posted
I started a thread on the Doctors (TV show) forum about Lyme Disease (on February 2, 2009 - Top Five Health Scares: Are You at Risk? → Lyme Disease is epidemic).
Now they are asking for our stories!!!
As they're asking for our suggestions as well, maybe we could mention certain doctors we'd love to see on the show, etc..
So, I'm hoping with our feedback they'll do a whole show on Lyme!
I think you all may have to join the community first before this link works.
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Just posted.... thanks for the link!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
i posted again, and someone else posted AG BLUMENTHAL'S post on antitrust outcome and then the new idsa panel selection i think; forgot already.
left my 3rd post there, and a BIG THANKS ROY FOR MY EGO BOOSTER!!! xoxox hope katie doesn't mind lol
posters: please do NOT SHOW ANY OF OUR LLMD NAMES UNLESS THEY GIVE YOU PERMISSION TOO!! thanks everyone!
kreynolds; wow; your post blew me away. Thanks for your vote on confidence and ego booster. It will take my head awhile to go back to normal.
to the drs:
if you go to www.lymememorial.org site, you can view the list of all those dying from LYME AND/OR CO-INFECTIONS caused by these ticks, mosquitos, flies, or other tick carrying mammal.
There you will info galore on other facts and statistics that Melanie Reber, webmaster, there has put together.
We recently had 2 - 47 yr. old lyme patients commit suicide within days of each other from different states. They'd lost everything, and the pain was not being controled, etc.
2 wks. ago a 34 year old man, Karl Joedicke, died suddenly of lyme disease after only being sick for 1 year. An autopsy was performed; they didn't come up with anything, but more testing will take months to get it back.
Too many young lives have been taken MUCH too soon due to this complicated lyme/co-infection disease that the infectious drs. say can be CURED IN 3 WEEKS. They have even given newly bit folks only ONE PILL to be cured! UNACCEPTABLE.
PLEASE have chronic lyme and co-infections shows; the entire show being devoted to this very COMPLICATED disease.
Lyme disease is 1 of many on the BIOTERRORISM list and worked on at Plum Island near Lyme, Conn. Does that tell you something; it does me?
Thank you for your help in educating ALL; starting with you doctors even. xox
posted
UPDATE ... here is WHY THEY ARE ASKING FOR QUESTIONS!!
03/13/2009 21:45
Canuck Lime Green Ribbon Posts: 1038 Group Leader
On The Marc Media Update:
UNDER OUR SKIN, the documentary that investigates the untold truth of Lyme disease, will be featured on The Doctors, a nationally syndicated show, taped in LA. *************************
They are asking for people to submit questions about Lyme disease for their panel of doctors to talk about on the show. ------------------------
They also want to hear your stories.
Please ask them to do an entire show, not just a segment on UNDER OUR SKIN and the seriousness of Lyme disease.
If you have not seen the show - check your local listings.
It's syndicated so it is on different times and different channels depending on where you live.
Please spread the word and ask people to write in.
The taping is next week so there is not much time. ***************************************
1. Why with all the patents/grant $$ you've gotten, have you NOT come up with a 100% accurate lyme test for patients? UNACCEPTABLE. 2. Also some of your clinical studies have gone on for 10-20 years; no results from what I remember awhile back when I studied them. UNACCEPTABLE. 3. Where did you come up with the screwy 3 wks. MAX antibiotics where some of the IDSA drs. have stated it was NOT ENOUGH to cure? 4. Now many of you are promoting the ONE PILL, YOU WILL BE CURED ANTIBIOTICS! Some of our lyme members have told us this on the lyme boards; disgusting!
TO ALL THE DRS:
1. Do you treat lyme disease or the CO-INFECTIONS 1st? 2. ALL CO-INFECTIONS or just 1 at a time? 3. I can not grasp why ALL DRS. can't work together on this and get lyme disease and co-infections under control. There are many brilliant minds out there, but they are working against each other in my humble opinion. 4. WHO IS IT HURTING THE MOST? US WITH LYME/CO-INFECTIONS!
What will it eventually take for the insurance companies to give us the SAME RESPECT and REIMBURSE US FOR REASONABLE EXPENSES as they do all cancer, aids, and HIV patients?
That's the thing we hate the most!! 100% out of pocket where majority of lyme patients have lost EVERYTHING due to the high costs of treating lyme because INFECTIOUS DRS. did not treat us LONG ENOUGH on antibiotics for months and up to years vs. their 3 wks. MAXIMUM!! UNACCEPTABLE.
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