posted
I am over 3 months into my initial treatment for Lyme and co-infections.
While I am better, I'm not "all better," and I am having a difficult time handling the situation.
I know I'm lucky to have as much improvement as I do, but I still feel very much affected by my health and sometimes, I feel like my brushes with normalcy only make it harder to take the bad days.
I also feel that those around me see the good days, and don't understand why I still have the bad days.
I'm very optimistic that I will continue to improve, but how do I stay realistic about my expectations and patient with myself about my limitations and set backs?
The longer I am sick, the less I say about it to fewer people in my "real life," (off line, that is) but for those who are still there for me, how can I help them understand?
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
i wish there was a good answer here. Time is the only thing that is going to solve this. i am into my 7th month and i'm 85% better but the last 15% is still holding me back from being productive...
To boot i have been taking such great care of myslef people think i look great. You just have to focus on you, keep your heart full of hope and keep doing what you are doing.
Even if the folsk around us acknowledge our pain that will make us feel better for a day or so...we still have to battle.
Keep the faith,
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" -(author's details at link)
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpt:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
. . . .
==========
Wonko,
If you stay the course you have a chance at a good life. Don't try to push too hard. This is a process and the spirochete is a mighty foe that cannot be tricked. It takes time.
Some need treatment for much longer than the minimum 30 weeks suggested above. You may be feeling better in a few months time but still try to enjoy or appreciate something about life as much as you can.
As for the way others see you, I find that I'm my toughest critic. I'm the only one who has to be on board her. Others do get it, somewhat, but I don't spend the little time with them trying to convince them.
Maybe a book or an article will help to share - or develop some new friends and interests if you don't feel good being around others who may judge you.
This can be isolating in many ways but it can also be freeing in some. I hope your friends will read the article above and the book "Cure Unknown" - it's good knowledge for everyone.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic