelines. Even if your LLMD does not follow the treatment protocol, there are many great self-care guidelines.


And, the local lyme support group may be a good contact, too.


==================


This book, by an ILADS member LLMD, holds great information about treatments options and support measures:


http://tinyurl.com/6lq3pb (through Amazon)


THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com


=========


You can search for any term here. Self-care, rehabilitation, diet, exercise, rest, herxheimer/herx, etc.:


http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf


Dr. Burrascano'sTreatment Guidelines (2008)


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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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